Lupus

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  • Potential new therapy approaches to reverse kidney damage identified

    Lupus News From Medical News Today
    4 Aug 2015 | 3:00 am
    Study shows that cell plasticity program resulting from kidney damage can be targeted to reverse disease and fibrosisAdults who are worried or terrified sometimes curl up into a fetal position.
  • Across Our Communities

    Lupus News
    3 Aug 2015 | 9:38 pm
    The Lupus Foundation of America, Greater Ohio Chapter, will host its monthly lupus support group from 7 to 8:30 p.m. Aug. 17 at the Damascus Friends Church, 28899 Walnut St. The support group is an open, small-group environment that encourages discussion among lupus patients and their families. It is a place where persons with lupus can share their experiences and ask questions.
  • Research and Markets: Cutaneous Lupus Erythematosus Pipeline Insights Study 2015

    Lupus News
    4 Aug 2015 | 12:45 pm
    … ;Cutaneous Lupus Erythematosus-Pipeline Insights" report to their offering. Cutaneous Lupus Erythematosus … . Cutaneous Lupus Erythematosus Pipeline Insights Report covers the Cutaneous Lupus Erythematosus pipeline … Cutaneous Lupus Erythematosus. Scope - The report provides a Cutaneous Lupus Erythematosus …
  • Two Phase 3 Trials Testing Investigational Anifrolumab as Potential New Treatment for Lupus

    Latest News from the S.L.E. Lupus Foundation
    kristen
    4 Aug 2015 | 10:53 am
    Two Phase 3 trials are now enrolling patients with moderate to severe lupus to evaluate the safety and effectiveness of a potential treatment, anifrolumab.  Both are being conducted at multiple sites in the U.S. and throughout the world. Patients receive either placebo or anifrolumab intravenously plus standard of care treatment. read more
  • Research and Markets: Cutaneous Lupus Erythematosus Pipeline Insights Study 2015 - Business Wire (press release)

    lupus - Google News
    4 Aug 2015 | 12:42 pm
    Research and Markets: Cutaneous Lupus Erythematosus Pipeline Insights Study 2015Business Wire (press release)Cutaneous Lupus Erythematosus Pipeline Insights provides the in-depth analysis of the pipeline assets across the Cutaneous Lupus Erythematosus. The main objective of this report to track competitor pipeline molecules, related research activities, ...and more »
 
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    Lupus News

  • Across Our Communities

    3 Aug 2015 | 9:38 pm
    The Lupus Foundation of America, Greater Ohio Chapter, will host its monthly lupus support group from 7 to 8:30 p.m. Aug. 17 at the Damascus Friends Church, 28899 Walnut St. The support group is an open, small-group environment that encourages discussion among lupus patients and their families. It is a place where persons with lupus can share their experiences and ask questions.
  • 5 Misconceptions About Your Loved One Fighting Lupus

    1 Aug 2015 | 8:07 am
    If you love someone fighting lupus, you very likely know that this disease is an autoimmune disorder. This means that the immune system is out of sync and attacks healthy body tissue.
  • UCB's lupus trial fails in final clinical tests

    28 Jul 2015 | 12:58 am
    Belgian pharmaceutical group UCB said that its phase III trial for lupus treatment epratuzumab failed to produce statistically significant results in both dosages tested. While UBC did not specify what it would do with the epratuzumab programme, it said that it had other lupus treatments under development.
  • HEALTH: Faced with a disabling illness sometimes the answer is 'just do it'

    25 Jul 2015 | 5:31 pm
    'People think lupus is very rare, but one in 3,500 people in the UK, most commonly young women between 18 and 45, are thought to be affected by some form of the condition. Lupus occurs when the immune system goes into overdrive and produces too many antibodies.
  • Lupus Patient Starts Support Group in Gainesville

    24 Jul 2015 | 8:28 am
    Adaobi Ugochukwu and her art therapist Amy Bucciarelli raise money for the Gainesville life without lupus walk organized by the Lupus Foundation of Florida. Ugochukwu is creating a support group in Gainesville for lupus patients.
 
