In a step toward using human saliva to tell whether those stiff joints, memory lapses, and other telltale signs of aging are normal or red flags for disease, scientists are describing how the protein content of women's saliva change with advancing age. The discovery could lead to a simple, noninvasive test for better diagnosing and treating certain age-related diseases in women, they suggest in a report in ACS' Journal of Proteome Research, a monthly publication.
Lupus
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Lupus News From Medical News Today
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Saliva Proteins Change As Women Age
20 Nov 2009 | 12:00 am -
ImmuPharma PLC: Encouraging Final Phase IIb Results Seen With LUPUZOR™ In Systemic Lupus Erythematosus
19 Nov 2009 | 6:00 pmImmuPharma PLC (LSE:IMM) the specialist discovery and development pharmaceutical company is pleased to announce the final results from a Phase IIb trial of LUPUZOR™ in active patients with Systemic Lupus Erythematosus (SLE). Lupuzor™ administered at 200 mcg once-a-month for 3 months plus standard of care achieved a clinically significant improvement in patient response rate as measured by the combined score compared to placebo plus standard of care. -
Smokers With Common Autoimmune Disorder At Higher Risk For Skin Damage
4 Nov 2009 | 12:00 amAs if there weren't enough reasons to stop smoking, a team of researchers at the Research Institute of the McGill University Health Centre (RI-MUHC) have just found another. A study led by Dr. Christian A Pineau, Co-Director of the Lupus and Vasculitis clinic at the MUHC, has clearly linked skin damage and rashes to smoking in people with systemic lupus erythematosus (SLE). The study was published in a recent issue of the Journal of Rheumatology. -
Promise Of A New Lupus Treatment Is A Groundbreaking Achievement
3 Nov 2009 | 7:00 amHuman Genome Sciences (HGS) and GlaxoSmithKline (GSK) today announced positive results from BLISS-76, the second of two large-scale phase III clinical trials of BENLYSTA™ (belimumab) for treating systemic lupus. A full presentation of results from BLISS-52 was recently shared at the 73rd Annual Scientific meeting of the American College of Rheumatology. Both trials succeeded in meeting their primary endpoints, which should make BENLYSTA eligible for approval by the U.S. -
Lupus Research Institute: Benlysta(TM) Trial Results In An Historic Research Breakthrough And Victory For People With Lupus
3 Nov 2009 | 2:00 amThe Lupus Research Institute (LRI) and its National Coalition of state and local lupus organizations congratulate Human Genome Sciences (HGS) and GlaxoSmithKline for achieving an historical landmark - the second positive phase 3 clinical trial of Benlysta (belimumab), the first successfully tested new drug developed specifically for people with systemic lupus. "This is a pivotal moment in lupus research," said Margaret G.
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Lupus News
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Walk Raises $58,000 to Fight Lupus
20 Nov 2009 | 7:03 pmRICHMOND, Va. Pouring rain didn't discourage hundreds of walkers who came out recently to Richmond International Raceway to raise money and awareness for lupus patients. -
ND grad to talk on living with lupus
18 Nov 2009 | 3:45 pmSarah Gorman knew only one way to respond to being diagnosed with lupus in 2001 - that was to fight through the pain, the fatigue and the other symptoms of the chronic inflammatory disease. -
'Invisible disease' a challenge to manage
18 Nov 2009 | 7:39 amFor years, Nancy Ferris of Fredericksburg suffered from joint pain, fatigue and migraines, but neither she nor her doctors could pinpoint the cause. -
LFA's "Medication Adherence" Webchat to be Held Monday, November 23 at 3 p.m. Eastern
16 Nov 2009 | 7:25 amThe LFA welcomes Dr. Sam Lim, who will serve as the guest expert for the "Medication Adherence" webchat . -
Placebos' ability to cut pain real, experts say
15 Nov 2009 | 1:40 amPeople looking for natural cures will be happy to know there is one. Two words explain how it works: "I believe." It's the placebo effect - the ability of a dummy pill or a faked treatment to make people feel better, just because they expect that it will.
