Lupus

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  • Re-Engineering Lupus Into a Cancer Killer

    Lupus News
    21 Apr 2015 | 11:08 am
    New Haven, Conn. - Researchers from the Yale Cancer Center and the Veterans Affairs Greater Los Angeles Healthcare System have devised a way to re-engineer lupus antibodies to turn them into potential cancer killers.
  • Actelion advances clinical development of its specialty immunology pipeline compounds

    Lupus News From Medical News Today
    20 Apr 2015 | 3:00 am
    Actelion Ltd has announced that it is accelerating its clinical development efforts in the field of immunological disorders, following a broad scientific, medical and commercial evaluation of a...
  • Shingles Virus May Cause Heart Attacks and Strokes; The CBCD Explains

    Lupus News
    25 Apr 2015 | 3:00 am
    The varicella zoster virus (VZV), which causes shingles, is linked to a dangerous decrease in blood flow in the coronary arteries. (1) ROCHESTER, NEW YORK, UNITED STATES, April 21, 2015 /EINPresswire.com/ -- Ever had chickenpox? The CBCD recommends …
  • Organ Damage in Patients with SLE Linked to Disease Activity, Glucocorticoids

    Latest News from the S.L.E. Lupus Foundation
    kristen
    21 Apr 2015 | 12:12 pm
    Source: Healio As reported in the professional online publication Healio, a new analysis linked likelihood of organ damage with glucocorticoid treatment.  A total of 2,199 patients with systemic lupus erythematosus were studied. Immunosuppressants were used by 19.2% of patients, whereas 70.3% of patients received hydroxychloroquine, 52.7% received corticosteroids and some patients used more than one therapy. Slightly more than 40% of patients received an average daily dose of prednisone of 7.5 mg or more. read more
  • Sisters 3 Team supports 2015 Walk to End Lupus - The Highland County Press

    lupus - Google News
    25 Apr 2015 | 10:11 am
    Sisters 3 Team supports 2015 Walk to End LupusThe Highland County PressLupus is a chronic, autoimmune disease that can damage any part of the body (skin, joints, and/or organs inside the body). Chronic means that the signs and symptoms tend to last longer than six weeks and often for many years. According to the Lupus ...
 
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    Lupus News

  • Re-Engineering Lupus Into a Cancer Killer

    21 Apr 2015 | 11:08 am
    New Haven, Conn. - Researchers from the Yale Cancer Center and the Veterans Affairs Greater Los Angeles Healthcare System have devised a way to re-engineer lupus antibodies to turn them into potential cancer killers.
  • Auto-Immunity

    13 Apr 2015 | 6:40 am
    Although many DEGs have known function in regards to psoriasis and inflammation, KYNU has been completely unexplored in both psoriasis and within general immunology. Here we show that psoriatic lesional skin has significantly increased KYNU mRNA, and is infiltrated by large numbers of KYNU cells was elucidated using both two-color immunofluorescence and qRT-PCR.
  • Crystal Lake going purple for Lupus awareness

    11 Apr 2015 | 10:27 pm
    CRYSTAL LAKE – Efforts once again are underway to turn downtown Crystal Lake purple to raise both awareness and funding for the Lupus Foundation of America as part of Lupus Awareness Month in May. Bonnie Kassel of Crystal Lake, with the help of friend Regina Villalobos of Huntley, who suffers from the disease, once again is organizing a Lupus Awareness Day. Kassel first began the campaign three years ago in hopes to educate the community and provide support for those suffering from the chronic, autoimmune disease her now 17-year-old daughter Taylor was diagnosed with in 2011.
  • Lupus Foundation of America, CT Chapter's West Hartford Walk to End Lupus Now

