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  • Too exhausted to fight -- and to do harm

    Lupus News From Medical News Today
    30 Jun 2015 | 2:00 am
    Why 'exhausted' immune cells are bad news for infection, but good news for autoimmune diseasesAn 'exhausted' army of immune cells may not be able to fight off infection, but if its soldiers fight...
  • Flares of systemic lupus erythematosus during pregnancy and the...

    Lupus News
    27 Jun 2015 | 1:40 pm
    Expert Review of Clinical Immunology , Vol. 8, No. 5. , pp. 439-453, doi:10.1586/eci.12.36 Systemic lupus erythematosus is a systemic autoimmune disease that primarily affects women in their reproductive age years.
  • Connecticut Mesothelioma Victims Center Urges A Person Diagnosed With This Rare Cancer To Call Them About Instant Access To The Nation's Top Lawyers And Treatment Options Physicians

    Lupus News
    2 Jul 2015 | 4:15 am
    WASHINGTON, DC, USA, July 2, 2015 / -- The Connecticut Mesothelioma Victims Center says, "About 25 people will be diagnosed with mesothelioma in Connecticut this year, and as far as we are concerned every person with this rare cancer …
  • Lupus in the Chicago Tribune

    Latest News from the S.L.E. Lupus Foundation
    1 Jul 2015 | 12:26 pm
    Two articles in last week’s Chicago Tribune offer valuable insights for people with lupus.  We are proud that the Lupus Research Institute and S.L.E. Lupus Foundation are recommended as resources for patients seeking information about lupus. read more
  • Look beyond drugs for treating lupus - Chicago Tribune

    lupus - Google News
    2 Jul 2015 | 11:03 am
    Chicago TribuneLook beyond drugs for treating lupusChicago TribuneI read the article on lupus written by Barbara Sadick. I found the article to be practical, but I was disappointed in the utter absence of what I consider to be the most hopeful medical information for those suffering from lupus: the connection between
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    Lupus News

  • Flares of systemic lupus erythematosus during pregnancy and the...

    27 Jun 2015 | 1:40 pm
    Expert Review of Clinical Immunology , Vol. 8, No. 5. , pp. 439-453, doi:10.1586/eci.12.36 Systemic lupus erythematosus is a systemic autoimmune disease that primarily affects women in their reproductive age years.
  • Tasteful Affair to benefit Lupus Foundation

    23 Jun 2015 | 4:03 am
    On June 25 the Lupus Foundation of America-Indiana Chapter will be holding a fundraiser to benefit lupus patients. The 4th annual, A Tasteful Affair, will be held at the Mansion at Oak Hill from 6 to 9 p.m. and tickets are $50 per person or $30 for lupus patients.
  • Kadmon Corporation Presents Data Demonstrating Potential of ROCK2 Inhibition to Treat Lupus

    22 Jun 2015 | 8:13 am
    The data will be described in an oral presentation at the Federation of Clinical Immunology Societies 2015 meeting, taking place June 24-27 in San Diego. The data were previously presented at the American Association of Immunologists Annual Meeting in May 2015.
  • Lupus Foundation of America Hosts Capitol Conversation on 21st Century Cures Moderated by Chuck Todd

    16 Jun 2015 | 10:11 pm
    Leaders from Congress, federal agencies, industry and the research community participated in an exclusive "Capitol Conversation on 21stCentury Cures" moderated by Chuck Todd, Host of Meet the Press during the Lupus Foundation of America's National Advocacy Awards Dinner held on June 16. Spearheaded by Congressman Fred Upton , the 21stCentury Cures initiative has the potential to bring new treatments and cures forward for lupus and many other diseases by: providing an additional $10 billion in funding to the National Institutes of Health; establishing a public-private partnership to collect…
  • Anthera Pharmaceuticals Has Reached Enrollment Target in CHABLIS-SC1...

