Lupus

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  • Too much of a protein called c-FLIPR can trigger autoimmune diseases

    Lupus News From Medical News Today
    15 Apr 2014 | 12:00 am
    Apoptosis is used by cells that are changed by disease or are simply not needed any longer to eliminate themselves before they become a hazard to the body - on a cellular level, death is part of life.
  • Nick Cannon Leads Thousands of DC Residents in the Walk to End Lupus NowA

    Lupus News
    19 Apr 2014 | 12:41 pm
    Grand marshaled by multi-talented entertainer and television personality and Master of Ceremonies Eileen Whelan , Cannon cut the opening ceremony ribbon.
  • Nick Cannon Leads Thousands of DC Residents in the Walk to End Lupus Now®

    Lupus News
    19 Apr 2014 | 11:50 am
    … end lupus. Organized by the Lupus Foundation of America, Walk to End Lupus … this brutal disease." About Lupus Lupus is an unpredictable and misunderstood … devastation.  About the Lupus Foundation of America The Lupus Foundation of America … by lupus. Learn more about the Lupus Foundation of America at lupus.org …
  • New study with lupus patients supports connection between estrogen and autoimmune disease

    Latest News from the S.L.E. Lupus Foundation
    admin
    18 Apr 2014 | 7:31 am
    A new study at Ohio State University of men and women with and without lupus strengthens the theory that estrogen may trigger the release of proteins called toll-like receptors that are involved in the autoimmune response. Published in X, their findings provide further evidence for the potential effectiveness of therapies that regulate toll-like receptors. Full story read more
  • Heartbreaking News // YouTube Natural Hair Guru Dies

    lupus « WordPress.com Tag Feed
    Tori
    10 Apr 2014 | 5:51 pm
    Our condolences and prayers to the family and friends of the famous natural hair inspiration Domineq
 
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    Lupus News

  • Nick Cannon Leads Thousands of DC Residents in the Walk to End Lupus NowA

    19 Apr 2014 | 12:41 pm
    Grand marshaled by multi-talented entertainer and television personality and Master of Ceremonies Eileen Whelan , Cannon cut the opening ceremony ribbon.
  • The New Normal: Adjusting to Life With Lupus

    18 Apr 2014 | 8:59 am
    Janice Wolfe-Easley's life before lupus was a swirl of activities - exercise, sailing, volleyball on the beach with her husband and 60-mile breast cancer walks.
  • Club Notes: April 20.

    17 Apr 2014 | 9:50 pm
    The Democratic Women of Wake County meeting will start with a buffet at 11:30 a.m. and the program at noon Tuesday, April 22, at the N.C. State University Club, 4200 Hillsborough St., Raleigh.
  • Immune System Genes Activated by Estrogen May Hold Clues to Lupus Origin

    16 Apr 2014 | 6:34 am
    Columbus, OH - It's a phenomenon scientists observe whether they look at mortality rates in the United States, where medical care is relatively good, or third world nations, where medical care is often scarce: women are less likely to die from infectious diseases than men.
  • Walk to End Lupus Now

    14 Apr 2014 | 8:12 pm
    This weekend, the DC's Chapter is hosting it's eighth annual Walk to End Lupus Now.
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    Lupus News

  • Nick Cannon Leads Thousands of DC Residents in the Walk to End Lupus Now®

    19 Apr 2014 | 11:50 am
    … end lupus. Organized by the Lupus Foundation of America, Walk to End Lupus … this brutal disease." About Lupus Lupus is an unpredictable and misunderstood … devastation.  About the Lupus Foundation of America The Lupus Foundation of America … by lupus. Learn more about the Lupus Foundation of America at lupus.org …
  • Digging Ditches With Lupus

    19 Apr 2014 | 8:00 am
    … of myself. Doing anything with Lupus is a huge accomplishment. Who … just have "normal" Lupus fatigue to deal with. Yesterday … . For some people with advanced Lupus or other chronic illnesses, many … to the Sun with Lupus Writing With Lupus Finding New Hobbies When …
  • Immune system genes activated by estrogen may hold clues to Lupus origin

    18 Apr 2014 | 9:22 am
    … implicated in the development of lupus. The addition of estrogen boosted … that TLR8 changes the way lupus patients respond to inflammation, therapies … and Translational Science. Systemic lupus erythematosus (SLE or lupus) is a chronic … to the Lupus Foundation of America, for most people with lupus, proper …
  • PharmaBoardroom Releases New Portugal Pharmaceuticals Report