    7 Apr 2015 | 11:34 pm
    Have you registered for LFACT's Walk to End Lupus Now in West Hartford? Read more to see how you can register & for more details! Our 2015 West Hartford Walk to End Lupus Now will be taking place on Sunday, May 17th in West Hartford's Blue Back Square located at 50 South Main Street, West Hartford, CT ! Join the Lupus Foundation of America, Connecticut Chapter in raising awareness and educating the public about lupus as well as providing educational programs and services to all people with lupus and their families.
  • Desert Gardens Mini Storage of Glendale AZ Hosts Shred-a-Thon to Benefit Lupus Charity

    7 Apr 2015 | 2:15 pm
    Desert Gardens Mini Storage in Glendale, Ariz., is partnering with Desert Gardens Communities to host a community Charity Shred-a-Thon on April 17 to benefit Christine Ostwinkle Foundation for Lupus, a nonprofit that raises awareness for the disease and assists families affected by it. The event at 13551 W. Glendale Ave., 3 to 6 p.m., will be open to the public.
 
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    Latest News from the S.L.E. Lupus Foundation

  • Organ Damage in Patients with SLE Linked to Disease Activity, Glucocorticoids

    kristen
    21 Apr 2015 | 12:12 pm
    Source: Healio As reported in the professional online publication Healio, a new analysis linked likelihood of organ damage with glucocorticoid treatment.  A total of 2,199 patients with systemic lupus erythematosus were studied. Immunosuppressants were used by 19.2% of patients, whereas 70.3% of patients received hydroxychloroquine, 52.7% received corticosteroids and some patients used more than one therapy. Slightly more than 40% of patients received an average daily dose of prednisone of 7.5 mg or more. read more
  • 2015 New York Lupus Handbag Luncheon Supports Lupus Research to Improve Treatment and Find a Cure

    kristen
    14 Apr 2015 | 12:55 pm
    Hosted by S.L.E. Lupus Foundation and the Lupus Research Institute NEW YORK, NY – April 13, 2015. More than 350 prominent women and men from New York’s fashion, society, entertainment, philanthropic and lupus communities came together today to support lupus research.  The annual New York Lupus Handbag Luncheon is hosted by the S.L.E. Lupus Foundation and the Lupus Research Institute (LRI). Women of Achievement Honorees read more
  • Meet our 2015 New York Lupus Handbag Luncheon Honorees!

    kristen
    6 Apr 2015 | 7:09 am
       These three exceptional women will be recognized as Women of Achievement at the upcoming 2015 NY Lupus Handbag Luncheon Honorees. Each have made a true difference in the fight for Life Without Lupus!  From left to right: Betty Diamond, MD; Brett Heyman; and Teri Wilford Wood read more
  • International Study Identifies Risk Factors for Organ Damage

    kristen
    24 Mar 2015 | 12:39 pm
    Source: MedPage Today As reported by MedPage Today, risk factors for organ damage include  use of specific medications, disease activity, hypertension, and pre-existing damage according to results of a large international study published in Annals of the Rheumatic Diseases. read more
  • Raise Your Voice as a Virtual Lupus Advocate!

    kristen
    24 Mar 2015 | 8:32 am
    LRI National Coalition Voices Lupus Needs to Congress Be a Virtual Advocate and Be Heard! read more
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    lupus - Google News

  • Sisters 3 Team supports 2015 Walk to End Lupus - The Highland County Press

    25 Apr 2015 | 10:11 am
    Sisters 3 Team supports 2015 Walk to End LupusThe Highland County PressLupus is a chronic, autoimmune disease that can damage any part of the body (skin, joints, and/or organs inside the body). Chronic means that the signs and symptoms tend to last longer than six weeks and often for many years. According to the Lupus ...
  • Male Fetal Cells May Protect Women With Lupus Nephritis - MedPage Today

    24 Apr 2015 | 10:00 am
    MedPage TodayMale Fetal Cells May Protect Women With Lupus NephritisMedPage TodayMicrochimeric male fetal cells (MFC) have been associated with systemic lupus erythematosus (SLE) and lupus nephritis (LN). Now, in addition to confirming a high prevalence of MFC in renal biopsy specimens from women with LN, a small Brazilian study ...
  • Living with lupus, survivor still manages to enjoy life - Daytona Beach News-Journal