    16 Jun 2015 | 2:45 pm
    Anthera Pharmaceuticals, Inc. today announced that it has met the enrollment target of its CHABLIS-SC1 Phase 3 clinical trial evaluating blisibimod for the treatment of lupus. Final data from the trial is expected in the second half of 2016.
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    lupus - Google News

  • Look beyond drugs for treating lupus - Chicago Tribune

    2 Jul 2015 | 11:03 am
    Chicago TribuneLook beyond drugs for treating lupusChicago TribuneI read the article on lupus written by Barbara Sadick. I found the article to be practical, but I was disappointed in the utter absence of what I consider to be the most hopeful medical information for those suffering from lupus: the connection between
  • Living Well With Lupus - U.S. News & World Report

    2 Jul 2015 | 4:01 am
    U.S. News & World ReportLiving Well With LupusU.S. News & World Report"Lupus! Is it lupus?" Many remember "Seinfeld's" George Costanza and his panic over the possibility of having lupus. The show exposed large audiences to the idea of lupus; however, it sensationalized a disease that can actually be well managed.
  • Can Lupus Patient Fast Ramadan? -

    2 Jul 2015 | 3:46 am
    Can Lupus Patient Fast Ramadan?Onislam.netQuestion: As-salamu `alaykum. I have lupus and I want to fast Ramadan. Is it permissible for me to fast with my condition? consultant: Ahmad Kutty. Answer. Wa `alaykum as-Salamu wa Rahmatullahi wa Barakatuh. In the Name of Allah, Most Gracious, Most ...
  • ImmunArray Launches Multimarker Platform With Test to Rule Out Lupus - GenomeWeb

    30 Jun 2015 | 12:30 pm
    ImmunArray Launches Multimarker Platform With Test to Rule Out LupusGenomeWebNEW YORK (GenomeWeb) – Israel-based ImmunArray is launching a microarray platform along with the SLE-Key Rule out, a multiplex molecular diagnostic test to rule out lupus, which will be the firm's first of several planned tests for the new platform.
  • Senate Committee Responds To Lupus Foundation's Call for Increased Lupus ... - Lupus News Today

    30 Jun 2015 | 5:28 am
    Lupus News TodaySenate Committee Responds To Lupus Foundation's Call for Increased Lupus Lupus News TodayThe Senate Appropriations Committee's 2016 spending bill passed June 25 includes some good news for people with lupus. Sandra C. Raymond, President & CEO of the Lupus Foundation of America notes in a statement that the bill provides support for ...
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    WordPress Tag: Lupus

  • I started using Lupus as my crutch.......

    2 Jul 2015 | 10:54 am
    I don’t know where….. but somewhere in the last 8 months I started using Lupus as my crutch. I started saying no to working out because I felt like “death”….. When the truth is I was just hung over. I drank 2 days before and my body still felt it. I started hanging out with friends more with my newly found free time & struggled to keep up with them. Happy hour on Thursday? SURE! Happy hour again on Friday followed by dancing? YES!!! & Then random trips to Austin to party for the night??? I’M GAAMMMEEEEEE. All that did was mess up my path. It really really really just broke…
  • The Heat is Definitely On!!

    2 Jul 2015 | 10:37 am
    Summer is here and the heat is on. People are in high spirits and the holiday bug bites hard. As you
  • Independence Day

    Victo Dolore
    2 Jul 2015 | 10:13 am
    “Have you been taking your meds?” “Uh, no.” “What have your blood sugars been running?” “Yeah, I haven’t been checking them.” “Blood pressure?” “Nah….” I paused for a moment to regroup. She was 8 months overdue for her office visit. Still, better late than never, right? “Doc, I decided that I needed to start taking my health more seriously. I promise I am going to do better. My baby mamma… well I call her that… died last night. She had lupus, had been really sick. She has a teenage…
  • Lupus and Relationship Intimacy

    2 Jul 2015 | 9:45 am
    The Lupus Foundation of America reported that 1/3 of people with lupus had a decreased desire for se
  • Update: Walk to End Lupus Now Denver 2015

    2 Jul 2015 | 9:18 am
    Hello friends! I apologize for the long absence, but life has been happening. It has been a little over a month since the Walk to End Lupus Now Denver 2015 and it was such an amazing day filled with love, support, and hard work. A big thank you to all of you who came out to walk on behalf of your loved ones or yourself. The energy was electric! I thought I would update you on the amount that was raised by my team and overall. As of today, the Denver 2015 walk had 1,470 donors helping 831 fundraisers to raise a whopping $87,241.78 for the Lupus Foundation of America! It makes me happy to see…
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  • Buying Brand New: Guidelines for Investing in Storage Containers

