Lupus

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  • Too much of a protein called c-FLIPR can trigger autoimmune diseases

    Lupus News From Medical News Today
    15 Apr 2014 | 12:00 am
    Apoptosis is used by cells that are changed by disease or are simply not needed any longer to eliminate themselves before they become a hazard to the body - on a cellular level, death is part of life.
  • Club Notes: April 23.

    Lupus News
    21 Apr 2014 | 7:59 am
    The North Carolina Chapter of the Lupus Foundation of America will host a support group meeting for people with lupus, family members and caregivers from 6:30-8 p.m. Thursday, April 24, in the Waters Edge Office Park Conference Room, 4917 Waters Edge Drive, suite 250, Raleigh.
  • Usrearchchemsupplies.com Has Launched New Products and Online Ordering Directory

    Lupus News
    23 Apr 2014 | 6:00 pm
    Its take just One Step to Complete Your Order Online With Usrearchchemsupplies.com ASHEVILLE, NC, UNITED STATES, April 25, 2014 /EINPresswire.com/ -- Its take just One Step to Complete Your Order Online With Usrearchchemsupplies.com In these economic …
  • New study with lupus patients supports connection between estrogen and autoimmune disease

    Latest News from the S.L.E. Lupus Foundation
    admin
    18 Apr 2014 | 7:31 am
    A new study at Ohio State University of men and women with and without lupus strengthens the theory that estrogen may trigger the release of proteins called toll-like receptors that are involved in the autoimmune response. Published in Clinical Immunology, their findings provide further evidence for the potential effectiveness of therapies that regulate toll-like receptors. Full story read more
  • Sharing the Love with Motorcycle Rides for Charity

    lupus « WordPress.com Tag Feed
    Judy Bird
    14 Apr 2014 | 8:08 am
    If you own a motorcycle or ride with someone who owns one, you most likely will agree there is nothing quite like getting on the bike and riding off with no real destination in mind.  It is the feel of the wind in your face, the growl of the engine and experiences during the ride that form the stories you love to share over and over again. Bikers really don’t need reasons to ride. It is, however, fun when a number of riders can get together and drive alongside each other as a group. The rumble and roar is amplified and the hairs on my arms stand with excitement!  I have always enjoyed…
 
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    Lupus News

  • Club Notes: April 23.

    21 Apr 2014 | 7:59 am
    The North Carolina Chapter of the Lupus Foundation of America will host a support group meeting for people with lupus, family members and caregivers from 6:30-8 p.m. Thursday, April 24, in the Waters Edge Office Park Conference Room, 4917 Waters Edge Drive, suite 250, Raleigh.
  • Rituximab treatment in lupus nephritis--where do we stand?

    19 Apr 2014 | 7:57 pm
    Renal involvement in systemic lupus erythematosus is a severe disease manifestation in which novel therapeutic strategies are needed, especially in non-responding patients or patients who relapse after conventional treatment.
  • Nick Cannon Leads Thousands of DC Residents in the Walk to End Lupus NowA

    19 Apr 2014 | 12:41 pm
    Grand marshaled by multi-talented entertainer and television personality and Master of Ceremonies Eileen Whelan , Cannon cut the opening ceremony ribbon.
  • The New Normal: Adjusting to Life With Lupus

    18 Apr 2014 | 8:59 am
    Janice Wolfe-Easley's life before lupus was a swirl of activities - exercise, sailing, volleyball on the beach with her husband and 60-mile breast cancer walks.
  • Club Notes: April 20.

    17 Apr 2014 | 9:50 pm
    The Democratic Women of Wake County meeting will start with a buffet at 11:30 a.m. and the program at noon Tuesday, April 22, at the N.C. State University Club, 4200 Hillsborough St., Raleigh.
 