    24 Apr 2015 | 9:04 am
    Living with lupus, survivor still manages to enjoy lifeDaytona Beach News-JournalThese auto-antibodies cause inflammation, pain and damage in various parts of the body, according to the Lupus Foundation. Lupus mostly affects women of childbearing age, but men and children can develop lupus, too. It is also more likely to affect ...and more »
  • Aurinia Pharmaceuticals to Host Lupus Nephritis Opinion Leader Meeting and ... - Business Wire (press release)

    23 Apr 2015 | 2:07 pm
    Aurinia Pharmaceuticals to Host Lupus Nephritis Opinion Leader Meeting and Business Wire (press release)VICTORIA, British Columbia--(BUSINESS WIRE)--Aurinia Pharmaceuticals Inc. (NASDAQ:AUPH; TSX:AUP) today announced it will host a Lupus Key Opinion Leader breakfast on Tuesday, May 5 from 8:00 to 9:30 EDT in New York. The topic of the meeting ...and more »
  • With lupus, you need a guilty pleasure - ChicagoNow (blog)

    22 Apr 2015 | 4:37 am
    With lupus, you need a guilty pleasureChicagoNow (blog)If you have any illness, you need a guilty pleasure to get your mind off of it. With lupus, it can be very isolating as it is very confusing. When your immune system attacks itself, anything goes. I'm currently in the midst of a flare up but I'm
 
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    WordPress Tag: Lupus

  • PCP Doctor #1 refers me to Rheumatologist #1

    Kpl
    16 Apr 2015 | 4:50 am
    My primary care physician took blood tests and urine tests to try and figure our what was going on with me. (Lupus mimics so many illnesses, that is why it is so difficult to diagnose.) I know now that blood test likely indicated a positive anti nuclear antibody (ANA) and that it one of the signs you may have lupus. Nearly all lupus patients have a positive ANA.  So I attended the appointment with her at a hospital in Cincinnati. (Side note — ironically, I have been experiencing some of these symptoms recently. This time around has been different. I knew what to recognize and I will…
  • Old Houses and Lupus, Same Story

    Whimsical Thoughts
    15 Apr 2015 | 6:27 pm
    I’ve always had a thing for older homes.  I love the charm of old architecture, the whimsical flair of gingerbread trim and lines of columns.  I adore wide porches, peekaboo windows.  Let’s face it, I’m a sucker for old homes. So when I get a whim to see what is on the market in terms of older homes it always is an adventure.  Sometimes there will be some little gem on the market, but mostly there are horror stories. Houses that just need to be loved back into their glory, but in order to do that a lot of hard work and elbow grease will be required.  And no doubt a…
  • God said "NO" pt. 1

    Cyn
    15 Apr 2015 | 6:00 pm
    On a personal note, sometimes we set ourselves up for failure.  Not as a way to punish ourselves but as a cry out for help or as a distraction to deal with things we rather not deal with ever.  I’ve always been a runner, a runner from life’s hard issues.  Things get hard, I go ghost.  I learned years ago running only puts off the inevitable.  Those problems follow anywhere you may run or hide.  Wrestling with my emotions and overwhelming responsibilities should probably be handled by a counselor but I don’t think I’m ready for that, or if I’ll ever be ready…
  • Actemra #lupus #RA #stillsdisease

    Jill
    15 Apr 2015 | 2:22 pm
    I had my first Actemra infusion yesterday. It went well. The infusion center is pretty nice, much more comfortable than my previous doctor’s office. The nurses are more attentive and they took my blood pressure every half-hour. It’s nice to have an opportunity to talk to other people who are also there getting infusions. It felt the same as my past infusions. They didn’t give me any pre-meds. For the first half, I got really sleepy. That usually goes away during the second half of the infusion. I got a little dizzy but realized it was from looking down, a problem I’ve…
  • In Between the Strands

    spiritually kc
    15 Apr 2015 | 8:18 am
    I’ll keep this short and sweet (er not so much). What really goes on in between the strands?  People see a head full of hair, yep #frolife, but really there is nothing but pain.  There are bald spots the size of silver dollars, scabs, and random sores.  Some days it hurts to the touch with a 2-3 minute lingering pain, but who’s complaining.  I AM! But only for the moment since nobody knows the struggle behind this seemingly healthy head of hair.  In fact, is this hair healthy???  Not in the least.  Its thinning, constantly breaking, and getting it past collarbone –…
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    Chronic Chick Talk

