Lupus

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  • Preventive Care Strategies, Living with Lupus

    Latest News from the S.L.E. Lupus Foundation
    kristen
    20 Feb 2015 | 8:36 am
    Join the S.L.E. Lupus Foundation and Lupus Cooperative of New York for a discussion with special guest speaker, Dr. Bella Fradlis. Dr. Fradlis is an attending rheumatologist who divides her time between Jacobi and Montefiore hospitals, treating a variety of systematic rheumatologic conditions. She will discuss strategies which may prevent or delay onset of the complications that may arise from the flare of SLE. When: Friday, February 27, 2015 from 12:30 p.m. to 2:00 p.m. read more
  • Enough said!

    Despite Lupus
    28 Feb 2015 | 2:21 pm
  • New views of enzyme structures offer insights into metabolism of cholesterol, other lipids

    Lupus News From Medical News Today
    4 Mar 2015 | 1:00 am
    With the aid of X-ray crystallography, researchers at the University of Michigan have revealed the structures of two closely related enzymes that play essential roles in the body's ability to...
  • Aurinia Pharmaceuticals to Present at Cowen and Company 35th Annual Health Care Conference

    Lupus News
    26 Feb 2015 | 3:52 pm
    The conference will take place at the Boston Marriott Copley Place Hotel in Boston, MA. A live audio webcast and archive of the event will be available at: http://wsw.com/webcast/cowen22/auph To ensure a timely connection to the webcast, it is recommended that users register at least 15 minutes prior to the scheduled start time.
  • Man & Machine Introduces the New Closed-deck Keyboard that Loves to be Washed

    Lupus News
    3 Mar 2015 | 12:41 pm
    Manufacture of Medical Grade keyboards & mice announces the L Cool, the advanced keyboard for budget minded hospitals. LANDOVER, MD, USA, March 3, 2015 /EINPresswire.com/ -- In a quest to develop a low cost, easily cleanable, closed platform keyboard …
 
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    Lupus News

  • Aurinia Pharmaceuticals to Present at Cowen and Company 35th Annual Health Care Conference

    26 Feb 2015 | 3:52 pm
    The conference will take place at the Boston Marriott Copley Place Hotel in Boston, MA. A live audio webcast and archive of the event will be available at: http://wsw.com/webcast/cowen22/auph To ensure a timely connection to the webcast, it is recommended that users register at least 15 minutes prior to the scheduled start time.
  • Drugs That Regulate Metabolism May Treat Lupus

    19 Feb 2015 | 6:26 am
    In a patient with the autoimmune disease lupus, immune cells attack the body's own tissues as if they were an invading pathogen. This can lead to damage to the skin, joints, kidneys, and even the brain.
  • Knowing more about Lupus

    15 Feb 2015 | 8:30 pm
    This is a chronic disease that affects various parts of your body. What is essentially happening is your body's immune system that is generally responsible for fighting off disease, starts attacking your own body tissue.
  • Diabetes drug shows promise treating lupus - U.S. researchers

    11 Feb 2015 | 2:15 pm
    A common diabetes drug could be part of a two-pronged treatment to reverse the effects of lupus, a chronic autoimmune disease harmful to body tissue that often causes pain and extreme fatigue, researchers reported on Wednesday. University of Florida researchers reported findings from a two-year study using the diabetes drug metformin in mice and human blood cells in a laboratory setting in the journal Science Translational Medicine.
  • Researchers Say Lupus Treatment Shows Early Promise

    11 Feb 2015 | 2:15 pm
    A new treatment that may reverse the effects of the most common type of lupus has shown promising results after undergoing early testing by a team of researchers at University of Florida Health. The findings of a two-year study that used human cells and mouse models were published Feb. 11 in the journal Science Translational Medicine.
 