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    Latest News from the S.L.E. Lupus Foundation

  • New study with lupus patients supports connection between estrogen and autoimmune disease

    admin
    18 Apr 2014 | 7:31 am
    A new study at Ohio State University of men and women with and without lupus strengthens the theory that estrogen may trigger the release of proteins called toll-like receptors that are involved in the autoimmune response. Published in Clinical Immunology, their findings provide further evidence for the potential effectiveness of therapies that regulate toll-like receptors. Full story read more
  • Lupus Research Institute Awards $3 Million to Leading Innovators in Lupus Research

    ellen
    11 Apr 2014 | 2:23 pm
    2014 Novel Research Grant Recipients Advance Cutting-edge Paths to Transform Lupus Treatments and Advance Patient Care read more
  • Canadian Analysis Follows Children with Lupus Long-term

    kristen
    10 Apr 2014 | 8:42 am
    Pediatric rheumatologist Deborah Levy, MD of Toronto's Hospital for Sick Children presented findings from an analysis of the health records of 700 children at the American College of Rheumatology pediatric rheumatology symposium in Orlando, FL. Surprising results included lower than anticipated rates at end-stage renal disease and heart attack. The rates of miscarriage and still-births were higher than expected in healthy women. read more
  • Meet the S.L.E. Lupus Foundation’s 2014 Bag Ladies Luncheon Honorees!

    admin
    4 Apr 2014 | 2:00 pm
    These three exceptional women will be recognized as Women of Achievement at the upcoming 2014 Bag Ladies Luncheon April 28.  From left to right: Desiree Gruber, Lisa R. Sammaritano, MD and Michelle Gadsden-Williams read more
  • Clinical Trials Need Patients

    admin
    2 Apr 2014 | 1:35 pm
    This study published in a highly respected medical journal highlights a major obstacle to bringing patients new treatments – not enough patients participating in clinical trials to provide the U.S. Food and Drug Administration with the data they require to approve new drugs. In a presentation at a recent Lupus Research Institute patient research conference, Dr. read more
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    lupus « WordPress.com Tag Feed

  • Sharing the Love with Motorcycle Rides for Charity

    Judy Bird
    14 Apr 2014 | 8:08 am
    If you own a motorcycle or ride with someone who owns one, you most likely will agree there is nothing quite like getting on the bike and riding off with no real destination in mind.  It is the feel of the wind in your face, the growl of the engine and experiences during the ride that form the stories you love to share over and over again. Bikers really don’t need reasons to ride. It is, however, fun when a number of riders can get together and drive alongside each other as a group. The rumble and roar is amplified and the hairs on my arms stand with excitement!  I have always enjoyed…
  • Chronic Fatigue & Pain

    mkingr
    13 Apr 2014 | 8:09 pm
    There are a lot of different things we go through living with Lupus. Two of my more frequent “companions” are fatigue and different types of pain that travels through different parts of my body. Pain from debilitating headaches, various joint pains, nerve damage in both feet (which my previous Podiatrist adamantly insisted was NOT from Lupus), finger/ toe/ muscle cramps in all parts of my feet and legs, ferocious back pains, etc. I don’t like to be asked questions about it or any other symptom I may be experiencing because it’s pretty much the same thing just a…
  • I'm still around

    sdloopy
    13 Apr 2014 | 7:12 pm
    Last time I posted to this blog was about two months ago. Even then, it was a repost and not something I actually took the time to write. Lately I have been putting most of my energy into my other blog (WordPress — paws2smile). I guess I don’t have much going on with my Lupus that I need to write about, which is a good thing. I think it also has to deal with my profile/Gravatar picture. Sometimes it shows, sometimes it won’t. I have tried researching it and end up getting frustrated. Because of that, I feel negative every time I log on and hiss at my computer when I see the…
  • Mommy has Lupus

    itsjustlupus
    13 Apr 2014 | 4:54 pm
    I have been blessed with two little monsters. However, when I was diagnosed with Lupus, we only had the big one aka Vida. He was only four so of course I debated whether or not to tell him. Now before anything, understand that we are very blunt in my house. I was never that mom that sugar coated shit. He knows very well what he’s getting. Whether it’s a shot at the doctor or some dental work. This works for us. But could I tell him about something that could potentially take me from him? I know, morbid…but let’s live in reality people. One sign of organ failure are…
  • Extremely Supportive #Spoonie

    midmama
    13 Apr 2014 | 4:19 pm
    While living with Rheumatoid Arthritis for the past eight years, I have visited with my Rheumatologist, read many books, and studied a countless amount of articles in order to manage my health with the most effective, long-term methods. I now live a low-inflammation, mostly paleo, type of lifestyle and I take supplements. You can read all about it in my previous posts. After the extremely beneficial results I have received from this lifestyle, all I could think about was getting the word out to others who are feeling the depressing, debilitating effects of RA, and other autoimmune diseases…
 