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Latest News from the Lupus Research Institute
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ImmuPharma PLC: Encouraging Final Phase IIb Results Seen with LUPUZOR(TM) in Systemic Lupus Erythematosus
19 Nov 2009 | 6:44 amGreatest Benefits Seen in Patients with Moderate to Severe Systemic Lupus Erythematosus LONDON, Nov 19, 2009 (BUSINESS WIRE) -- ImmuPharma PLC (LSE:IMM) the specialist discovery and development pharmaceutical company is pleased to announce today the final results from a Phase IIb trial of LUPUZOR(TM) in active patients with Systemic Lupus Erythematosus (SLE). Lupuzor(TM) administered at 200 mcg once-a-month for 3 months plus standard of care achieved a clinically significant improvement in patient response rate as measured by the combined score compared to placebo plus standard of care. read… -
Lupus Research Institute Mourns Loss of Young Male Athlete to Lupus
18 Nov 2009 | 11:39 amNebraska Pitcher, Jonathan Figueroa, Was 26 Years OldPhoto courtesy of Lincoln Saltdogs November 18, 2009 – Jonathan Figueroa, who pitched in the Los Angeles minor league system from 2002 to 2007 and most recently for Nebraska's "Lincoln Saltdogs" in the American Association of Independent Professional Baseball league, died from complications of systemic lupus on Sunday in Tampa, Florida. read more -
Human Genome Sciences and GlaxoSmithKline Announce Positive Results in Second of Two Phase 3 Trials of Benlysta™ in Lupus
2 Nov 2009 | 9:49 amBENLYSTA (belimumab) 10 mg/kg plus standard of care met its primary efficacy endpoint by achieving a statistically significant improvement in patient response rate versus placebo plus standard of care at Week 52 in BLISS-76 Primary efficacy endpoint met in two pivotal Phase 3 trials, as specified by Special Protocol Assessment agreement with FDA read more -
Benlysta™ trial results in an historic research breakthrough and victory for people with lupus
2 Nov 2009 | 3:47 amSecond successful phase III trial points to the first new lupus treatment in over 50 yearsNew York, NY (November 2, 2009) -- The Lupus Research Institute (LRI) and its National Coalition of state and local lupus organizations congratulate Human Genome Sciences (HGS) and GlaxoSmithKline for achieving an historical landmark - the second positive phase 3 clinical trial of Benlysta (belimumab), the first successfully tested new drug developed specifically for people with systemic lupus. read more -
Lupus Research Institute Earns A+ from American Institute of Philanthropy
30 Oct 2009 | 11:27 amOnly lupus organization designated a “Top Rated Charity” by national charity watchdogOf the over 500 charities rated by the American Institute of Philanthropy (AIP) this year, the Lupus Research Institute (LRI) is the nation’s only lupus organization to meet the stringent standards for financial efficiency and accountability and win a spot on the “Top Rated Charity” list. The fiercely independent and nonprofit AIP helps donors make informed giving decisions. read more
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lupus - Google News
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Salvation Army Kettle event Sunday - Iowa City Press Citizen
21 Nov 2009 | 1:23 amSalvation Army Kettle event SundayIowa City Press CitizenA benefit dinner for Nico Kadimoke, a 2005 City High graduate suffering from lupus, will be from 11 am to 5 pm Sunday at the Iowa City Eagles Club, and more » -
Lites: Kyle Marcelli 2009 season review - Motorsport.com
20 Nov 2009 | 11:38 pmLites: Kyle Marcelli 2009 season reviewMotorsport.comEach year Kyle gets involved locally with the Lupus Flare Foundation and the annual Lupus Grand Prix, organized by Bill Bryan, a regional racing official -
Walk Raises $58000 to Fight Lupus - GroundReport
20 Nov 2009 | 1:56 pmWalk Raises $58000 to Fight LupusGroundReportPouring rain didn't discourage hundreds of walkers who came out recently to Richmond International Raceway to raise money and awareness for lupus patients. Lupus Foundation of America Web Chat to Focus on Medication AdherencePR-Inside.com (Pressemitteilung)all 5 news articles » -
Brad Gooch Extended Interview - PBS
20 Nov 2009 | 12:40 pmPBSBrad Gooch Extended InterviewPBSHer father died of lupus, which she developed later in life herself when she was 15 years old, and there's one kind of unpublished journal that she kept Flannery O'ConnorPBSRalph Wood Extended InterviewPBSall 7 news articles » -
MIDLER v. CRANE - Leagle, Inc.