  • House rennovations are your worst nightmare

    Florence
    10 Apr 2015 | 6:06 am
    We have recently purchased a house with the intent of renovating before moving in. We had our builder all lined up and then due to a disagreement over how much money he deserved for building our property we have completely been disillusioned by the whole process and are now entertainig the idea of going down the Owner Builder path. The renovations are going to be quite extensive and with my sons insesant need to find kik usernames to satisfy his every which sexting desires ontop of my chronic conditions you quickly get a picture of how much of a nightmare this is turning into. Owner building…
  • Support During Pregnancy

    Florence
    5 Mar 2015 | 6:43 pm
    New mothers have a lot more questions than experienced mothers. Setting up a support system is important especially for someone with a chronic illness. Being covered by nib health insurance is helpful. Find a trusted friend or relative is helpful. Asking the person to stay with you for a few days is helpful. One of the biggest fears when living with a chronic illness is passing it on to your child. Asking your doctor questions about the illness may give you some peace of mind. Everyone’s illness is different so there’s no way to predict the severity of the illness. Not all illnesses are…
  • Your Almost Late for a Very Important Date

    Florence
    6 May 2013 | 4:52 am
    The majority of men cringe at the though of going shopping unless it is for a hobby. Instead of putting yourself through the trauma of shopping in a crowded store, buy something online from the comfort of your living room on the sofa. Then you will be able to tell your buddies that you went sofa shopping. It will save you time and money by shopping online, especially if it is snowing or icing outdoors. Purchasing a new watch for your loved one is a great way to say ‘I love you’. Everyday the person you love will remember you when they look at the face of their watch. If your loved one…
  • Eldest son has a sexting problem

    Florence
    6 May 2013 | 4:39 am
    So after I saw the snapchat nude sexting pictures on my eldest sons phone. I rationalizsed myself into doing something I’ve never done before, I decided to check his computer and see what he’s been up to. I know this is wrong and violates trust, but I need to know he’s safe and not doing something stupid like sending sending pictures to strangers. Despite knowing that I’m breaking his privacy I just couldn’t shake it and I had to check. I went through his history and found he has been using a snapchat sexting forum  for some time.  Essentially using a…
  • The Bellyaches of Chronic Illness

    Florence
    19 Apr 2013 | 5:43 am
    Some of the side effects from my medications cause a lot of problems with my stomach off and on. I’ve said something to my doctor in the past about the stomach pain, but he said if I don’t take the medication for the lupus I’ll end up with flares with the lupus, which means more prednisone. So I’ve learned to deal with the aches in my stomach. When you’ve been sick for over a decade your always looking for some relief from pain. I didn’t know about digestive enzymes until I was offered a bottle to try. I was very hesitant to try them so I did call my doctor about medication…
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    Despite Lupus

  • New Men's/Unisex Pillfold Now Available!

    24 Apr 2015 | 7:35 pm
    Announcing the new Men's/Unisex Pillfold, available now at www.pillfold.com! It's blue, inside and out, for those patient pill poppers who couldn't take the signature hot pink of the original pillfolds. Consider the navy interior collection officially launched!Ready for purchase today - the Pillfold Arlanda. What better way to travel with your pills than with a little aviation inspiration! Order today. Limited quantities available! Click here to find out more. 
  • #Healthevoices15 Conference. Here I come, New Jersey!