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    Despite Lupus

  • Despite Lupus' Spring Speaking Tour 2014: LFA Indiana - Indianapolis

    21 Apr 2014 | 5:00 am
    One of the last stops on the DL Spring tour will be one of my favorites - my home state of Indiana. The LFA Indiana Chapter has always been so good to me, welcoming me back every year or two to participate in their workshops and symposiums. This year's event is a fun-filled weekend, starting with an afternoon of awareness and a stop from the Purple Bus - LFA's educational and interactive touring bus. I had the opportunity to tour the bus in Richmond last year, and I was absolutely blown away. You can see me enjoying the interactive displays below.Touring the bus is a great way to learn a few…
  • Barbeaux Formulaire - my new favorite line of skin care!

    18 Apr 2014 | 5:00 am
    One of my girlfriends recently introduced me to this line of bath and beauty products, and I am hooked. It's called Barbeaux Formulaire, based out of Carmel, Indiana, and their natural skin care products are heavenly!The Barbeaux Formulaire line was originally founded on their bath powder, which is 97% organic and is infused with jojoba oil, african shea butter, pink Himalayan sea salt, and cornstarch. It can be used for aiding eczema, diaper rash and other skin conditions, in addition to just being a fabulous soak or shower exfoliator for a tired, aching body! It's the…
  • Despite Lupus' 2014 Spring Speaking Tour - LFA D.C Maryland Virginia

    16 Apr 2014 | 5:00 am
    The next stop on my Spring Speaking Tour - Washington D.C.! I'm pleased to be working with the LFA DMV once again, this time speaking at one of the breakout sessions at the 19th Annual D.C. Summit. Details of the workshop I'll be doing are below, along with details for the entire event. The Summit is sure to be one of the most educational and worthwhile events this year - I know I'm looking forward to attending the other sessions while I'm there! And be sure to look for me at my Pillbag and Book table in between sessions. You won't be able to miss the display of brightly colored…
  • Debunking the "I'm so busy" myth. It's about time!

    14 Apr 2014 | 5:00 am
    I love the article from Tyler Ward about being "busy", titled "Busy isn't respectable anymore." Obviously, for someone who is considerably less busy than she used to be, due to health constraints, but also due to choice, it's great to hear that being busy isn't all its cracked up to be. And per his article, there actually might be disadvantages to proclaiming to be so "busy" in the first place.You can read the entire article here, but I particularly like the snippet below about the "busy" experiment. I've tried it (striking the word "busy" from my vocabulary), and it really does…
  • Commit two "shoulds" to the circular file...and watch your lupus anxiety melt away!

    11 Apr 2014 | 5:00 am
    I have a confession to make. Those tasks I blogged about a few weeks ago, the ones that I was going to tackle with fervor once my prednisone kicked in? Well, they have yet to be tackled. That's right. The sewing projects that I was going to get right on are still untouched, and the pillbags desperately awaiting QC are still, well, waiting to be QC'ed. And guess what? Life has gone on! Believe it or not, the world has not stopped spinning, but most importantly, my world has not collapsed, despite the fact that my "must do's" are still "to-do's." No one in the Gorman household…
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    My Life Works Today!

  • As my Uncle Georg would say, …

    maria
    10 Apr 2014 | 6:36 pm
    When he found himself in a conversation lull, he would simply throw out a “So-o-o-o-o...” (with a melodic lilt) to get things going again. I have been a little busy in the last month and am about to break my blogging rule of not disclosing my health out to the world. The reason I feel compelled to share it here is to work through some new things I’ve learned about myself when it comes to my health. If I aim to explore creating better health, then writing about the steps I take and trials I experience belong here. I suspect if you are reading this, then you already know that…
  • Celebrate International Women’s Day today

    maria
    8 Mar 2014 | 8:56 am
      Today is about honoring the amazing things women bring to the table of change.  
  • Blog Carnival at Partnership for Palliative Care: Why is sharing our health experiences necessary?