    Marion Moon
    12 Jun 2015 | 2:16 am
    Storage containers provide versatile short-term and long-term packing and space-saving solutions for business owners and homeowners alike. Their uses run from toilet blocks to laboratories, making them a worthy investment. Prior to purchasing and installing a storage container, you should ask yourself a few important questions such as the duration in which you intend on using the container. If you plan to utilize the storage container frequently, then the wiser choice would be to buy one instead of renting one. The second question to ask is whether to buy them secondhand or brand new. If you…
  • A Brief Rundown of Golf Equipment

    Elsie Bush
    5 Feb 2015 | 9:21 pm
    People who want to start playing golf better introduce themselves to the golf equipment that they are going to use when they start playing the sport. Golf is a very old sport that had very humble origins. Back then the sport did not require a lot of equipment to play. Golf nowadays is a lot more complicated than it used to be. There are so many pieces of golfing equipment that people might get intimidated by it. Indeed, the different number of equipment that golfers use nowadays to help improve their game is tremendous. However, beginners do not have to get themselves bogged down in the…
  • Essential Information to Check on HRCI Certified Programs

    Frank Hosier
    3 Feb 2015 | 3:57 am
    People wishing to advance their HR careers take HRCI certified programs to gain titles and validate their HR operations knowledge. Finding these programs is now easy through the internet. But in order to find the right programs, clients should learn more about each offered course. Program Overview This describes the rationale behind the program. For instance, some programs stress the role of trust in an organization in leading projects and improving work relationships. Each program targets one or two essential traits or HR practices that will be enhanced through guides. Aside from the main…
  • Logo Lanyards for Professionals

    Jean Brown
    16 Jan 2015 | 2:34 am
    Lanyards are popular nowadays, especially among the youth. Students use them as ID straps or mobile phone straps, and lanyards are sometimes given away as souvenirs, but did you know that even professionals can make use of lanyards? Logo lanyards can be used as ID straps in the workplace. With the appropriate width, style and design, they can look professional and they need not look “loud”. Lanyards can also be used in conferences or conventions. Not only do they serve as identification—they become part of the ‘credentials’ along with the certificate of participation and can also…
  • How Challenge Coins are Made

    Karen Cruz
    3 Jan 2015 | 12:01 am
    Challenge coins come in a variety of shapes, sizes, finishes and designs which could overwhelm anyone looking to get coins produced. But in order to figure out what custom options one should opt for, it would be best to first understand how challenge coins are made. The first step is the designing stage. At this point, design ideas from the customer would be developed and refined. The artwork can furnished by the customer himself or it can be done by artists from the manufacturer. The layout can be in any format. Even pencil sketches can be turned into a usable design for a coin. However,…
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    Despite Lupus

  • Quick Lupus Survey - conducted by a lupus patient to benefit lupus patients!

    1 Jul 2015 | 8:28 am
    I was recently contacted by Kathy Castle, a doctoral student in the Department of Communication Studies at the University of Nebraska-Lincoln. She's conducting research that she hopes will improve the understanding of communication in family contexts for women with SLE. As someone with SLE, she's interested in conducting research that is aimed at better understanding the way that families communicate about SLE. What a great way to embrace your disease! She's inviting people to complete an online survey about their experience with SLE. The survey takes 15-30 minutes, and here are the…
  • Traveling in style - taking my lupus medication on the go!

    29 Jun 2015 | 4:00 am
    The Zoe Pillfold: slim, stylish, and discreet. Perfect for a night out, or a weekend away. Traveling with my pills to the LFA's Advocacy Awards Dinner never felt so swanky. My current anemic status forces me to take my iron pill at mealtime. So if it's out to dinner I go, the pills have to come, too. Thank goodness I don't have to sacrifice style for adherence! 
  • LFA's Capitol Conversation - 21st Century Cures Act, dinner, drinks, and decisions to cure lupus!

    26 Jun 2015 | 4:00 am
    I had the honor of accompanying my friend to the LFA's National Advocacy Awards Dinner last week. We had a wonderful time! It was a great night for lupus advocacy, and the event featured a refreshing panel discussion with leaders from Congress, Federal Agencies, Industry, and Research - dedicated, passionate high-level people who were there solely to discuss the need to accelerate cures for lupus and other chronic disease. You want to talk about inspiring!? These folks couldn't say enough about the crisis ongoing in the land of Lupus - in research, development, and delivery. The featured…
  • Make Great Light Giveaway - Winner Announced!