20 Nov 2009 | 11:07 amMIDLER v. CRANELeagle, Inc.When it involves the kidneys, it is termed lupus nephritis. According to the ACR, a person must have 4 of the 11 criteria before a definitive diagnosis of
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ButYouDontLookSick.com
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Photo Essay: Americans with Disabilities Act: Accessibility for ALL
13 Nov 2009 | 9:46 amIn 1990 the Federal Government passed a law called the Americans with Disabilities Act. The Act essentially “forced” any business that dealt with the public, to provide that public access to be able to purchase their product. The understanding of the law is that once you start sell something to the public is means all the public. Common interpretation calls this as being wheel chair accessible, and that’s the most obvious. But the law also provides for people who have challenges walking, talking, and seeing and so on. In short, if the business expects to make money off the public, than… -
Product Reviews: Wine and Beer Accessories for Those with Weak Hands
12 Nov 2009 | 4:48 pmFor special occasions it's nice to open a bottle of wine, sit back with friends, relax and celebrate. The only problem is when you can't open the wine or spill the wine when you pour it, and then can't seem to balance the wine glasses and your plate. Sounds like a mess! Well our friends at Prodyne.com have found us some party solutions once again. Click to read more ... -
The Blessings of Chronic Illness
12 Nov 2009 | 3:53 pmAt the time of this writing, it is a few weeks before Thanksgiving in the US. Each day, I must fight an overwhelming array of symptoms caused by Sjogren's syndrome, fibromyalgia, chronic myofascial pain, hypothyroidism, diabetes, celiac disease, gastroparesis and periodic limb movement disorder. I am learning to cope with new medication that is fraught with unpleasant side effects. I am in the midst of the disability application process and have no income. And yet, I know that I am blessed, without question. How can this be? Click to read more ... -
Christine Miserandino was featured as part of the "Fortune 52" in The Long Island Press
7 Nov 2009 | 8:37 pmThe Fortune 52 weekly column in The Long Island Press written by Associate Publisher, Beverly Fortune, honors local women who lead multiple lives, making significant and unique contributions in their community or workplace: women from all walks of life. The lives and work of these women who inspire by their example are honored in print and online at www.fortune52.com. Every calendar quarter Beverly hosts an extraordinary, invitation-only networking gathering to celebrate the women of Fortune 52.This newspaper is a very popular regional newspaper and website for Long Island, NY. -
Manny's Spoon Presentation
3 Nov 2009 | 9:38 pmI often receive requests to reprint The Spoon Theory in educational material, support group hand-outs, and health related newsletters. Recently, one request really grabbed my attention. A group of friends decided to honor a co-worker, recently diagnosed with cancer, by presenting him with a printed copy of The Spoon Theory, along with an engraved spoon. Today, I was honored to receive a video of the presentation, and would like to share it with all of you. Click to read more ...
