Lupus

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  • New blood test for lupus. Could it be?

    Despite Lupus
    20 Jan 2012 | 7:00 am
    Word in Pittsburgh, PA is that there's a new blood test that can help to more accurately diagnose lupus. You can read the entire article here, but here are the highlights:A new blood test that researchers in Pittsburgh developed to help doctors better diagnose lupus now is available for everyday use.Drs. Joseph Ahearn and Susan Manzi of West Penn Allegheny Health System began working on the test about a decade ago at the University of Pittsburgh, said Jennifer Davis, a system spokeswoman."...Up until now, there really was no specific blood test for lupus, which led to it being grossly…

  • Mutation Drives Viral Sensors To Initiate Autoimmune Disease

    Lupus News From Medical News Today
    28 Jan 2012 | 2:00 am
    A new study uses a mouse model of a human autoimmune disease to reveal how abnormal regulation of the intracellular sensors that detect invading viruses can lead to autoimmune pathology...

  • Angelo David's Premier Volume Spray benefits Lupus and glamorous hair.

    Lupus News
    26 Jan 2012 | 8:32 pm
    Celebrity hair stylist Angelo David debuted his new Premier Volume Spray this past Tuesday night at his midtown salon with a launch party catered by Cipriani and a mix of beauty journalists who sampled the new volumizer while sipping Brugal rum, champagne, and wine and having their hair prepped by staff.

  • Study Finds Gardasil Does Not Trigger Autoimmune Disorders

    Latest News from the S.L.E. Lupus Foundation
    admin
    27 Jan 2012 | 3:12 pm
    A new study found no link between autoimmune diseases like lupus with the vaccine Gardasil used to protect girls and young women a common sexually transmitted disease in the United States that can lead to cervical cancer. Funded by Merck & Co., the study was conducted at cancer center Kaiser Permanente and published in the peer-reviewed Journal of Internal Medicine. Full story

  • Study Finds Gardasil Does Not Trigger Autoimmune Disorders

    Latest News from the Lupus Research Institute
    27 Jan 2012 | 3:09 pm
    A new study found no link between autoimmune diseases like lupus with the vaccine Gardasil used to protect girls and young women a common sexually transmitted disease in the United States that can lead to cervical cancer. Funded by Merck & Co., the study was conducted at cancer center Kaiser Permanente and published in the peer-reviewed Journal of Internal Medicine. read more
 
 
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    lupus - Google News

  • Broken hearts, broken dreams - Regina Leader-Post

    28 Jan 2012 | 2:15 am
    Broken hearts, broken dreamsRegina Leader-PostIt wasn't until July 2010 that Stan was diagnosed with cerebral lupus and frontotemporal dementia. "The lupus was attacking his brain causing vasculitis - inflammation of the veins, plus the mini clots were probably causing the short-term memory loss and more »

  • No Increase in Autoimmune Conditions From Use of HPV Vaccine - Medscape

    27 Jan 2012 | 5:56 pm
    Demerara WavesNo Increase in Autoimmune Conditions From Use of HPV VaccineMedscapeThe 16 conditions included autoimmune disorders from the following categories: rheumatologic, such as immune thrombocytopenia, systemic lupus erythematosus, and rheumatoid arthritis; endocrine, such as type 1 diabetes, Hashimoto's disease, Study Finds No Link Between HPV Vaccine and Autoimmune DisordersU.S. News & World ReportMore Safety Points for HPV VaccinedailyRxConcerns Linking HPV Vaccine and Autoimmune Disorders Are UnfoundedJotZoomall 13 news articles »

  • Award-winning Springfield student keeps very busy - Montgomery Newspapers

    27 Jan 2012 | 4:41 pm
    Award-winning Springfield student keeps very busyMontgomery NewspapersHaving recently moved on from co-president to president, she helps raise awareness about lupus and other autoimmune diseases such as rheumatoid arthritis, and she does so on the local, state and national levels. “I just feel as though lupus is

  • Reproduction and Recruitment - Patheos

    26 Jan 2012 | 11:03 pm
    PatheosReproduction and RecruitmentPatheosBy P. Sufenas Virius Lupus, January 27, 2012 "Like" the Patheos Pagan Page on Facebook to receive today's best commentary on Pagan issues. This is bound to be one of those posts that simultaneously scares certain conservative dominant religious and more »

  • Sytemic lupus erythematosus presenting with protein losing enteropathy in a ... - 7thSpace Interactive (press release)

    26 Jan 2012 | 8:31 am
    Sytemic lupus erythematosus presenting with protein losing enteropathy in a 7thSpace Interactive (press release)IntroductionSystemic lupus erythematosus is a disease which may initially present with varying symptoms, most commonly a photosensitive rash and arthritis. Protein losing enteropathy is a recognized but rare presenting manifestation.
 