    15 Apr 2015 | 4:00 am
    I'm excited to head to New Jersey this weekend for the HealtheVoices15 conference!Sponsored by Janssen, in conjunction with Everyday Health, the weekend is jam packed with great speakers and break out sessions that would make any health blogger jump for joy. The folks at Janssen are graciously taking care of expenses for the weekend, and they have been extremely mindful of those of us who needs breaks, naps, and extra rest. The weekend is busy, but not overwhelming. Full, but not hectic.I can't wait to meet up with the other patient advocates attending, as well as some of my fellow health…
  • The multipurpose pill organizer!

    10 Apr 2015 | 5:33 pm
    Here's a shot of my pillfold doubling as a jewelry organizer while we were traveling recently. I figure an empty pouch is an empty pouch. Might as well put it to good use!
  • Lupus and Genetics: Reading for hope!

    7 Apr 2015 | 11:55 am
    This latest article from the LFA on genetics and lupus is a really good one. I had to read with courage, though. With two young daughters who have a very real possibility of getting lupus since I have it, I had to focus on the positives of the article, of which there are many. 1) Every year counts: I know firsthand how different the outlook is for lupus patients from the time I was diagnosed until now. In the past 14 years, we have more options to treat the disease, the increase in research has allowed for a better understanding of what the disease even is, and the increase in awareness has…
  • Happy Easter!

    1 Apr 2015 | 4:00 am
    So happy my in-laws and I have the same sense of humor! :) Hope your Easter baskets are overflowing, and that they continue to overflow all year long. Have a safe and happy Easter!
 
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    The Life of a 20-Something With Lupus

  • All Your Curves and All Your Edges

    5 Apr 2015 | 6:00 pm
    I've blogged through tears way too often.I've felt sad and without hope way too often.The strange thing is..even though those past situations and occurrences hurt so bad, I think they were necessary. Not only have they taught me that I, at the end of the day, have to honour me and put ME first, but they also taught me that I deserve more; I deserve better.You know what I thought? I thought that because I have an illness/condition, that I have to..."put up" with things, like perhaps not being treated as well as I should be treated, because I did not have the right to be "picky" about men. I…
  • A few small updates

    4 Apr 2015 | 8:48 pm
    It has certainly been a while since I have posted an update...so here goes!The last couple of months have definitely been months of change-months of growth, so some time of sharing is definitely overdue.My scleritis went away with continued treatment, but shortly after stopping the treatment...it came back! I'm currently seeing the eye doctors at the hospital who are keeping a close eye (no pun intended) on my scleritis and are making sure that they taper me off of the prednisone drops more slowly.I'm sad to announce that I'm still searching for a job. I've been applying regularly, but it…
  • Focus groups!

    20 Feb 2015 | 1:26 pm
    On a couple of occasions, I've received phone calls from various market research firms asking me if I wanted to participate in a focus group. Ive been to 3 in total. The topics varied-one was about a new food product that was soon to be released, another about ads for a new travel agent. Various things. Each of the groups I have participated in had about 10-12 people in them. There was also a moderator. The moderator would ask various questions while the rest of us spoke of our experiences, opinions, and thoughts. At the end of there sessions, which usually lasted between one to one and a…
  • Ringing in the new year...with Scleritis!

    8 Jan 2015 | 4:40 am
    So I did have an amazing new year. I pretty much rested on New Year's Day and prepared to go to work the following day. When I woke up, I felt a dull ache in my left eye. I thought perhaps I had slept with my watch on my eye and it was aching. So, as usual, I headed into the washroom to wash my hands and then to brush my teeth. Trust that I was shocked (and scared!) by what I saw in the mirror:What the hell?? What happened to my eye between me going to bed and me waking up in the morning!? There was a bit of water/tears, but no excessive "gunk" in my eye, so I don't think it's pink…
  • Holiday Season

    6 Jan 2015 | 2:07 pm
    This holiday season was just about family, friends, and having a good time. No stress, just smiles. Hope your holiday season was good to you too. 
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