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On the Road to a Lupus Cure
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Store Spotlight: "The Right Moves for Lupus Fitness" DVD
20 Nov 2009 | 5:07 amIf lupus has you on the sidelines rather than in the middle of the action, this new low-impact exercise program, designed specifically for people with lupus, may be "just right" for you.Guided by a licensed A.C.E. instructor who also has lupus, this DVD offers a gentle fitness routine that you can practice in the comfort of your own home. The goal is not to become a super model but to get moving -- and to improve your well-being in the process.Buy the exercise DVD. -
LFA Releases Video Series on the Latest Lupus Research
19 Nov 2009 | 6:22 amThe Lupus Foundation of America (LFA) joined more than 11,000 rheumatologists and allied health professionals at the American College of Rheumatology's (ACR) 2009 Annual Scientific Meeting in Philadelphia, Pennsylvania in mid-October. The program included more than 260 abstracts, plenary or special session presentations specifically about lupus.Representatives of the LFA attended the meeting to report on new developments in basic, clinical, translational, and epidemiological research on lupus. More than 20 key lupus researchers and scientists sat down with LFA officials to talk about the… -
LFA's "Medication Adherence" Webchat to be Held Monday, November 23 at 3 p.m. Eastern
16 Nov 2009 | 4:51 amReminder -- the Lupus Foundation of America's webchat is next Monday afternoon, November 23, at 3 p.m. Eastern Time.The LFA welcomes Dr. Sam Lim, who will serve as the guest expert for the "Medication Adherence" webchat.This is your opportunity to ask questions and learn from an expert. Dr. Lim is Assistant Professor of Medicine at Emory University School of Medicine in Atlanta, Georgia and Chief of Rheumatology at Grady Health Systems. He heads two large lupus clinics and is involved in several federal, state, and privately funded projects, including the CDC-funded Georgia Lupus Registry… -
Could I Have Lupus? Awareness Campaign is # 1 for Outdoor Donated Media Dollars in Q2 2009!
13 Nov 2009 | 12:52 pmWe are excited to share with you the final donated and earned media results for Q2 2009 for the Could I Have Lupus? Awareness campaign.The campaign received $9,311,000 in total donated media support and $597,800 in earned media support (public relations) in Q2 2009.To put these numbers into context, the average Ad Council campaign receives an estimated 7 million dollars in donated media per quarter, so this campaign is skewing above average with our total donated media dollars.Also we are pleased to report that this campaign ranked in the top ten of 50 Ad Council campaigns in Q2 2009 in a few… -
Save the Date: LFA's Lupus Advocacy Day on Capitol Hill to be Held March 15-16, 2010
13 Nov 2009 | 4:39 amThe LFA Annual Advocacy Day provides lupus advocates from across the nation the opportunity to participate in meetings with their U.S. Senators and Representatives to educate policy makers on lupus and discuss public policies that affect people with lupus.L’Enfant Plaza Hotel, in downtown Washington DC, will be our headquarters hotel. More details will be coming soon.
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lupus « WordPress.com Tag Feed
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this happened.
20 Nov 2009 | 10:16 amphotography courtesy of Gabriella Maria Basile < her tumblr – check it. ————— walk for those who suffer and died from lupus; be aware educate yourself; click here. -
Ouchies
19 Nov 2009 | 8:24 pmMy days and nights are all mixed up. I went to bed about 6 this morning and woke up at noon because someone was at my door. Then soon after, my health aide came to help. Not long after she left, the mechanic drove my van here and I drove him back to his shop. Next…to the food shelf. Two guys from my church were there and they followed me home and brought my food in for me! Mary Lou found me outside, then Beth and Luc came to visit. It was dark out by the time I got to sit down at the computer and try to catch up with things. This is a new one….not only are my knees swollen, but… -
How much longer can I survive?
19 Nov 2009 | 7:29 pmBefore anything else is said I want to make it EXTREMELY clear I am not suicidal. I want to live. There are some parts of my life that are very difficult, and which make it hard to live a full life, but overall I’d call my life pretty good. I have some very awesome parts in my life as well, and most of it is just… normal. I do get caught up in all the health stuff all too often, but it also takes up a huge amount of my energy. I have love and goals and dreams and friends and a lot of wonderful parts of my life. I also promised E he’s stuck with me for the rest of his life,… -
The Death of (Me while Wearing) Platform Shoes
19 Nov 2009 | 9:23 amI don’t own any platforms myself. As I am nearly 6 feet tall, I find the extra three inches of wood/plastic/resin excessive and a sure fire way to terrify people. Once, when walking down the streets of New York, a man who was most likely drunk screamed at me, “Damn, girl! You big! You part of the WNBA or something?” I was wearing flats. I am currently waiting to get my hair and makeup down after a solid hour of rehearsing for Versace. Within that hour, I fell two times. Ate shit. Fell forward completely. Red knees. The works. I am sitting on the floor because this… -
And the verdict is?