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    Latest News from the S.L.E. Lupus Foundation

  • Two Phase 3 Trials Testing Investigational Anifrolumab as Potential New Treatment for Lupus

    kristen
    4 Aug 2015 | 10:53 am
    Two Phase 3 trials are now enrolling patients with moderate to severe lupus to evaluate the safety and effectiveness of a potential treatment, anifrolumab.  Both are being conducted at multiple sites in the U.S. and throughout the world. Patients receive either placebo or anifrolumab intravenously plus standard of care treatment. read more
  • LRI Expands Education Program to Accelerate Lupus Diagnosis and Treatment

    kristen
    4 Aug 2015 | 6:43 am
    LEAP Aims to Reduce Healthcare Disparities in Underserved Populations The Lupus Research Institute (LRI) is proud to launch the Lupus Education Advancement Project (LEAP) to reduce healthcare and racial disparities among minority and rural populations through education, increased awareness, and improved communication among healthcare providers, patients and the general public.  LEAP is funded by a grant of $500,000 from the U.S. Department of Health and Human Services Office of Minority Health. read more
  • LRI Statement: Epratuzumab Results Can Help Build Better Trials for Lupus

    kristen
    29 Jul 2015 | 9:04 am
    Learnings from two epratuzumab studies will inform progress in this complex autoimmune disease The Lupus Research Institute (LRI) is disappointed but undaunted by the results announced yesterday by UCB of two clinical trials evaluating the investigational drug epratuzumab for systemic lupus erythematosus (SLE). read more
  • Research Finds Relatives of People with Lupus at Greater Risk for Autoimmune Diseases

    kristen
    27 Jul 2015 | 10:09 am
    Source: MedPage Today As reported in MedPage Today, relatives of patients with systemic lupus erythematosus (SLE) have a higher risk of developing SLE and other autoimmune diseases compared with the general population, according to newly published research. read more
  • New Study Results Find Benlysta May Reduce Organ Damage Risk in Lupus Patients

    kristen
    23 Jul 2015 | 11:25 am
    Source: Lupus News Today As reported by Lupus News Today, study results presented during the European League Against Rheumatism (EULAR)Annual European Congress of Rheumatology found that patients suffering from moderate-to-severe systemic lupus erythematosus (SLE) who have been treated with belimumab Benlysta® are less likely to suffer organ damage. read more
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    lupus - Google News

  • Research and Markets: Cutaneous Lupus Erythematosus Pipeline Insights Study 2015 - Business Wire (press release)

    4 Aug 2015 | 12:42 pm
    Research and Markets: Cutaneous Lupus Erythematosus Pipeline Insights Study 2015Business Wire (press release)Cutaneous Lupus Erythematosus Pipeline Insights provides the in-depth analysis of the pipeline assets across the Cutaneous Lupus Erythematosus. The main objective of this report to track competitor pipeline molecules, related research activities, ...and more »
  • Systemic Lupus Erythematosus (SLE) Drugs Industry Global Market Research ... - Medgadget.com (blog)

    4 Aug 2015 | 10:50 am
    Medgadget.com (blog)Systemic Lupus Erythematosus (SLE) Drugs Industry Global Market Research Medgadget.com (blog)The report provides a basic overview of the industry including definitions, classifications, applications and industry chain structure.The Systemic Lupus Erythematosus (SLE) Drugs market analysis is provided for the international markets including ...Global systemic lupus erythematosus drugs market research in 2015 illuminated WhaTechMen with SLE may have higher renal involvement, disease activity and damage vs Healioall 3 news articles »
  • Prolonged Remission Now Possible in Lupus - MedPage Today

    2 Aug 2015 | 12:00 pm
    Prolonged Remission Now Possible in LupusMedPage TodayNote that this observational cohort study found that many patients with lupus are able to achieve remission, but few can do so without serologic evidence of disease. Be aware that chronic, low-dose steroid use led to remission but was associated with ...
  • Genetic Differences Exist Between Skin and Systemic Disease in Lupus Patients - Lupus News Today