    18 Apr 2014 | 4:51 am
    LONDON, UNITED KINGDOM, April 18, 2014 /EINPresswire.com/ -- When PharmaBoardroom first came to Portugal in 2007, price cuts, payment delays and changes to the health system with each successive government were only the first indications for the …
  • Market Report, "Systemic Lupus Erythematosus - Pipeline Review, H1 2014", Published

    17 Apr 2014 | 11:15 am
    … the therapeutic development for Systemic Lupus Erythematosus, complete with comparative analysis … the therapeutic development for Systemic Lupus Erythematosus and special features on … reports: - Chronic Cutaneous Lupus Erythematosus (CCLE) / Discoid Lupus Erythematosus (DLE) - …
 
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    Latest News from the S.L.E. Lupus Foundation

  • New study with lupus patients supports connection between estrogen and autoimmune disease

    admin
    18 Apr 2014 | 7:31 am
    A new study at Ohio State University of men and women with and without lupus strengthens the theory that estrogen may trigger the release of proteins called toll-like receptors that are involved in the autoimmune response. Published in X, their findings provide further evidence for the potential effectiveness of therapies that regulate toll-like receptors. Full story read more
  • Lupus Research Institute Awards $3 Million to Leading Innovators in Lupus Research

    ellen
    11 Apr 2014 | 2:23 pm
    2014 Novel Research Grant Recipients Advance Cutting-edge Paths to Transform Lupus Treatments and Advance Patient Care read more
  • Canadian Analysis Follows Children with Lupus Long-term

    kristen
    10 Apr 2014 | 8:42 am
    Pediatric rheumatologist Deborah Levy, MD of Toronto's Hospital for Sick Children presented findings from an analysis of the health records of 700 children at the American College of Rheumatology pediatric rheumatology symposium in Orlando, FL. Surprising results included lower than anticipated rates at end-stage renal disease and heart attack. The rates of miscarriage and still-births were higher than expected in healthy women. read more
  • Meet the S.L.E. Lupus Foundation’s 2014 Bag Ladies Luncheon Honorees!

    admin
    4 Apr 2014 | 2:00 pm
    These three exceptional women will be recognized as Women of Achievement at the upcoming 2014 Bag Ladies Luncheon April 28.  From left to right: Desiree Gruber, Lisa R. Sammaritano, MD and Michelle Gadsden-Williams read more
  • Clinical Trials Need Patients

    admin
    2 Apr 2014 | 1:35 pm
    This study published in a highly respected medical journal highlights a major obstacle to bringing patients new treatments – not enough patients participating in clinical trials to provide the U.S. Food and Drug Administration with the data they require to approve new drugs. In a presentation at a recent Lupus Research Institute patient research conference, Dr. read more
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    lupus « WordPress.com Tag Feed

  • Heartbreaking News // YouTube Natural Hair Guru Dies

    Tori
    10 Apr 2014 | 5:51 pm
    Our condolences and prayers to the family and friends of the famous natural hair inspiration Domineq
  • Federal Court Finds Hepatits-B Vaccine Caused Fatal Lupus And More

    Buffalohair
    10 Apr 2014 | 4:25 pm
  • My Holding Cell

    Erika Kanter
    10 Apr 2014 | 10:22 am
      I’m sitting on the floor pinning some material for some sewing I’ve been contracted to do, and I have Netflix playing. As with the people who I know with chronic pain, myself included, TV shows are often playing on the television.. today, no different. I’ve been slowly watching all of the episodes of Weeds (only a season and half left to go). The younger son landed himself in prison for stealing some information from the police. His mom, Nancy, goes to talk to him and find out (and I quote) “What the hell”. She proceeds to say how she went to jail for his…
  • Outfit of the Day | Denim Vest and Jersey Tunic

    ceethrufashion
    10 Apr 2014 | 10:15 am
    Heyyy! So excited to be starting to feel like myself again! I have been going through a battle with my Lupus condition which had caused me to have Kidney failure. The recovery has been a lot to deal with for someone who has always been pretty healthy and this condition definitely threw a wrench in the way that I style and dress myself. My feet and legs got super swollen from all the medication, so no cutesy shoes (I was going through MAJOR fashion withdrawal lol). Even though spring is in the air, I am definitely not rushing to take off my clothes SO check out my transitional look of the day!
  • A Lifetime of Gratitude to Dr. D

    Nicole Davis
    10 Apr 2014 | 9:09 am
      I realize I threw many of you into the middle of this story. I’m sorry. I realize by doing so, I still have a lot of things that I haven’t explained that I need to, and I will in time I promise. The man pictured here, is Dr. D. He was my childhood Primary Care Physician from the time I was 6 weeks old. I was an oddball patient even as a child. Maybe that should of been our first clue.  He was my doctor for the better part of the 30 years I’ve been alive. True there was a lapse in my care after I moved from my hometown when I was 19, until I returned to his care when…
 
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    Despite Lupus

  • Barbeaux Formulaire - my new favorite line of skin care!