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    lupus - Google News

  • Lupus: Hospitalizations for Infections Continue to Rise - MedPage Today

    4 Mar 2015 | 1:49 pm
    Lupus: Hospitalizations for Infections Continue to RiseMedPage TodayThe rate of hospitalization for serious infections among patients with systemic lupus erythematosus (SLE) has been on the rise in recent decades, and has increased to a greater extent than for individuals without SLE, a national study found. In 1996 and more »
  • UAB study to examine computer-based decision aids to help in lupus therapy - UAB News

    4 Mar 2015 | 1:26 pm
    UAB NewsUAB study to examine computer-based decision aids to help in lupus therapyUAB NewsJasvinder Singh s Jasvinder SinghResearchers at the University of Alabama at Birmingham are enrolling patients for a study designed to help minority women with lupus nephritis make informed decisions on their treatment. The study is funded by the ...
  • Value of Repeat Biopsy in Lupus Nephritis Flares - Medscape

    3 Mar 2015 | 3:20 pm
    Value of Repeat Biopsy in Lupus Nephritis FlaresMedscapeObjectives Renal flares are common in lupus nephritis (LN), and class switch is thought to be characteristic. There is no agreement on indications for performing a repeat renal biopsy. Our objective was to retrospectively review patients who had more
  • Group promotes Lupus awareness with scholarships - Aiken Standard

    1 Mar 2015 | 5:40 pm
    Group promotes Lupus awareness with scholarshipsAiken StandardA local group is combining its fight against Lupus with its support of education by offering scholarship and endowment opportunities to local students and residents. Crowning Lupus – an organization that looks to spread awareness about Lupus through ...
  • Drugs for Metabolism Could Reverse Lupus - Scientific American

    26 Feb 2015 | 5:44 am
    Scientific AmericanDrugs for Metabolism Could Reverse LupusScientific AmericanIn a patient with the autoimmune disease lupus, immune cells attack the body's own tissues as if they were an invading pathogen. This can lead to damage to the skin, joints, kidneys, and even the brain. Now a team of immunologists reports that some of
 
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    WordPress Tag: Lupus

  • What They Don't Tell You, But You Need To Know (AKA: The Golden Rules of Badassing.)

    laylay28
    24 Feb 2015 | 10:12 pm
    I call it the moment. I’m sitting perched on an examining table, looking super fly in my cute little paper hospital gown. The doctor looks at me with that look only doctors can do, that impossible mix of being bored to tears and mildly sympathetic. In a monotonous voice, without so much as a glance from her notepad, she says “i’m so sorry dear, you have lupus. *insert disease of choice here.*” she then pats my arm, glances at the clock, and writes me a little prescription. Once that’s done, she proceeds to automatically give me the rundown in that…
  • Whew!!! Catching Up

    Walkingthroughpain
    24 Feb 2015 | 8:15 pm
    Wow!! So much has happened since I last wrote!! The good news is I can say I am officially a Dr.! Woohoo! 12 years of education has finally come to a close. It feels good…no it feels great. It feels great that despite RAA, despite Lupus, and despite all the pain of Fibromyalgia (these three combined)…I still finished my doctorate. I consider that a major major feat! I am loving loving my new business (well not sooo new now). I am enjoying the mentoring and mostly having something positive in my life. It isn’t often that I can say I enjoy my “work.” I think mostly…
  • Awards and Progress

    Chevron Spots
    24 Feb 2015 | 7:28 pm
    I have been madly running around in a rather uncoordinated fashion lately. I’m not one who lik
  • Indiscretions on Credit

    Tala
    24 Feb 2015 | 6:58 pm
    I like to quote a scene from Tombstone when it comes to this topic. “Doc.. you oughta be in bed, what the hell you doin’ this for anyway?” “Wyatt Earp is my friend.” “Hell, I got lots o’ friends.” “I don’t.” There you have it.  I don’t. If you’re really my Friend, you know about it.  We’re close.  We talk about important things, and feelings, and the difficulties of the day.  Don’t misunderstand me on this… I’m acknowledging there are levels of friendship.  I have what I would consider…
  • I Spoke Too Soon!!

    sundreemz
    24 Feb 2015 | 5:08 pm
        Well, a few hours after I posted my blog this morning about the Benlsta treatment yesterday, I got a call from the infusion nurse. She wanted me to be at the office at 230pm today for treatment. So of course I dropped everything and went in.   I was early by a few minutes when I got there. No one can tell me why I was not called yesterday to get the treatment, but that’s yesterday’s news. I was there today. A fresh start. A fresh attitude.   When it came time finally start the infusion, the nurse was running 45 minutes behind. She started an IV line (which…
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    www.emmyrose.com

