Lupus

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  • The Ultimate Gift Guide for Someone With Chronic Illness

    Lupus News
    18 Dec 2014 | 6:42 am
    Is holiday shopping leaving you frustrated? We've all been there - perplexed, scratching our head, thinking, "What do I buy the person who seems to have everything?" Holiday gift giving gets even trickier when it comes to buying the perfect gift for someone who has something they don't want - a chronic illness. So instead of picking up another box of chocolates or mug and cocoa set from your local drugstore, consider the following gifts.
  • Brightside Academy Partners with Soundview and Mott Haven for Family Harvest Festival

    Lupus News
    16 Dec 2014 | 3:47 pm
    Brightside Academy in conjunction with Soundview and Mott its 331 East 150th Street location, and November 22 at the Soundview Houses in the Bronx. BRONX, NY, USA, December 16, 2014 /EINPresswire.com/ -- Brightside Academy in conjunction with Soundview …
  • S.L.E. Lupus Foundation Helps Secure 2015 Congressional Budget Allocations for Lupus Research and Professional Education

    Latest News from the S.L.E. Lupus Foundation
    kristen
    17 Dec 2014 | 7:17 am
    Presidential Signed, Sealed and to be Enacted Together we did it!  As a member of the Lupus Research Institute (LRI) Coalition, our supporters and lupus patients nationwide helped secure significant allocations for lupus research and professional education in the Fiscal 2015 budget passed by Congress and signed into law last night by President Obama.  Thanks to everyone’s in-person visits, emails, phone calls and letters to legislators emphasizing the challenges faced by people with lupus, the new budget affords the means to improve diagnosis and treatment of lupus with: read…
  • NMWG Lupus Foundation Auction Ends Today, Midnight - Tucson Weekly

    lupus - Google News
    13 Dec 2014 | 1:47 pm
    Tucson WeeklyNMWG Lupus Foundation Auction Ends Today, MidnightTucson WeeklyAn online auction to benefit the Lupus Foundation of Southern Arizona in memory of Nowhere Man and a Whiskey Girl, Derrick and Amy Ross, ends tonight at midnight. The auction and a two-venue evening of NMWG music last weekend was organized by ...
  • For Life

    WordPress Tag: Lupus
    Beleaguered Servant
    3 Dec 2014 | 5:35 am
    The best advice I’ve never given? I think that would be To learn to play an instrument - Piano
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    Lupus News

  • The Ultimate Gift Guide for Someone With Chronic Illness

    18 Dec 2014 | 6:42 am
    Is holiday shopping leaving you frustrated? We've all been there - perplexed, scratching our head, thinking, "What do I buy the person who seems to have everything?" Holiday gift giving gets even trickier when it comes to buying the perfect gift for someone who has something they don't want - a chronic illness. So instead of picking up another box of chocolates or mug and cocoa set from your local drugstore, consider the following gifts.
  • Market Report, "Lupus Erythematosus Global Clinical Trials Review, H2, 2014", published

    12 Dec 2014 | 5:34 am
    This report provides elemental information and data relating to the clinical trials on Lupus Erythematosus. It includes an overview of the trial numbers and their recruitment status as per the site of trial conduction across the globe.
  • How To Manage Your Lupus Symptoms

    8 Dec 2014 | 11:09 am
    After being able to recognize the symptoms , perhaps the second most difficult aspect of lupus is managing your symptoms. From extreme fatigue to joint pain to hair loss, here are five simple ways you can help control all those symptoms and more.
  • Dynavax turkey of a drug trial sends stock down

    1 Dec 2014 | 2:45 pm
    Dynavax Technologies Corp. stock dipped more than 5 percent Monday, after the company said partner GlaxoSmithKline dumped a failed lupus drug. Berkeley-based Dynavax , led by CEO Eddie Gray , announced the news early Friday, while many investors were working off their Thanksgiving meals, and its stock dropped 1.6 percent from the pre-Thanksgiving close.
  • "Lupus Erythematosus Global Clinical Trials Review, H2, 2014" is now...

    26 Nov 2014 | 5:19 am
    This report provides elemental information and data relating to the clinical trials on Lupus Erythematosus. It includes an overview of the trial numbers and their recruitment status as per the site of trial conduction across the globe.
 