    31 Jul 2015 | 5:57 am
    Genetic Differences Exist Between Skin and Systemic Disease in Lupus PatientsLupus News TodayLupus is a severe autoimmune disease in which the body's own immune system overreacts and attacks healthy joints and organs through autoantibodies, resulting in inflammation, swelling, pain, disability and often in tissue destruction in multiple organs ...
  • Columbus woman, military veteran copes with Lupus - WRBL

    29 Jul 2015 | 8:47 pm
    WRBLColumbus woman, military veteran copes with LupusWRBLCOLUMBUS, Ga. — IT'S estimated that at least 1.5 million Americans have lupus, with more than 16,000 new cases reported every year. Lupus is a chronic, autoimmune disease that can damage any part of your body. Latisha Nickerson of Columbus wasn't ...
 
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    But You Dont Look Sick? support for those with invisible illness or chronic illness

  • Look Out World… I’m Back In The Saddle Again!

    christine
    16 Jul 2015 | 2:22 am
    A few years ago I got thrown from my horse. OK, who am I kidding? I am a Brooklyn girl at heart, no horses for me. But literally I felt like I had, if not been thrown from my horse, I was certainly thrown off my game. Life kept throwing me obstacles and I found […] The post Look Out World… I’m Back In The Saddle Again! appeared first on But You Dont Look Sick? support for those with invisible illness or chronic illness.
  • Wigs, Hats, and Make Up… Oh My! Trying to Look Better, When You Feel Bad.

    christine
    23 Oct 2014 | 5:48 pm
    We have all heard the dreaded saying “But you don’t look sick?” But the last thing we want to do is walk around looking like death 24/7. It is true that when you look better you feel better, but there is a fine balance between spending tons of hours putting on full face make up, […] The post Wigs, Hats, and Make Up… Oh My! Trying to Look Better, When You Feel Bad. appeared first on But You Dont Look Sick? support for those with invisible illness or chronic illness.
  • After saying hello to my guests, I say #hellokeurig and feel like the perfect host

    christine
    19 Oct 2014 | 11:31 am
    Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I have been using the […] The post After saying hello to my guests, I say #hellokeurig and feel like the perfect host appeared first on But You Dont Look Sick? support for those with invisible illness or chronic illness.
  • How do you describe your pain? Numbers on Pain Scale, Adjectives, Silly Weird Pain Faces.

    christine
    18 Oct 2014 | 11:17 am
    I hear it all the time from doctors and nurses: “Tell me your pain on a scale from 1 to 10″. I always cringe at the thought of summarizing my pain and fatigue down to a number. I also get scared at the thought that I have never felt below a 4 or 5. How […] The post How do you describe your pain? Numbers on Pain Scale, Adjectives, Silly Weird Pain Faces. appeared first on But You Dont Look Sick? support for those with invisible illness or chronic illness.
  • I made a healthy little switch to Musselman’s Applesauce. Small diet changes can make a big difference.

    christine
    8 Oct 2014 | 3:04 pm
    How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a little judgment I can even […] The post I made a healthy little switch to Musselman’s Applesauce. Small diet changes can make a big difference. appeared first on But You Dont Look Sick? support for those with invisible illness or chronic illness.
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    WordPress Tag: Lupus

  • Part 1: How to Read Your Lab Test: Urine

    chelse Sstark
    4 Aug 2015 | 6:42 pm
    Originally posted on bloggingwarrior: As a patient with a chronic illness  your doctor will collect many tests from you. One of them is a urine (pee) test. It is painless but peeing in the cup can be a bit awkward. Some questions that may go through your mind are: “Why is the doctor running this test?” and “What information are they getting from this test?” According to Webmd.com a urine test is done “to check for a disease or infection of the urinary tract…and to check the treatment of conditions such as diabetes, kidney stones, and a urinary tract infection (UTI), high blood…
  • The Battle for Life. Part 3