    24 Jun 2015 | 4:00 am
       I’m excited to announce the winner of the Make Great Light giveaway today! Thanks so much for all of your entries, though it was so hard to pick just one lucky winner. It became quite clear from the entries submitted that many people are significantly affected by fluorescent lighting - so know that you are not alone. Many of you complained of headaches, fatigue, eye strain, dizziness, rashes, and overall feelings of malaise. These are exactly the symptoms that Make Great Light is trying to prevent. How wonderful that someone is doing something about it!Without further ado, the…
  • Managing Photosensitivity with Light filters + A Giveaway!

    12 Jun 2015 | 4:00 am
    Now that summer is here, most of us are starting to spend more time outdoors. Hello, summer! Hello, sunshine! With that extra time outside, most of us know to take necessary precautions against UV exposure and glare with appropriate clothing, hats, eye protection and skincare in order to avoid a flare caused by the sun.But for many, photosensitivity is a year-round, indoor issue, too: fluorescent lighting at home or in the office can cause fatigue, eyestrain, headaches, and more.  I distinctly remember having a “lighting” conversation with my employer years ago when I worked in an…
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    The Life of a 20-Something With Lupus

  • Times flies when you're having fun

    8 Jun 2015 | 6:46 pm
    The last couple of months have been the best possible way. Blogging is actually pretty important to me. I definitely like the ability to look back at the good times..and reflect on the perhaps not so good. But, I'm glad it crossed my mind to write a life update, so here goes.In May, my mom, dad, sister and I went to Italy! It was an absolutely amazing experience. We got to visit a number of amazing places, including Tuscany, Rome, Florence...It was all simply breathtaking. I feel infinitely blessed to have been able to go on such a trip. The fact that a good friend of my dad owns…
  • My friend's wedding

    26 Apr 2015 | 3:25 pm
    I'm here lying in my boyfriend's bedroom at his parents' house. Yes, I met his parents for the first time yesterday. They're absolutely delightful and kind. Their two dogs, Primo and Bella, are delightful too. Bella is sweet but Primo is still unsure and curious about me. I'll win him over soon enough I'm sure.Anyhow, the point is this post was to share pics of my friend Joy's wedding last weekend. It was a wonder and beautiful wedding with a beautiful bride, groom, and wedding party. And, my dad performed the wedding ceremony! That said, it was a large wedding and therefore I didn't have the…
  • All Your Curves and All Your Edges

    5 Apr 2015 | 6:00 pm
    I've blogged through tears way too often.I've felt sad and without hope way too often.The strange thing is..even though those past situations and occurrences hurt so bad, I think they were necessary. Not only have they taught me that I, at the end of the day, have to honour me and put ME first, but they also taught me that I deserve more; I deserve better.You know what I thought? I thought that because I have an illness/condition, that I have to..."put up" with things, like perhaps not being treated as well as I should be treated, because I did not have the right to be "picky" about men. I…
  • A few small updates

    4 Apr 2015 | 8:48 pm
    It has certainly been a while since I have posted an here goes!The last couple of months have definitely been months of change-months of growth, so some time of sharing is definitely overdue.My scleritis went away with continued treatment, but shortly after stopping the came back! I'm currently seeing the eye doctors at the hospital who are keeping a close eye (no pun intended) on my scleritis and are making sure that they taper me off of the prednisone drops more slowly.I'm sad to announce that I'm still searching for a job. I've been applying regularly, but it…
  • Focus groups!

    20 Feb 2015 | 1:26 pm
    On a couple of occasions, I've received phone calls from various market research firms asking me if I wanted to participate in a focus group. Ive been to 3 in total. The topics varied-one was about a new food product that was soon to be released, another about ads for a new travel agent. Various things. Each of the groups I have participated in had about 10-12 people in them. There was also a moderator. The moderator would ask various questions while the rest of us spoke of our experiences, opinions, and thoughts. At the end of there sessions, which usually lasted between one to one and a…
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