    18 Apr 2014 | 5:00 am
    One of my girlfriends recently introduced me to this line of bath and beauty products, and I am hooked. It's called Barbeaux Formulaire, based out of Carmel, Indiana, and their natural skin care products are heavenly!The Barbeaux Formulaire line was originally founded on their bath powder, which is 97% organic and is infused with jojoba oil, african shea butter, pink Himalayan sea salt, and cornstarch. It can be used for aiding eczema, diaper rash and other skin conditions, in addition to just being a fabulous soak or shower exfoliator for a tired, aching body! It's the…
  • Despite Lupus' 2014 Spring Speaking Tour - LFA D.C Maryland Virginia

    16 Apr 2014 | 5:00 am
    The next stop on my Spring Speaking Tour - Washington D.C.! I'm pleased to be working with the LFA DMV once again, this time speaking at one of the breakout sessions at the 19th Annual D.C. Summit. Details of the workshop I'll be doing are below, along with details for the entire event. The Summit is sure to be one of the most educational and worthwhile events this year - I know I'm looking forward to attending the other sessions while I'm there! And be sure to look for me at my Pillbag and Book table in between sessions. You won't be able to miss the display of brightly colored…
  • Debunking the "I'm so busy" myth. It's about time!

    14 Apr 2014 | 5:00 am
    I love the article from Tyler Ward about being "busy", titled "Busy isn't respectable anymore." Obviously, for someone who is considerably less busy than she used to be, due to health constraints, but also due to choice, it's great to hear that being busy isn't all its cracked up to be. And per his article, there actually might be disadvantages to proclaiming to be so "busy" in the first place.You can read the entire article here, but I particularly like the snippet below about the "busy" experiment. I've tried it (striking the word "busy" from my vocabulary), and it really does…
  • Commit two "shoulds" to the circular file...and watch your lupus anxiety melt away!

    11 Apr 2014 | 5:00 am
    I have a confession to make. Those tasks I blogged about a few weeks ago, the ones that I was going to tackle with fervor once my prednisone kicked in? Well, they have yet to be tackled. That's right. The sewing projects that I was going to get right on are still untouched, and the pillbags desperately awaiting QC are still, well, waiting to be QC'ed. And guess what? Life has gone on! Believe it or not, the world has not stopped spinning, but most importantly, my world has not collapsed, despite the fact that my "must do's" are still "to-do's." No one in the Gorman household…
  • Despite Lupus' 2014 Spring Speaking Tour - Lupus Foundation of New England

    9 Apr 2014 | 5:00 am
    April has arrived, and I'm looking forward to kicking off my Spring Speaking Tour! I'm going to be busy, but my travel plans have been carefully (read: painstakingly) arranged to make sure I don't overdo. I wouldn't have a very compelling story to tell at each event if I made myself sick trying to get there!My first stop is Cambridge, Massachusetts, where I'm thrilled to be working with the Lupus Foundation of New England for the first time. I'll be participating in their annual Taking Charge & Living Well with Lupus Symposium and Annual Meeting. Looking forward to it!Details are…
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    My Life Works Today!

  • As my Uncle Georg would say, …

    maria
    10 Apr 2014 | 6:36 pm
    When he found himself in a conversation lull, he would simply throw out a “So-o-o-o-o...” (with a melodic lilt) to get things going again. I have been a little busy in the last month and am about to break my blogging rule of not disclosing my health out to the world. The reason I feel compelled to share it here is to work through some new things I’ve learned about myself when it comes to my health. If I aim to explore creating better health, then writing about the steps I take and trials I experience belong here. I suspect if you are reading this, then you already know that…
  • Celebrate International Women’s Day today

    maria
    8 Mar 2014 | 8:56 am
      Today is about honoring the amazing things women bring to the table of change.  
  • Blog Carnival at Partnership for Palliative Care: Why is sharing our health experiences necessary?