18 Nov 2009 | 9:19 pmAs I mentioned in the last post, I went to my neurologist on Monday. Good news: EEG is normal MRI is normal Metabolic blood work is normal. The red flag? My ANA titer was high. Click on the link for a wiki to what that means, because even I don’t understand it enough to explain it to you guys. Basically I have an elevated number of antibodies in my body, and supposedly since there are so many, they are producing autoantibodies which are attacking them, causing some kind of auto immune disease. I have an appointment with a Rheumatologist on Dec 1st and that’s basically my next…
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About.com Lupus
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New lupus drug Benlysta passes second clinical trial
4 Nov 2009 | 5:10 amThe LA Times is reporting that Benlysta, a new drug designed to treat lupus, has passed an important second clinical trial. The drug's maker, Human Genome Sciences, plans to apply for FDA approval next year. If approved, Benlysta will be the first new treatment for lupus in 50 years. In the clinical trial, 43.2% of patients who took Benlysta in addition to their usual treatment saw their symptoms reduced, compared to 33.8% of people on a placebo.New lupus drug Benlysta passes second clinical trial originally appeared on About.com Lupus on Wednesday, November 4th, 2009 at 13:10:25.Permalink |… -
Riquent No Longer a Possibility
26 Feb 2009 | 8:51 amEarlier this month, La Jolla Pharmaceutical company halted the clinical trial of its possible lupus treatment drug Riquent. It was hoped the drug would stave off episodes of kidney inflammation caused by lupus. An independent monitoring board called use of the drug “futile” after reviewing preliminary trial data. No new drug for lupus has been approved in 50 years. There is just the smallest glimmer of hope, however, since La Jolla will have a chance to review the trial data and determine if its worth arguing against the monitoring board’s ruling. Among lupus patients, La Jolla was… -
What's Your Type?
15 Feb 2009 | 4:00 amToday we'd like to take a moment to welcome all of those women and men who have been newly diagnosed, or know someone who has been newly diagnosed, with lupus. Today we’re asking the question, what type of lupus do you have? And more importantly, did you know that there was more than one type? Lupus takes on several forms and can affect any part of the body, but it most commonly attacks the skin, joints, the heart, lungs, blood, kidneys and brain. So what are the various types? They are: Systemic Lupus Erythematosus Drug Induced Lupus Discoid Lupus Neonatal Lupus These are the most common… -
Just the FAQs
12 Feb 2009 | 4:00 amIf you’ve been newly diagnosed with lupus, or have lived with it for some time, you may have dozens of questions related to the disease. In an effort to collect as many of those questions as we can, provide some short answers, and then link to more in-depth information, we have launched this Frequently Asked Questions page. Here you will discover questions that have been asked, with a link to provided answers. If you have questions that are not covered in this document, please e-mail me at lupus.guide@about.com. We hope to add to this page regularly, and welcome any and all questions you… -
Research Studying Why Therapy Works for Some, Not Others
10 Feb 2009 | 2:52 pmInteresting news: new lupus research will focus on why some therapies work well for some people with lupus, but not others. The focus of the research study, from the University of Rochester Medical Center in Rochester, N.Y., is on B-cells. B-cells are considered “key combat-ready immune cells.” B-cells are also often responsible for manufacturing auto-antibodies. The research should also open up the way the immune system works and mechanisms behind lupus. Researchers are specifically looking at how bone marrow produces B-cells, and what quality control checkpoints it imposes to ensure…
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Chronic Chick Talk
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For the Love of Tennis
14 Nov 2009 | 8:59 pmWe learned to play tennis in our freshmen year of high school. At first I wasn’t sure I wanted any part of the sport. In time I did learn to enjoy the game. It was fun chasing the ball across the court to prevent my opponent from scoring a point. Before we actually played the game we learned about the history of tennis. I found the history boring at the time. Since I’ve got older I really love learning the history of places, things and people. In the physical education class we did a lot of essays which I despised at the time. In our free time in physical education I would chose… -
Lupus Butterfly Rash
14 Nov 2009 | 8:56 pmReally, I need to go to bed as I’m pretty tired, but have a habit of pushing myself to my limits. It’s been a busy day with my daughter going to tae kwon do and her volunteering at the library. Today, I did treat myself, I purchased some cosmetics. I bought 2 new lip sticks, cover girl foundation, and new black eyeliner pencil. I don’t wear the make up all the time, but helps hide the butterfly rash that appears across my cheeks and over the bridge of my nose. It doesn’t cover it completely, but it does help me feel a little better when I look in the mirror. It’s… -
Is It True 2009 is Almost Over?