    Rebecca Smith
    4 Aug 2015 | 4:45 pm
    I am sitting here dreading this post, but it’s been promised for over a year (you can read parts 1 and 2). Not sure if I don’t want to remember, if there is fear of ever having to ever go through this again. SEVERAL week(S) ago – the Holy Spirit gently reminded me that even though, I know where I want to be and where I desire to go, I can’t go there until I open up this part of my life and share it, because someone out there needs to know they are not alone. Come on a journey with me to 2008 when we where all LOVING LIFE. I was running a successful coffee catering company in Los…
  • Living With Lupus: Tips that help me get by

    chelse Sstark
    4 Aug 2015 | 11:28 am
    Originally posted on Random Thoughts on Life: Living with Lupus comes with a variety of issues that we must deal with daily. Some of these are physical and others are emotional.  Over the years, I have found different products, foods, and activities that help me cope with both. On the physical level, the joint pain and rashes are the most consistent and persistent problems.  The malar face rash and body rashes that Lupus deals out can be hard to conceal and heal.  I have went through a variety of skin creams in an effort to keep the malar rash at bay and easier to mask.  Origins facial…
  • More Summer Fundraisers!

    ctlupus
    4 Aug 2015 | 10:46 am
    Two weeks from today marks a very exciting week for LFACT! On August 18th and 20th the Connecticut Chapter will be having two more summer fundraisers! We would love for you to join us at Friendly’s in Plainville on Tuesday August 18th and TGI Friday’s in Newington on Thursday August 20th. Take a break from cooking and treat the family or meet up with friends for two great nights of delicious food and fun! What better way to celebrate the final days of summer than with a sundae at Friendly’s and some happy hour drinks at TGI Fridays! 20% of the proceeds from both nights will directly…
  • Dear Rite Aid

    Kori Dremow
    4 Aug 2015 | 10:33 am
    To Whom It May Concern: First let me say that I applaud your efforts to keep legally prescribed narcotics out of the hands of the wrong people and I appreciate the effort put forth by your staff. Coming from a family of three recovering heroin addicts, I know how devastating drug abuse can be and how quickly it can spiral out of control. On the other hand, I am not a criminal, and I feel as though every time I walk into one of your stores, I am treated like one. Once a month, I try to get my prescription for Oxycodone filled at your pharmacy – the same prescription I have been filling…
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    Despite Lupus

  • New Lupus Study for Lupus Nephritis - Think your lupus kidneys would be interested?

    31 Jul 2015 | 4:00 am
    I just heard about a new lupus study being conducted, and I thought I'd share. It's targeted toward lupus nephritis, or kidney involvement and inflammation due to lupus. The study is testing the effectiveness of a new investigational immunosuppressant drug developed by a canadian-based pharma company. Can't have too many drugs specifically designed to treat lupus, now, can we?Personally, I developed kidney involvement pretty early on, which is why I started another drug called CellCept years ago. As you may remember, CellCept works wonders for me, and I've been on it twice - once for a period…
  • Charity of the Month: UCSF Foundation to benefit lupus support groups. Hooray!

    29 Jul 2015 | 9:37 am
    We're thrilled to be partnering with the pediatric rheumatology department of UCSF as the recipient of the Pillbag Charity of the Month! Now through the end of 2015, all proceeds will go directly to the UCSF Foundation, to benefit the lupus support groups held in the pediatric clinic at UCSF. The UCSF Foundation seems like a perfect fit for a pillbag fundraiser, as we're happy to support the educational programs and patient support that the pediatric clinic provides. Stock up on a new pillfold today and support the cause. Check out our latest designs here, and thank you…
  • Naptime in Valencia, Spain: my kind of city, and very lupus-friendly!