  • A Brief Rundown of Golf Equipment

    Elsie Bush
    5 Feb 2015 | 9:21 pm
    People who want to start playing golf better introduce themselves to the golf equipment that they are going to use when they start playing the sport. Golf is a very old sport that had very humble origins. Back then the sport did not require a lot of equipment to play. Golf nowadays is a lot more complicated than it used to be. There are so many pieces of golfing equipment that people might get intimidated by it. Indeed, the different number of equipment that golfers use nowadays to help improve their game is tremendous. However, beginners do not have to get themselves bogged down in the…
  • Essential Information to Check on HRCI Certified Programs

    Frank Hosier
    3 Feb 2015 | 3:57 am
    People wishing to advance their HR careers take HRCI certified programs to gain titles and validate their HR operations knowledge. Finding these programs is now easy through the internet. But in order to find the right programs, clients should learn more about each offered course. Program Overview This describes the rationale behind the program. For instance, some programs stress the role of trust in an organization in leading projects and improving work relationships. Each program targets one or two essential traits or HR practices that will be enhanced through guides. Aside from the main…
  • Logo Lanyards for Professionals

    Jean Brown
    16 Jan 2015 | 2:34 am
    Lanyards are popular nowadays, especially among the youth. Students use them as ID straps or mobile phone straps, and lanyards are sometimes given away as souvenirs, but did you know that even professionals can make use of lanyards? Logo lanyards can be used as ID straps in the workplace. With the appropriate width, style and design, they can look professional and they need not look “loud”. Lanyards can also be used in conferences or conventions. Not only do they serve as identification—they become part of the ‘credentials’ along with the certificate of participation and can also…
  • How Challenge Coins are Made

    Karen Cruz
    3 Jan 2015 | 12:01 am
    Challenge coins come in a variety of shapes, sizes, finishes and designs which could overwhelm anyone looking to get coins produced. But in order to figure out what custom options one should opt for, it would be best to first understand how challenge coins are made. The first step is the designing stage. At this point, design ideas from the customer would be developed and refined. The artwork can furnished by the customer himself or it can be done by artists from the manufacturer. The layout can be in any format. Even pencil sketches can be turned into a usable design for a coin. However,…
  • 4 Issues That SEO Companies Will Usually Have To Overcome In Marketing

    Joan Atkins
    2 Jan 2015 | 10:36 pm
    Right now there are a lot of different ideas floating around about what search engine optimization is, and what it isn’t. You may see that a lot of chatter happens in this regard, and it can become a serious issue when you launch a site and you want to hire someone to help you build on the right marketing collateral. For the most part, there are things that you can do to gain leverage online, but you will need to work within the parameters of what SEO Companies are dealing with, and not the conjecture that many bloggers are dealing with. Even though you may hire a professional, there are…
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    Despite Lupus

  • Empowering words to get me through Lent. Easter Sunday, here I come!

    4 Mar 2015 | 4:00 am
    Wednesday, February 18th marked the the beginning of Lent, which is the forty day period before Easter. During the Lenten season, it's customary to make some small sacrifice in order to prepare youself for Easter. Typically, people choose to give something up, like a bad habit, or they take on a good habit, like volunteering.I am no stranger to the Lenten resolution. Over the past 35 years or so, I've given up everything from M&M's or ice cream, to not being scared of the dark. I've taken on charity projects, worked on my temper, or added a weekday mass to my schedule. But there's one…
  • Enough said!

    28 Feb 2015 | 2:21 pm
  • Despite Lupus Radio Interview on Conversations in Care

    25 Feb 2015 | 10:42 am
    Thanks goes out to Tami Neumann at Conversations in Care for a great interview this morning! I thoroughly enjoyed being on the show - and look forward to the next opportunity to chat. Great questions, great host. Would love to do it again!You can listen to the interview below, or follow this link. We touched on some great issues - asking for help, managing the doctor/patient relationship, and dealing with the loss of control after a chronic illness diagnosis. It's all in there - a packed 30-minute interview! Check Out Health Podcasts at Blog Talk Radio with Conversations In Care on…
  • Despite Lupus hits the airwaves again...with Conversations in Care this Wednesday!