8 Nov 2009 | 4:59 pmDid anyone realize we’ve almost said goodbye to 2009? You know what that means the holidays are right around the corner. My daughter is working on a list for her Christmas and her birthday. A lot of the things she wants involves some kind of bling bling or blinding colors. I usually buy her some kind of cosmetic jewelry for her birthday. One year I bought a box, filled it up all year full of cosmetic jewelry and pony tail holders. It was easier to shop when she was younger. -
Music Monday: Sheryl Crow-Love is Free
8 Nov 2009 | 4:05 pmFind more videos like this on www.truveo.com. Come join Music Monday and share your songs with us. One simple rule, leave ONLY the actual post link here. You can grab this code at LJL Please note these links are STRICTLY for Music Monday participants only. All others will be deleted without prejudice. Powered by MckLinky Click here to enter your link and view the entire list of entered links… PS: Because of spamming purposes, the linky will be closed on Thursday of each week at midnight, Malaysian Time. Thank you! -
Looking for Computer Files Away From Home
7 Nov 2009 | 4:57 pmHave you ever wanted to see one of your computer files when you’re away from home? I know I have more times then I can count on both hands. I’ve loved to write since I was a teenager and inspiration has no timing. Recently, I’ve really put my heart into writing a book. At times, I’ve found myself wanting to edit a chapter of my book at a friend’s house. If I could access the files at a friend’s house I could add or take away a chapter of my book without lugging my laptop around. The best ideas for my book come to me at the darnedest times when I don’t have my laptop with…
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Dancing With Butterflies
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I Got Lupus, But Lupus Doesn’t Have Me
9 Nov 2009 | 5:58 amIt’s been eight difficult years with Lupus and I used to say that I am waiting for a miracle, it is only on my recent birthday celebration that I finally realize that everyday of my life is already a miracle in itself. I know that I am blessed and it is by the grace of God that I am once again starting to recover from my longest flare ever… when almost everyone thought it was the end of the line for me, that finally lupus had won… lupus may have crippled and ruined my life, my dreams and probably my future but it didn’t destroy my spirit. I know in my heart that no… -
Healthier You
9 Nov 2009 | 5:52 amI don’t see anything wrong for women to wish for a beautiful body. Once you feel good about yourself, the confidence within you will bring out the best in all you can be but don’t overdo things… take it slow, losing weight is not an overnight practice and you must be patient enough to wait for your hard work. You must also take some weight loss supplements that can replace all the nutrients in your food once you start your diet. I wish you well and a healthier you, soon! -
Viewing Pleasures
9 Nov 2009 | 5:41 amWhen my mother celebrated her birthday last March, a few days before my first confinement. I was able to buy her a gift an LCD TV, our flat screen made our viewing really great. I honestly don’t want to buy that TV because it was too costly and I though it was impractical, but when our TV got busted out buying a TV came to mind and I don’t regret it because I can now have the luxury of watching my favorite shows and even movies with our LCD TV. -
This Is It
9 Nov 2009 | 5:13 amI really pray this could be it… the answer to all Lupus patient’s prayers! We are one giant step closer to the day we have been waiting for… No, we haven’t found a cure yet, but this is the next best thing. BENLYSTA has proven successful in its 2nd phase III clinical trial and should now be eligible for approval by the FDA. It seems that the developing companies, HGS and GSK, are hopeful that BENLYSTA will be made available in the 1st half of 2010! Details and additional info below… Be healthy and remain hopeful! This is great news! Best wishes, Jenny Randazzo… -
Losing Weight
9 Nov 2009 | 5:04 amI have to admit that losing all those fat made me feel more confident about myself and I actually like what I see in the mirror. I’ve been fat most of my life and it somehow made me feel insecure about myself and it was frustrating that I’ve tried almost everything just to lose weight but to with no success. I even thought of taking a weight loss diet pill to help me lose all the weight but I was too scared to try. I am thankful with my new body and I feel more healthier than ever.