    20 Jul 2015 | 4:00 am
    I've always known I had Spanish roots, but based upon this latest article, it looks like Despite Lupus headquarters would feel right at home in Valencia!Snippets of the article are below, but you can read the entire piece here:***A Spanish mayor has become the first in the country to issue a proclamation creating an official afternoon nap time for the entire city. (!!!!)Mayor Joan Faus Vitoria of Ador in Valencia declared 2 to 5 p.m. as the official time for the city’s residents to take their afternoon siestas.The edict asks residents to keep quiet during the siesta hours and the mayor…
  • Center Point Pillfold stepping out on the town. Still stylish, Despite Lupus!

    18 Jul 2015 | 10:20 am
    Sara Gorman's Pillbags
  • Staying sun-safe this summer: with or without LUPUS!

    15 Jul 2015 | 4:00 am
    Several weeks ago, the folks at Baylor College of Medicine sent the following article to me. I thought the middle of summer was the perfect time to post.Having just finished up an 11-day trip to the beach (...I mean, the shore), and plans to go to the pool just about everyday this week, sun protection and skin care is very top of mind. Personally, I've found that a baseball cap does very little to protect my face. I take my wide-brimmed straw hat (compliments of my in-laws, thank you very much) everywhere! It went to the shore, it went to Sanibel earlier this year. I don't go to the beach or…
 
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    The Life of a 20-Something With Lupus

  • Lupus Nephritis Study!

    21 Jul 2015 | 8:21 am
    I wanted to take a minute to write about some interesting info I had received earlier this week. This info is with regards to lupus nephritis study that is currently seeking volunteers!A small pharmaceutical company based in Canada is developing an immunosuppressant for the treatment of lupus nephritis. This company is conducting a study to demonstrate its efficacy and safety when taken orally twice daily when compared to a placebo.  The duration of the study is about twelve months and consists of about 13 visits to the study clinic for that twelve month duration.  Not bad, about…
  • Times flies when you're having fun

    8 Jun 2015 | 6:46 pm
    The last couple of months have been packed...in the best possible way. Blogging is actually pretty important to me. I definitely like the ability to look back at the good times..and reflect on the perhaps not so good. But, I'm glad it crossed my mind to write a life update, so here goes.In May, my mom, dad, sister and I went to Italy! It was an absolutely amazing experience. We got to visit a number of amazing places, including Tuscany, Rome, Florence...It was all simply breathtaking. I feel infinitely blessed to have been able to go on such a trip. The fact that a good friend of my dad owns…
  • My friend's wedding

    26 Apr 2015 | 3:25 pm
    I'm here lying in my boyfriend's bedroom at his parents' house. Yes, I met his parents for the first time yesterday. They're absolutely delightful and kind. Their two dogs, Primo and Bella, are delightful too. Bella is sweet but Primo is still unsure and curious about me. I'll win him over soon enough I'm sure.Anyhow, the point is this post was to share pics of my friend Joy's wedding last weekend. It was a wonder and beautiful wedding with a beautiful bride, groom, and wedding party. And, my dad performed the wedding ceremony! That said, it was a large wedding and therefore I didn't have the…
  • All Your Curves and All Your Edges

    5 Apr 2015 | 6:00 pm
    I've blogged through tears way too often.I've felt sad and without hope way too often.The strange thing is..even though those past situations and occurrences hurt so bad, I think they were necessary. Not only have they taught me that I, at the end of the day, have to honour me and put ME first, but they also taught me that I deserve more; I deserve better.You know what I thought? I thought that because I have an illness/condition, that I have to..."put up" with things, like perhaps not being treated as well as I should be treated, because I did not have the right to be "picky" about men. I…
  • A few small updates

    4 Apr 2015 | 8:48 pm
    It has certainly been a while since I have posted an update...so here goes!The last couple of months have definitely been months of change-months of growth, so some time of sharing is definitely overdue.My scleritis went away with continued treatment, but shortly after stopping the treatment...it came back! I'm currently seeing the eye doctors at the hospital who are keeping a close eye (no pun intended) on my scleritis and are making sure that they taper me off of the prednisone drops more slowly.I'm sad to announce that I'm still searching for a job. I've been applying regularly, but it…
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