    maria
    3 Mar 2014 | 9:08 am
    In the late 90’s, I began my graduate program at the same time I received my diagnosis of lupus nephritis. As both of these events collided, I discovered how my life and my health experience were tightly woven together. This simple understanding about the relationship between body and mind can quickly unravel when faced with fear, barriers and shame. When I received my diagnosis, I learned how I cope with life and the particular strategies upon which I rely. My doctor suggested that I join a support group and I immediately responded with a “No thanks.” This surprise reaction to a…
  • There once was a woman who made a collage…

    maria
    9 Feb 2014 | 2:47 pm
    I was SO eager to get my old, beat up x-country skis on this year and tour the neighborhood this snowy weekend, but I chose to wait Thursday AND Friday for a phone call with my latest test results, Unfortunately, I lost my window of opportunity and the weather has changed. No, I didn’t get the call. Yet again, I chose to let something ‘outside’ myself dictate what I wanted ‘inside.’  In my posts last month, I explored what I wanted this 2014 to be about for me. I spent the majority of 2013 scrambling to create a year to remember as it was the year I turned 50. The pressure was on…
  • 2014 Spark

    maria
    19 Jan 2014 | 4:27 pm
    As I mentioned in my last post, here is what came out of my evening insight gathering:   I was unable to capture the 3D effect of the branches, gal w/deer and a few more. My hope in doing that was to try to make this project more than just color or pattern…I wanted movement and dimension. If I had all day to do it, I know I would’ve moved into textures, too. I didn’t get home until 11:30 pm as it was! The word that came to mind when asked what I was ‘seeing’ for 2014 was  tree. The images that I kept navigating towards were natural and plant/tree related. The last phrase I…
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    The Life of a 20-Something With Lupus

  • OMG-has it been a month already?!

    16 Apr 2014 | 7:17 pm
    I promise, I'm still here!I'm battling a cold/sore throat. I've been battling it since I went back to work a few weeks back (coincidence?).It's also tax time...so tax time makes for a busy Miz Flow.I'm also still quite tired...hemoglobin is just lingering in the 92 area (or 9.2 for my american friends).Right now, I'm in bed drinking hot water with manuka honey and a bit of lemon. Yes, lemon. Is it the best for my reflux? Definitely not. But my throat actually gets so dry that it HURTS at night, so I thought I'd try drinking some of this brew before bed. Hopefully it doesn't turn into horrible…
  • It's So Hard To Say Goodbye To Yesterday

    23 Mar 2014 | 7:45 am
    My iPhone started acting crazy yesterday.I would be looking at an app or surfing around, when all of a sudden, several vertical lines would appear on the screen, then it would just shut off. After shutting down to black, the apple logo would appear, indicating that the phone had shut off and was restarting.This is annoying, I thought. I take very good care of my electronics. I do plan on getting a new phone in the fall, though. But that's not because I had my current phone-I certainly do not. It's moreso because this phone was my first iPhone (iPhone 5) and I underestimated my shutterbug-ism…
  • Mmm..Pamela's butter shortbread..

    22 Mar 2014 | 5:00 pm
    I love shortbread cookies.Just thought I'd get that outta the way. Now, as I blogged about a few times, I've gone gluten free before. I did it for a whole year. It was difficult because I love cookies, cakes, pasta, bread...basically I love gluten-y things. When it comes to pasta, rice pasta was a great substitute as I found little difference between rice pasta and regular semolina pasta, especially after sauce and everything has been added in. But, bread was an absolute nightmare. I tried a couple breads that were just dreadful. One loaf of bread that I bought was so crumbly and weird…
  • Skin peeling after swelling?

    10 Mar 2014 | 10:00 am
    My leg swelling has gone down considerably since my TKA.Now, anyone who knows me knows that I'm very serious about my skin moisurization. I ensure that my skin is always well moisturized, and my skin is always quite soft as I exfoliate with every single shower. That said, I've had some minor peeling of the skin on my right foot (the same foot as my knee replacement). My other foot does not have this peeling. I can only assume that this peeling is due to the stretching of my skin after the knee replacement, or perhaps it's due to the fact that I haven't exfoliated that foot at thoroughly…
  • Considering the future

    9 Mar 2014 | 7:38 pm
    Spending a lot of time by myself these last few weeks has really got me thinking. I've been thinking about the future a lot. I'm really looking forward to hopefully (my goal is on or before my birthday in May) securing a proper HR position. I've also been thinking about cleaning up my finances and getting my own place-perhaps a condo or a condo town home (as long as shovelling is included!)I'm going to be honest. I thought that at this point in my life I'd be a lot...farther than I am right now. I thought I'd be married by now, have at least 1 kid, etc. I know that not everything happens the…
 
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