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Despite Lupus
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New LFA Video on Lupus Treatments
20 Nov 2009 | 5:00 amThis is definitely worth watching...and here's the link for a few other videos the LFA just put together. Enjoy! -
May the force be with you
18 Nov 2009 | 5:00 amMy apologies for the belated Halloween pictures from Deirdre's 2nd annual spooky holiday. She, of course, was a big hit as Princess Leia...and her dad and I were in heaven walking her around the neighborhood. Darwin, or should I say, "Yoda", enjoyed the stroll as well. By the end of the evening, most of Deirdre's costume had been stripped away - the wig went first, then her belt, and next came the tunic. But isn't that the sign of a good night of trick or treating? -
Bittersweet: A tribute to Ursula Williams
16 Nov 2009 | 5:00 amMost of us have a handful of teachers or professors who have made a significant impact on us at one time or another during our academic careers. I certainly had a couple at Notre Dame, one of whom was none other than the wonderful, the fabulous, Mrs. Ursula Williams. I never took a class from Mrs. Williams, but she was my employer for three years during college, becoming a friend, a confidant, and a mentor. She ran the Language Resource Center (aka Language Lab) where I worked at ND, and boy, was it the greatest on-campus job in the world!She had this personality that made you want to come to… -
Passing the torch
13 Nov 2009 | 5:00 amIn the past, I've blogged about the fact that I can get a bit, shall we say, obsessive about uncovering the causes of my lupus symptoms. It's been awhile (thank goodness!) since I've experienced anything "unexplained" - like fevers, lip swellings, or hair loss - and even longer since I've been truly guilty of hyper-focusing...but when it used to happen, I would spend way too much time and effort trying to uncover the root cause of the symptom in question.But it seems to be a natural tendency to have when you're dealing with lupus. Since there are so many symptoms/side-effects of the disease,… -
I'm off to the Golden Dome!
11 Nov 2009 | 5:00 amDespite Lupus is hitting the road again - back to the cornfields of Indiana. Not for another hometown visit this time. Rather, I'll be touching down in lovely South Bend, IN, home of my alma mater, the University of Notre Dame.I'm so excited to be returning to campus. It's been a long time since I've been back - but the bookstore is welcoming me with open arms. They've stocked my book, open their doors for a book signing, and extended the welcome to include a "Meet and Greet" in the bookstore cafe immediately following the signing. I couldn't ask for more! Here are the details. If you're in…
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My Life Works Today!
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Making Connections (Part Two)
7 Nov 2009 | 9:34 amIn the last post , I spoke of how many of us constantly seek out information regarding our chronic illness believing that the more we know, the better we will be in managing our illnesses. Although being well-informed is a good thing, we can sometimes lose sight of a couple important things if we aren’t careful. One ‘thing’ is that, to truly learn, we must apply what information we take in. Secondly, our intuition has already been doing a great deal of evaluating and assessing for us that we can miss out on if we don’t listen. We have extraordinary resources these days… -
Making Connections (Part One)
5 Nov 2009 | 1:25 pm“My life has a great set of characters; I just haven’t figured out the plot.” ~Ashleigh Brilliant I recently had the opportunity to work with a client in a coaching capacity, unrelated to lupus. She called me to help her objectively evaluate what her priorities are and chunk them into an achievable action plan that she will follow through with. She actually knows everything she needs to… -
A Shot in the Dark
20 Oct 2009 | 10:10 amA friend of mine recently reacted to a pneumonia vaccination and that led me to confirm my decision to NOT get the H1N1 and flu vaccines this year. Her reaction may have less to do with her R.A. and Lupus than the incorrect administering of the shot itself (yeah, I guess there is a ‘right way’ and a ‘wrong way’ to give someone a shot!) I have two teenage daughters in high school and I’m expecting any day now to be confronted with the virus. I consider myself pretty healthy overall and have no respiration involvement with my lupus, so I may not even qualify as a ‘high risk’… -
World Arthritis Day 2009!