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    Latest News from the S.L.E. Lupus Foundation

  • S.L.E. Lupus Foundation Helps Secure 2015 Congressional Budget Allocations for Lupus Research and Professional Education

    kristen
    17 Dec 2014 | 7:17 am
    Presidential Signed, Sealed and to be Enacted Together we did it!  As a member of the Lupus Research Institute (LRI) Coalition, our supporters and lupus patients nationwide helped secure significant allocations for lupus research and professional education in the Fiscal 2015 budget passed by Congress and signed into law last night by President Obama.  Thanks to everyone’s in-person visits, emails, phone calls and letters to legislators emphasizing the challenges faced by people with lupus, the new budget affords the means to improve diagnosis and treatment of lupus with: read…
  • LRI Petitions FDA to Include Lupus among Patient Hearings

    kristen
    16 Dec 2014 | 11:55 am
    The Food and Drug Administration (FDA) heard from us about lupus! Through the Patient-Focused Drug Development Initiative, the FDA is getting the patient perspective on selected diseases and their treatments. They are holding public meetings on different medical conditions to better understand what it is actually like to live with the condition and the real world impact of medication – how well current medications work, the side effects, how the disease and treatment affects daily life. read more
  • As Member of LRI Coalition, S.L.E. Lupus Foundation Helps Secure Gains for Lupus in Proposed Congressional Budget

    kristen
    10 Dec 2014 | 1:33 pm
    NEW YORK, NY – December 10.  Thanks to year-long advocacy by the Lupus Research Institute (LRI) Coalition and lupus patients nationwide, the year-end Fiscal 2015 “Consolidated and Further Continuing Appropriations Act” released last night in Congress contains several programs to advance lupus research and professional education.  The bill is set to be voted on by the House of Representatives Thursday, December 11 and then move to the Senate. read more
  • S.L.E. Lupus Foundation Celebrates Innovation at Gala 2014

    kristen
    25 Nov 2014 | 8:22 am
    Raises $2 Million for Lupus Research Honors Visionary Healthcare Advocate, Arts Champion and Philanthropist Iris Cantor Legendary Tony Bennett Performs read more
  • LRI at Work at ACR

    kristen
    20 Nov 2014 | 7:29 am
                                             read more
 
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    lupus - Google News

  • NMWG Lupus Foundation Auction Ends Today, Midnight - Tucson Weekly

    13 Dec 2014 | 1:47 pm
    Tucson WeeklyNMWG Lupus Foundation Auction Ends Today, MidnightTucson WeeklyAn online auction to benefit the Lupus Foundation of Southern Arizona in memory of Nowhere Man and a Whiskey Girl, Derrick and Amy Ross, ends tonight at midnight. The auction and a two-venue evening of NMWG music last weekend was organized by ...
  • Appropriations bill includes $2 million for lupus research - Healio

    11 Dec 2014 | 11:04 am
    Appropriations bill includes $2 million for lupus researchHealio“The Lupus Initiative has made significant headway in 1 year, but there is more work ahead to ensure that every health care professional considers lupus when faced with a patient describing vague symptoms like severe fatigue and joint pain,” LRI CEO, ...
  • Kadmon Corporation's KD025 Named a Top Priority Lupus Treatment Candidate ... - Marketwired (press release)

    11 Dec 2014 | 5:04 am
    Kadmon Corporation's KD025 Named a Top Priority Lupus Treatment Candidate Marketwired (press release)KD025's selection as a top priority lupus drug in development was presented by Amrie Grammer, Ph.D., and Peter Lipsky, M.D., of biomedical consulting firm AMPEL BioSolutions, at the annual American College of Rheumatology meeting in November.and more »
  • Oklahoma medical researcher receives national Lupus Foundation award - NewsOK.com

    1 Dec 2014 | 6:45 pm
    Oklahoma medical researcher receives national Lupus Foundation awardNewsOK.comIn November, Chakravarty received the Mary Betty Stevens Young Investigator Prize, awarded annually by the Lupus Foundation of America to a researcher in the early stages of his or her career who has produced extraordinary achievements in lupus ...
  • Heart Rate Variability New Window in Lupus Disease Activity - Medscape