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    Road to a Lupus Cure

  • Jenny's Notebook: Directions and Destinations

    27 Jan 2012 | 1:40 pm
    Jenny's Notebook is back and better than ever for 2012! Check our her latest post about taking control and managing her lupus to live the best life possible, despite its challenges. How truthful are you about the way you manage your lupus? I’m going to ask you a few questions; let’s see how you do—and be honest.     Have you ever skipped taking your meds? Once or twice? For a week? For longer? Have you ever spent the whole day in the sun without any sunblock or sun-protective clothing? Have you ever insisted on working late every night for weeks on end because no one else…

  • Lupus Foundation of America Expands Education Series for 2012

    19 Jan 2012 | 12:00 pm
    The Lupus Foundation of America (LFA) has announced its 2012 topics and dates for its nationwide education series, Lupus: Learn from the Experts,™ designed to provide people with lupus essential information about living with lupus from some of the world’s leading experts. The program is a series of webinars hosted by a variety of experts that will cover a wide-array of issues important to people with lupus including, pediatric lupus, diet and nutrition, pregnancy and lupus, skin lupus, treatments for lupus, among others. This year the number of webinars has been expanded and includes two…

  • Lupus Research Report: Reduced Growth and Delayed Puberty in Children with Lupus

    12 Jan 2012 | 1:28 pm
    From our latest Lupus Research e-newsletter   Children with lupus often face unique challenges because their disease can be more severe and may require more aggressive treatments. Lupus or its treatments may have lasting biological effects. However, little is known about growth and development in children with lupus. The researchers examined possible impairments in growth, such as height, among children with lupus of varying ages and also depending on how long they have had lupus. Possible effects of steroid treatments on height were also specifically examined. Read more>>

  • Changes to Lighting in your Home

    5 Jan 2012 | 2:07 pm
    A change is coming to the light bulbs you will find for sale in the United States. Current incandescent light bulbs do not meet the energy efficiency standards and as a result, the phase out of general service incandescent light bulbs began January 1, 2012. The larger lighting manufacturers have developed three core types of light bulbs: Compact Fluorescent Light, Halogen, and Light-emitting Diode (LED). However, anecdotally, many people with lupus have reported more adverse reactions or flares when exposed to fluorescent lighting. Learn more about how this lighting change may affect you and…

  • Make Your Year-End Gift to the LFA Today

    15 Dec 2011 | 10:57 am
    As we come to the end of 2011, we reflect back on all the progress we’ve made this year. Your support enabled the Lupus Foundation of America (LFA) to increase awareness about lupus, generate greater investments in lupus research, and stimulate the development of new, safe, and more effective treatments. Together, we have made great progress. But there is still much more work that needs to be done. This year, three long-time LFA supporters generously pledged to the LFA a total of $100,000 — enough to fund a lupus research project for a year, like Dr. Vikki Abraham’s study on lupus and…
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    lupus « WordPress.com Tag Feed

  • 30 Days of Truth - Day 27-Whats the best thing going for you right now?

    sheila
    12 Jan 2012 | 5:45 pm
    One of the blogs I follow has recently been posting these 30 Days of Truth writing prompts. (See list here: http://hope.gr/30-days-of-truth/ ) I thought, what a great idea! Whats the best thing going for you right now? The best thing right now? My current lupus treatment options. Yesterday I started Benylsta infusions. I previously was part of the clinical trials before the FDA approved them. This time its different. For one, this flare is worse than the last one. It seems like they are progressively getting worse with each one. This flare requires immuno-therapy infusions, albumin…

  • Not me

    projectwords11
    12 Jan 2012 | 12:13 pm
    Where am I now? Why am I here? This isn’t Where I want To be Who am I now? How is this me? This isn’t Who I want To be This can’t be me Here where I am? I never Wanted This For me            

  • Lupus : Topi-Topi Centil

    ebookmaniac
    12 Jan 2012 | 10:36 am
    Penulis : Hilman Terbit : September 2007 Bahasa : Indonesia Sinopsis : Lupus pernah punya mimpi inda

  • Superman and the Crazy Lady

    Wind Inspired
    12 Jan 2012 | 10:02 am
    I am married to Superman. I know, I often refer to him as Prince Charming, as we met at a Ball…. but Superman would have been an equally, if not more, appropriate pseudonym. Why? He swoops in and fixes things in a single bound with a roll of duct tape and a paperclip. He  flies airplanes. He’s been to war. He has a stomach of steel. He takes on three-week-old leftovers with pride. And he saves me from my own insanity on a daily basis. So, as you can imagine, it would take excruciating pain to get him to the doctor. Excruciating as in a limb is hanging by a thread, or maybe…