    maria
    3 Mar 2014 | 9:08 am
    In the late 90’s, I began my graduate program at the same time I received my diagnosis of lupus nephritis. As both of these events collided, I discovered how my life and my health experience were tightly woven together. This simple understanding about the relationship between body and mind can quickly unravel when faced with fear, barriers and shame. When I received my diagnosis, I learned how I cope with life and the particular strategies upon which I rely. My doctor suggested that I join a support group and I immediately responded with a “No thanks.” This surprise reaction to a…
  • There once was a woman who made a collage…

    maria
    9 Feb 2014 | 2:47 pm
    I was SO eager to get my old, beat up x-country skis on this year and tour the neighborhood this snowy weekend, but I chose to wait Thursday AND Friday for a phone call with my latest test results, Unfortunately, I lost my window of opportunity and the weather has changed. No, I didn’t get the call. Yet again, I chose to let something ‘outside’ myself dictate what I wanted ‘inside.’  In my posts last month, I explored what I wanted this 2014 to be about for me. I spent the majority of 2013 scrambling to create a year to remember as it was the year I turned 50. The pressure was on…
  • 2014 Spark

    maria
    19 Jan 2014 | 4:27 pm
    As I mentioned in my last post, here is what came out of my evening insight gathering:   I was unable to capture the 3D effect of the branches, gal w/deer and a few more. My hope in doing that was to try to make this project more than just color or pattern…I wanted movement and dimension. If I had all day to do it, I know I would’ve moved into textures, too. I didn’t get home until 11:30 pm as it was! The word that came to mind when asked what I was ‘seeing’ for 2014 was  tree. The images that I kept navigating towards were natural and plant/tree related. The last phrase I…
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    The Life of a 20-Something With Lupus

  • OMG-has it been a month already?!

    16 Apr 2014 | 7:17 pm
    I promise, I'm still here!I'm battling a cold/sore throat. I've been battling it since I went back to work a few weeks back (coincidence?).It's also tax time...so tax time makes for a busy Miz Flow.I'm also still quite tired...hemoglobin is just lingering in the 92 area (or 9.2 for my american friends).Right now, I'm in bed drinking hot water with manuka honey and a bit of lemon. Yes, lemon. Is it the best for my reflux? Definitely not. But my throat actually gets so dry that it HURTS at night, so I thought I'd try drinking some of this brew before bed. Hopefully it doesn't turn into horrible…
  • It's So Hard To Say Goodbye To Yesterday

    23 Mar 2014 | 7:45 am
    My iPhone started acting crazy yesterday.I would be looking at an app or surfing around, when all of a sudden, several vertical lines would appear on the screen, then it would just shut off. After shutting down to black, the apple logo would appear, indicating that the phone had shut off and was restarting.This is annoying, I thought. I take very good care of my electronics. I do plan on getting a new phone in the fall, though. But that's not because I had my current phone-I certainly do not. It's moreso because this phone was my first iPhone (iPhone 5) and I underestimated my shutterbug-ism…
  • Mmm..Pamela's butter shortbread..

    22 Mar 2014 | 5:00 pm
    I love shortbread cookies.Just thought I'd get that outta the way. Now, as I blogged about a few times, I've gone gluten free before. I did it for a whole year. It was difficult because I love cookies, cakes, pasta, bread...basically I love gluten-y things. When it comes to pasta, rice pasta was a great substitute as I found little difference between rice pasta and regular semolina pasta, especially after sauce and everything has been added in. But, bread was an absolute nightmare. I tried a couple breads that were just dreadful. One loaf of bread that I bought was so crumbly and weird…
  • Skin peeling after swelling?

    10 Mar 2014 | 10:00 am
    My leg swelling has gone down considerably since my TKA.Now, anyone who knows me knows that I'm very serious about my skin moisurization. I ensure that my skin is always well moisturized, and my skin is always quite soft as I exfoliate with every single shower. That said, I've had some minor peeling of the skin on my right foot (the same foot as my knee replacement). My other foot does not have this peeling. I can only assume that this peeling is due to the stretching of my skin after the knee replacement, or perhaps it's due to the fact that I haven't exfoliated that foot at thoroughly…
  • Considering the future

    9 Mar 2014 | 7:38 pm
    Spending a lot of time by myself these last few weeks has really got me thinking. I've been thinking about the future a lot. I'm really looking forward to hopefully (my goal is on or before my birthday in May) securing a proper HR position. I've also been thinking about cleaning up my finances and getting my own place-perhaps a condo or a condo town home (as long as shovelling is included!)I'm going to be honest. I thought that at this point in my life I'd be a lot...farther than I am right now. I thought I'd be married by now, have at least 1 kid, etc. I know that not everything happens the…
 
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