    23 Feb 2015 | 4:00 am
    Be sure to tune in this Wednesday, February 25th, at 10am as Despite Lupus joins host Tami Newmann on her award-nominated radio show, Conversations in Care. I'm looking forward to talking with Tami, and covering all things lupus, chronic illness, and beyond. She broadcasts from CST time zone, so note that the show runs at 9am CST/10am EST.Here's all the information you should need. Feel free to call in and ask your questions. We'd love to hear from you! WHEN IS THE SHOW?: The show airs live at 10 AM EST on Wednesday, February 25th. HOW CAN I TUNE IN?:…
  • Shortage of my favorite Hydroxychloroquine, brand name of Plaquenil?

    20 Feb 2015 | 4:00 am
    I recently heard about a possible Hydroxychloroquine (Plaquenil) drug shortage, and thought I'd post.First and foremost, please don't panic. I know that Hydroxycholoroquine is typically a lupus staple, and many of us (and our doctors) don't know what we'd do without the drug. I just wanted to poll the readership to see if any of you have been affected, and whether some areas of the country are having more difficulty than others. I just refilled my 3-month prescription in January, with no trouble. Hopefully, the issue will resolve itself soon!Feel free to email or comment if you've experienced…
 
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    The Life of a 20-Something With Lupus

  • Focus groups!

    20 Feb 2015 | 1:26 pm
    On a couple of occasions, I've received phone calls from various market research firms asking me if I wanted to participate in a focus group. Ive been to 3 in total. The topics varied-one was about a new food product that was soon to be released, another about ads for a new travel agent. Various things. Each of the groups I have participated in had about 10-12 people in them. There was also a moderator. The moderator would ask various questions while the rest of us spoke of our experiences, opinions, and thoughts. At the end of there sessions, which usually lasted between one to one and a…
  • Ringing in the new year...with Scleritis!

    8 Jan 2015 | 4:40 am
    So I did have an amazing new year. I pretty much rested on New Year's Day and prepared to go to work the following day. When I woke up, I felt a dull ache in my left eye. I thought perhaps I had slept with my watch on my eye and it was aching. So, as usual, I headed into the washroom to wash my hands and then to brush my teeth. Trust that I was shocked (and scared!) by what I saw in the mirror:What the hell?? What happened to my eye between me going to bed and me waking up in the morning!? There was a bit of water/tears, but no excessive "gunk" in my eye, so I don't think it's pink…
  • Holiday Season

    6 Jan 2015 | 2:07 pm
    This holiday season was just about family, friends, and having a good time. No stress, just smiles. Hope your holiday season was good to you too. 
  • Crazy Few Months

    18 Dec 2014 | 4:50 pm
    The tears haven't stopped, but they flow less frequently. The hurting hasn't stopped, but I'm managing to find joy in things all over again. I love to write-I love to blog. And when something happens in my life that is so...strong that it takes me to a point where I don't feel like doing things I love...I dunno how to explain it. It's just amazing and terrifying how you're so sad, so hurt, that you don't even want to ATTEMPT to find joy in things. I had gotten to a point where I felt so overwhelmed, so hopeless. And the thing is...whenever something negative happens in my life, I…
  • I Get By With A Litle Help from my Friends

    12 Oct 2014 | 12:50 pm
    It's a good thing to talk. Talk about stuff.I go back and forth when it comes to the above statement. Sometimes...I don't want to talk about stuff, because I know, mid story, it'll make my cry. At the same time, if I don't, the tears that need to be "cried" simply remain inside. That's not good either.This weekend was one of catching up with friends-good ones.On Friday evening, it was date night with my close friend and confidant, Mikey. Mikey and I have known each other and immediately connected as friends soon after we met each other back at our first job in a ritzy Italian grocery store.
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