  • Lupus : The Lost Boy ( Salah Tangkap )

    ebookmaniac
    12 Jan 2012 | 9:43 am
    Penulis : Hilman H Terbit : 1998 Bahasa : Indonesia Sinopsis : Meski sama-sama udah bangkotan ( dala
 
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    Chronic Chick Talk

  • Self Esteem Boost for Chronic Illness

    admin
    25 Jan 2012 | 5:55 pm
      A new pair of eyeglasses is a perfect way to feel special about yourself especially when you’re feeling down and out. It’s a perfect icemaker for anyone who has a hard time starting conversation with strangers. If I was purchasing a pair I’d pick a pair with a little bit of etching on the sides since I don’t like to draw too much attention to myself, especially when I’m not feeling very well during a lupus or fibromyagia flare. It is one way to feel good about myself when I’m feeling down and out with the pain and fatigue of living with lupus and chronic pain. A little…

  • Positive Ways to Deal with Chronic Illness

    admin
    25 Jan 2012 | 5:32 pm
    Look at yourself in the mirror and say positive things about yourself out loud,if possible.   I may be sick, but I will not let sickness define me.   Write positive messages to yourself on post it notes or note cards in your car or house. Do a search online for inspirational quotes or make up your own.   Wear a little makeup. A tube of lipstick or blush will help you look and feel good. You don’t have to leave the house to wear it. Adding a little eye color to you will help brighten your eyes   Write positive messages in a gratitude journal. It does not have to be…

  • Eye See Holiday Cheer All Around

    admin
    22 Dec 2011 | 9:54 pm
    A new pair of glasses is always great to have in time for the holidays. My daughter loves to dress up for the holidays from head to toes with holiday decor. I love how she gets into the holiday spirit. This year she decorated our tree by herself since I was not able to help out. Since I have a hard time getting her to wear her cheap eyeglasses I wonder if I bought her one for each season of the year if that would encourage her to wear them more often than she does now. Sometimes a parent has to do what they have to do to get their kids to wear. Mine tries all kinds of tricks not to wear them,…

  • Merry Christmas to All

    admin
    22 Dec 2011 | 9:50 pm
    Wishing everyone in the world a Happy Holiday and blessings all year.

  • Traveling Abroad with Australian Health Insurance

    admin
    12 Nov 2011 | 8:35 pm
    Being insured is especially important for people with chronic illness when traveling abroad. I have not traveled abroad since I’ve been sick. Before leaving town, I would need to check if my medical insurance covers me aboard and if I had enough coverage. If I was traveling to Australia I would look into Australian Health Insurance to cover my medical needs. They have several plans which cover hospitalization, doctor’s visits, and funerals. The health insurance offers several coverage plans from budget visitor coverage to executive coverage.  Buying the budget coverage is better than…
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    Despite Lupus

  • Good news for Biologics - no increased risk of infection

    27 Jan 2012 | 7:00 am
    Medscape News featured another article that might be of interest to those of you currently on or considering  treatment with a biologic.From the article, it appears that the focus groups consisted of patients with RA (Rheumatoid Arthritis), IBD (Irritable Bowel Disease), and psoriasis, psoriatic arthritis, or ankylosing spondylitis (psoriasis and spondyloarthropathies). No lupus was present among the patients, but the drugs discussed in the article are definitely within the lupus cocktail of medications, keeping lupus in the mix for possible future treatment with biologics. Of…

  • Changing what we can - nothing more, nothing less.

    25 Jan 2012 | 7:00 am
    In gearing up for my speech this weekend, I came across a selection in my book that I haven't thought about in awhile. But oh, how true it is. I think my post last week reminded me that our lives with lupus are bound to change over time - we evolve, our disease evolves - and the best we can do is attempt to make positive changes when and where we can. And while it's important not to spend time or energy struggling with issues that we can't change - I like to focus on the proactive side of the equation. That is, the fact that we must take ownership and responsibility for those issues where we…

  • Join me in Reston, VA on Wed., Feb 1st - Author tells all!