    1 Dec 2014 | 11:00 am
    Heart Rate Variability New Window in Lupus Disease ActivityMedscapeHeart rate variability appears to reflect levels of disease activity in patients with systemic lupus erythematosus, according to research presented at the American College of Rheumatology 2014 Annual Meeting in Boston. "Although this is a very
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    WordPress Tag: Lupus

  • For Life

    Beleaguered Servant
    3 Dec 2014 | 5:35 am
    The best advice I’ve never given? I think that would be To learn to play an instrument - Piano
  • Under Pressure part 1

    thewolfsleepsinme
    2 Dec 2014 | 7:27 pm
    I’ve had an interesting past 6 or so months. Interesting, but also difficult, beautiful, exciting, anxious, painful, heart breaking, soul searching and motivating. I’m still reeling pretty hard from it all, trying not to search for reason. Because there isn’t any. Sometimes shit just hits the fan and all you can do is try to land gracefully. I got dumped in June, very unexpectedly. It sucked for a lot of reasons (timing, for instance), but it was the right thing. I was in actual shock when it first happened. Like an out of body experience I watched it unfold, and kept myself together…
  • Pins and Cushions

    Whimsical Thoughts
    2 Dec 2014 | 5:04 pm
    I’ve never felt the need to be a human pincushion.  There are times that I’ve imagined I was close to being one, typically on those days when the hospital tests seem unending.  But I’ve never actually, willing and knowingly,  allowed someone to stick a whole whack of needles in me as if I were a pincushion. Growing up, my mother had a pin cushion that looked a little like a tomato.  And each time i hear someone talk about seeing an acupuncturist  that’s the image that comes  to my mind. I realize it doesn’t work that way and I’ve heard from people…
  • the adventures of a.i. gyrl

    a.i.gyrl
    2 Dec 2014 | 4:09 pm
    we gonna try. to chronicle the madness. =) i mean, I. I am going to try. let’s just see, what happens.
  • Did You Miss Me?

    Monique
    2 Dec 2014 | 1:20 pm
    Cause it’s been a minute since I’ve done anything! *bad blogger* I do have a slight reason though…you remember in my last post a couple of weeks ago when I said that I was trying to come down with a cold? I was soooooo wrong! It turns out that I have a massive ear infection that was being masked by some of my typical Lupus symptoms. And I don’t mean kind of masked, I mean I attributed the signs to Lupus for about 5 months. It was just happenstance that at my checkup I was like, “Hey…can you check my ear? It’s been hurting the past couple weeks and I…
 
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    Despite Lupus

  • "How many pills can a Pillfold hold?", asked the customer to the Pillbag Lady

    18 Dec 2014 | 8:00 pm
    This is a question I hear quite often when it comes to selling Pillbags. Customers want to know exactly how big the zippered pouches of the Pillfold are, and I understand. If your pills don't fit, the Pillfold won't work. At Pillbag headquarters, we're all about adherence to your daily medication routine. We know you can't just leave one or two pills out in the cold!But because all pills range in size and shape, it is difficult to definitively answer the question, "How many pills does the Pillfold hold?"  I know you'd like to size up our pillbags, so I'll do my best…
  • 'Tis the season for giving...so free copies of Despite Lupus it is!

    17 Dec 2014 | 6:30 pm
    A few weeks ago, the print shop I use for my books made a small mistake. I ordered a new run of Despite Lupus books so I would have plenty of copies on hand for the holiday season. The books arrive in batches, and the first small batch that arrived looked like this: See that yellow block on the front? Ugh!I called the printer once I opened the box and saw the defective covers, and they fixed the problem immediately. Within hours, a new batch of books was on its way to me, and I haven’t had any trouble since. But that still leaves me with some yellowed books that are in need…
  • The rules of the lupus game - Coulda done it later, Woulda done it better, Shoulda rested instead!

    10 Dec 2014 | 8:36 am
    This time of year always puts my daily afternoon nap to the test. With dozens of things to get done, and just four (make that now three) short weeks to do them in, I always think about how productive I could be if I didn't nap.Just think of those two precious hours, when I could be crossing dozens of things off my list! Instead, I'm holed up in bed, sawing logs with Darwin the Pug. Of course, I am getting SOMETHING done (and that is a big something), but it's not always what I want to be getting done.The good news is that these days, I never consider skipping my daily nap. Ever. When I wake…
  • Despite Lupus nominated for Healthline's 2014 Best Health Blog. Thank you!