12 Oct 2009 | 11:21 amNothing brings home the challenges of stiff, achy joints and limited mobility quite like the dampness of a good Oregon winter. We’ve been fortunate here so far in not stepping into that season full boar yet, but we know it’s coming. Today, awareness is upon those daily challenges for people living with osteoarthritis and all the other forms of arthritis as it applies to their experiences in the workplace. There are a number of bloggers (one fav is Rheumatoid Arthritis Guy ) and other resources speaking on this topic, offering insight, tips, information and additional resources that… -
North, to Seattle…go north, the walk is on!
6 Oct 2009 | 1:37 pmA quick note for all of you who will be in the Seattle area on October 17th : The LFA Pacific NW Chapter will be hosting their annual Mad Hatter Walk N Roll for Lupus event on that day atMagnuson Park at Sandpoint Way. Step out to join your community – both the lupus community as well as your Seattle one – and present lupus with energy and fun, something we know there is usually so little of in our daily lives. Get your families involved, even if you didn’t raise funds (which doesn’t have to be much and does help our PNW). The more we are present, the better our ‘present’…
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The Life of a 20-Something With Lupus
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Dialysis supplies room!
17 Nov 2009 | 6:06 pmHere are some before pictures of what my dialysis supplies room looks like, prior to getting it as organized as I would like. I'm just happy that all of the boxes are actually in the room as opposed to sitting on the floor in the middke of the dining room! Take note that I uploaded these pics from my Blackberry so I apologize if they are not top notch, but I think they get the point across.Also included are a few pictures of good ol' B-16- Formula Home Care System!Hello, Mr. B-16! I call hin that because right above that blue box that says formula, there is another, smaller blue tag that says… -
How to not be discreet.
16 Nov 2009 | 11:21 amI'm currently on the subway on my way to school when a man started making these strange noises as he exited the train! It sounded as if he was saying "talk, talk, talk, talk, talk...". I though he was referring to a group of college students, also on the bus, who were chatting to each other. When I turned around and looked at him more closely, I saw that he had something up to his face which was is a white bag. "Booze, no doubt" I thought. It wasn't until the overwhelming stench of glue, or maybe paint thinner, smacked me in the face. Was that guy huffing chemicals… -
Break between studying
15 Nov 2009 | 3:54 pmI am studying for a multiple choice quiz in my Training and Development class on Tuesday morning. It is multiple choice and is worth 5%. The last one I got a B or something. I'm shooting for the stars this time.Last night was a late night. I went to my friend's uncle's house where she was holding her birthday party. Man was the house beautiful. I didn't know that houses like that existed in that area. Something to strive for i guess!The party included great games, great conversation, and tons of catching up. We played guitar hero and other Wii games. There was one Mario game where you choose… -
H1N1 Vaccine
13 Nov 2009 | 7:47 pmI got a call from one of the nurses from my home diaysis unit today. She told me that they have finally received the H1N1 Vaccine and will be administering it starting next week. I made my appointment to get the shot on Thursday.Has anyone else gotten the Vaccine yet? -
Not Sweating the Small Stuff
11 Nov 2009 | 6:34 pmI was thinking about the conversation my father and I had a few days ago when he was driving me to work. Amongst other things, he was basically saying that everyone in the world has some sort of problem. Some have "bigger" problems, while others may not have anything that they see as a problem currently, but they have had problems in the past or will in the future.When I go about my business at school and such, it kind of makes me sad to see the problems (unneccesary ones) that people put themselves through. People that I've grown to really like and that I look up to in terms of their work…