    23 Jan 2012 | 7:00 am
    Despite Lupus is on the move again. Following my upcoming weekend in Fort Wayne at the Lupus Foundation's Indiana Chapter Symposium, I'll be back in Virginia speaking locally at one of the Foundation's support groups in Reston. I'd love to see you - and look forward to sharing more thoughts and strategies for living well, despite lupus. Here are the event details - and you can register for the event here. (FYI - Just like all of the D.C./Maryland/Virginia events, the event is free of charge.)WHEN: Wednesday, February 1, 2012 at 6:30 PM (ET)WHERE: Reston Community Center 2310…

  • New blood test for lupus. Could it be?

    20 Jan 2012 | 7:00 am
    Word in Pittsburgh, PA is that there's a new blood test that can help to more accurately diagnose lupus. You can read the entire article here, but here are the highlights:A new blood test that researchers in Pittsburgh developed to help doctors better diagnose lupus now is available for everyday use.Drs. Joseph Ahearn and Susan Manzi of West Penn Allegheny Health System began working on the test about a decade ago at the University of Pittsburgh, said Jennifer Davis, a system spokeswoman."...Up until now, there really was no specific blood test for lupus, which led to it being grossly…

  • With lupus, change never goes unnoticed

    18 Jan 2012 | 7:00 am
    If the fatigue I mentioned on Monday wasn't enough of a false alarm - my most recent malware alert sure was! You know I've had my fair share of issues with my website and malware - but thankfully, all has been clean and clear since I made a clean sweep of my site. (Thank you, Kevin!)But just last week, I made a minor change to my website which I expected would be seamless, but was anything but. I switched hosting companies so that I could have my new saragorman.com site alongside my despitelupus.com site, but my malware scanning service didn't like the change. In fact, they saw the interim…
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    My Life Works Today!

  • Pac-Man and our health

    maria
    21 Jan 2012 | 2:12 pm
    Okay, I am beyond excited about this collaboration between technology and molecular biology~ and wanted to share a link with you today from NPR. First, this is a great flu-season topic to cover, as we are surrounded by so many dealing with colds and various other bugs that can complicate our lupus or autoimmune disease self-management. Secondly, consider the possibilities in what lupus researchers may be able to learn more about the miscommunications going on within our immune systems leading to our destructive inflammation.  What would our T-cells say into a transistor and how might that…

  • MLWT Musings Member Offerings

    maria
    19 Jan 2012 | 9:00 pm
    In the Celebrations edition of the MLWT enewsletter, I introduced a new column “Community Sharing.”  I will be announcing three topics that come into my email inbox on a regular basis and I am asking those of you who receive the enewsletter to send back your responses so that I can post them here on the site. Here are the three community requests and the responses I received – thank you to those of you contributing to the discussion!   Request #1: Some suggestions on how to respond to family/friends who question the inconsistencies of our symptoms (for example, “You were…

  • Teaching this ‘old’ dog some self-care tricks

    maria
    14 Jan 2012 | 7:11 pm
    With the return of my lupus symptoms during the holiday ‘flare’, I’ve been making a more conscious effort to notice the decisions I make in treating them. Usually, I only take two medications to manage my lupus and it’s affects on my kidneys.  Those two medications are an immunosuppressant CellCept ® and the ACE inhibitor/diuretic brand name Lisinopril .  I have been through many more pills and higher dosages over the years, but have been consistent in this current regimen since 2007.  In all honesty, there have been some hitches in dosages from time to time.  However, I’m…

  • 2012: The Year of ‘There and back again’

    maria
    2 Jan 2012 | 9:36 pm
    I always look forward to the New Year, full of potential and new experiences.  I no longer make resolutions, only because they come with them old pressures and negative mental tapes of past failures that I’d rather not have hanging over me as I start things off. I’ve learned to simply take one day at a time with one objective in mind.  That way, every day shows accomplishment and I get those immediate results that just never come to be when my goals are too big or I take on the whole year.  This year, unlike the past eight years, I am unfortunately starting out with some challenges…

  • How do I see my Illness?

    maria
    21 Dec 2011 | 2:11 pm
    I missed the deadline for the PFAM this month, but Leslie has graciously allowed us to submit late and here is mine. I offer both in-person and online Discovery Sessions that focus on wellness – not just illness, but the overall concept of health as “…a state of complete physical, mental and social well-being.” (Straub, 2012)  If someone wants to look at their relationships, their work, their feelings about their health challenges, or simply wanting to open up to learning more about what is going on “inside”, the Discovery Sessions are a quick, easy and non-therapeutic…
 
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    My Lupus Update

  • Today's devotion email

    26 Jan 2012 | 9:21 am
    I get an email every day from Rest Ministries- Chronic Illness and Pain Support. I do my best to read them every day as well as one day of devotions out of the book "Mosiac Moments: Devotionals for the Chronically Ill. And I reflect on them through out the day.One I read several months ago talked about leaning on God for physical strength, this is something I ask God to show me every day. I lean on him for emotional strength most of the time, but I don't understand how to lean on him for physical strength. I wanted to share this with you today because today's email hit home. Hit me right…

  • Guest Bloggers?