    3 Dec 2014 | 2:13 pm
    Wow! I always feel so lucky to have such loyal readers who nominate Despite Lupus for Healthline's annual Best Health Blog. My sincere thanks to those who think the Despite Lupus blog is a keeper again this year. I always say - If you keep reading, I'll keep writing!My apologies for the obnoxious badge below, but if you don't mind taking a moment to cast your vote, I'd love to see a lupus blog rise to the top of the heap. The more people who know we're out here, the better!Click the badge below to vote. Then, type in "Despite Lupus" in the contestant box, and click "VOTE". (You…
  • Pre-Gobble and Post-Gobble Pillbag Sales. Enjoy!

    25 Nov 2014 | 2:03 pm
    Happy Thanksgiving! "Turkey" by Bernadette GormanLet's kick off the Holiday season with some Pillbag savings!!SPECIAL Pre-Thanksgiving savings: On Wednesday, November 26th ONLY,  take 20% off any Pillbag purchase. Just type in "GOBBLE" in the discount code during checkout. Post-Thanksgiving sale: Starting Friday, November 28th, take 15% off any Pillbag purchase. Use "GOBBLEWEEKEND" in the discount code. Enjoy the savings and have a great holiday! 
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    The Life of a 20-Something With Lupus

  • Crazy Few Months

    18 Dec 2014 | 4:50 pm
    The tears haven't stopped, but they flow less frequently. The hurting hasn't stopped, but I'm managing to find joy in things all over again. I love to write-I love to blog. And when something happens in my life that is so...strong that it takes me to a point where I don't feel like doing things I love...I dunno how to explain it. It's just amazing and terrifying how you're so sad, so hurt, that you don't even want to ATTEMPT to find joy in things. I had gotten to a point where I felt so overwhelmed, so hopeless. And the thing is...whenever something negative happens in my life, I…
  • I Get By With A Litle Help from my Friends

    12 Oct 2014 | 12:50 pm
    It's a good thing to talk. Talk about stuff.I go back and forth when it comes to the above statement. Sometimes...I don't want to talk about stuff, because I know, mid story, it'll make my cry. At the same time, if I don't, the tears that need to be "cried" simply remain inside. That's not good either.This weekend was one of catching up with friends-good ones.On Friday evening, it was date night with my close friend and confidant, Mikey. Mikey and I have known each other and immediately connected as friends soon after we met each other back at our first job in a ritzy Italian grocery store.
  • A-ha moment?

    6 Oct 2014 | 4:31 pm
    I may have had one of those the other day.I've said it before, and I'll say it again. I wear my emotions on my face-there's no hiding. Sometimes, when emotions are low, I can fake it. I can smile, I can laugh, and I can make believe. Other times, when I'm REALLY upset about something, my facial expressions as well as my overall attitude changes.I was at work the other day and was so upset. I'm so upset that I was lied to, hurt...deliberately, and that I'm so upset that I'm so upset.Nobody is perfect. But, I do feel that some of these relationships that I shed so many tears about, and these…
  • Hurting

    23 Sep 2014 | 1:45 pm
    I only just logged onto my blog today and saw all of the wonderful comments that were left on my last post. They honestly made me cry, and I really appreciate the fact that there are people out there, strangers in fact, who care so much that they would leave such kind comments. I really appreciate each of them. I also apologize for the recent collection of "not-so-uplifting" posts.I suffered another setback. The gentleman that I was dating, as of last night/this morning, is no longer mine.We had a beautiful dinner that he prepared while I performed sous chef duties. We watched a movie over…
  • Maybe it just wasn't meant to be

    20 Sep 2014 | 7:41 pm
    I wish the "me" of 10 years ago could have a conversation with the "me" of today.Let me tell you about the "me" of 10 years ago.She was a strong woman who had been through a lot. High school was blur, as she spent a good deal of it in and out of the hospital. I don't know how she did it, but she did.  She was fearless. She did what she wanted, and she didn't put up with your crap, her crap, his crap, or anyone's crap. She would cut you off at the drop of a dime. She would think of you after cutting you off...maybe once or twice. But that was it. She handled her struggles with grace…
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