    25 Jan 2012 | 10:48 am
    I recently had a request from someone who would like to be a guest blogger. I have never even considered this, but I am open to it. If this is something you would be interested in doing send me an email and let me know. I will be happy to review your writing and post it. I would like to keep away from sales posts and things of that matter. You don't have to be just a patient, you can be a caregiver or someone on the outside looking in.Email me lewisdca@msn.comAlso, if you have other blogs you enjoy reading or you have one yourself, leave me the link and I am happy to post it on the side of my…

  • the morning after

    25 Jan 2012 | 10:23 am
    This morning I thought I would wake up feeling better. Yes, I know, I have an optomistic look on life sometimes. But I didn't. The good news, bland food and fluids are staying in me. A lot of stomach pains come with that, but it works. Surprising my joints are doing ok today. Last night it was horrible. Had to take medications to sleep. I am feeling stressed too. Is the Benlysta working? Is it not? I just don't know anymore.I thought working out was helping my body feel better with the Benlysta, now I don't know. What else can I do? I don't know. Time to pick myself up off the floor, figure…

  • Ever feel alone?

    24 Jan 2012 | 9:21 pm
    I know I'm not alone. Thousands of people deal with Lupus everyday, but each case is unique. This week I have been keeping myself out of the gutter, but just barely. I am so frustrated with all I am going through. I was feeling so great and then something hit and now I feel as bad as I did 6 months ago. What is going on? Is the Benlysta done working? Did it ever work, or was I fooling myself? Back in September my husband challenged me to loose 80 pounds. 80 pounds I would give anything to loose. But it's been hard, very hard. Going to the gym is hard. Not because I'm out of shape but because…

  • Product review

    9 Jan 2012 | 9:37 am
    I was not given product for this blog post, I just love this product- although if they wanted to send me some as a thank you I wouldn't turn it away) :-)I am NOT a "health" person. I roll my eyes at people who say this vitamin or that will probably help me with my Lupus. Mainly cause I have tried it all. But I had confided in a friend of mine about my struggle to loose weight and how I desperatly wanted something I could have for breakfast that was fast and easy to do. She told me about this drink... I am a PICKY eater, so I was skeptical. She gave me a three day sample and I actually was…
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    The Life of a 20-Something With Lupus

  • I can't move my arms or my legs...Part 2

    22 Jan 2012 | 3:40 pm
    Part 2 of "I can't move my arms or my legs".

  • Lazy Saturdays

    21 Jan 2012 | 6:42 pm
    I needed this.This past week was so busy.  I had appointments everyday except for Wednesday, though I did go to work on Wednesday. I'm glad that I was able to just to a nice long dialysis run last night and lazy myself around my bedroom today.  I slept about 3 additional hours after eating breakfast.I did not use my neti pot last night, but I did use my Avamys. I was fine overnight, but I woke up with a headache! I used my neti pot again this morning and will use it once again tonight during my bedtime routine.Before I resume doing nothing, I just have to discuss an irritating…

  • I can't move my arms or my legs...

    20 Jan 2012 | 8:41 pm
    I finally recorded a vlog about the time I was unable to move my arms or legs. This is part 1 of 2.  Part 2 will be uploaded shortly.

  • Raw Lunch @ Belmonte Raw

    18 Jan 2012 | 5:30 pm
    After finishing work today, I checked my cell phone to see a message from my friend Mo asking me if I wanted to check out this raw food spot downtown called Belmonte Raw. Mo and I had discussed this a few days earlier.  I expressed my interest in perhaps going on a raw diet/cleanse for a few days (3-5 days or so). Luckily we were both available, so we headed down there.After successfully navigating the streets downtown, we were able to find the spot. Mo was luckily enough to find a great parking spot on the street right in front of the restaurant.When we got in, we took a look at the two…

  • Lovin' my Neti Pot!

    18 Jan 2012 | 4:25 pm
    Back in early 2010, I came down with a terrible sinus infection.  My whole head hurt badly and my ears were both blocked.  They did not both block at the same time (maybe within a few days of each other). It's a bit of a long story, but the link to that story is above. In the end, it turns out that I had a severe sinus infection.  I was given ear drops and oral antibiotics.By the end of 2010 when winter came around again, I ended up with bad headaches.  I was sent to see an ENT who prescribed Avamys, a nasal spray.  After using it for a few days, my pain has…
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