Lupus

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  • LRI 2014 Forum for Discovery Shares Inspiring Research Progress

    Latest News from the S.L.E. Lupus Foundation
    kristen
    23 Oct 2014 | 12:36 pm
    A Picture of Intense Passion and Commitment This is what excitement looks like when 150 of the world’s top scientists focus all their intensity, concentration and talent on improving lupus treatment as they share their results, learnings and insights for two full days at the Lupus Research Institute’s 2014 Forum for Discovery. read more
  • Study suggests altering gut bacteria might mitigate lupus

    Lupus News From Medical News Today
    22 Oct 2014 | 12:00 am
    Lactobacillus species, commonly seen in yogurt cultures, correlate, in the guts of mouse models, with mitigation of lupus symptoms, while Lachnospiraceae, a type of Clostridia, correlate with...
  • Viewpoint: Fred Upton fights for Michigan's most vulnerable

    Lupus News
    30 Oct 2014 | 8:56 am
    Frank Mortl III Lupus may afflict even more Americans than previously imagined. According to a new study from the University of Michigan, official projections underestimate the number of people suffering from the disorder by about 200 percent.
  • Tate Publishing and Author Mel Riebe Talk Book Deal for 2014!

    Lupus News
    30 Oct 2014 | 3:49 pm
    Baltimore, MD - Tate Publishing would be honored to work with author Mel Reibe as he shares his personal testimony about living with epilepsy. BALTIMORE, MD, USA, October 30, 2014 /EINPresswire.com/ -- Director of Book Acquisitions, Stacy Baker said, “ …
  • LRI Among Largest Private Lupus Research Funders, Finds ACR Analysis

    Latest News from the S.L.E. Lupus Foundation
    kristen
    30 Oct 2014 | 10:33 am
    The Lupus Research Institute (LRI) is proud to be recognized as one of the largest private funders of lupus research in a new study conducted by the Rheumatology Research Foundation for the American College of Rheumatology. The LRI and our founding organization, the S.L.E. read more
 
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    Lupus News

  • Viewpoint: Fred Upton fights for Michigan's most vulnerable

    30 Oct 2014 | 8:56 am
    Frank Mortl III Lupus may afflict even more Americans than previously imagined. According to a new study from the University of Michigan, official projections underestimate the number of people suffering from the disorder by about 200 percent.
  • Belimumab for Systemic Lupus Erythematosus

    30 Oct 2014 | 5:01 am
    Foreword This Journal feature begins with a case vignette that includes a therapeutic recommendation. A discussion of the clinical problem and the mechanism of benefit of this form of therapy follows.
  • U.S. Department of Defense Announces $3.4 Million to Support Lupus Research

    29 Oct 2014 | 9:42 am
    Three grants totaling $3.4 million have been awarded by the U.S. Department of Defense for lupus research through the DOD's Congressionally Directed Peer Review Medical Research Program. The Lupus Foundation of America was instrumental in having lupus included among the diseases eligible for funding beginning in 2005 and has ensured its inclusion every year since.
  • One Lupus Patient's Extraordinary Recovery

    23 Oct 2014 | 10:57 am
    Doctors at Loyola University Medical Center say Lauren Bank suffered one of the worst lupus attacks they had ever seen. Lupus is an autoimmune disease in which a patient's immune system attacks normal tissue.
  • Award-winning Irish band will perform Friday in Cuyahoga Valley...

    23 Oct 2014 | 6:55 am
    Socks in the Frying Pan , a new but award-winning Irish band, will perform Friday in Cuyahoga Valley National Park . The concert will be at Happy Days Lodge, 500 West Streetsboro Street, in Peninsula.
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    Lupus News

  • Tate Publishing and Author Mel Riebe Talk Book Deal for 2014!

    30 Oct 2014 | 3:49 pm
    Baltimore, MD - Tate Publishing would be honored to work with author Mel Reibe as he shares his personal testimony about living with epilepsy. BALTIMORE, MD, USA, October 30, 2014 /EINPresswire.com/ -- Director of Book Acquisitions, Stacy Baker said, “ …
  • My Identity Doctor Now Supports Lupus Erythematosus Awareness Month by Helping Lupus Patients with Their Medical Bracelets

    30 Oct 2014 | 10:40 am
    … known as SLE or simply lupus. Lupus Erythematosus is that disease which … . National Lupus Erythematosus Awareness Month is observed and World Lupus Day is … Lupus Erythematosus Awareness month by helping patients who are suffering from lupus. They can create a professional medical bracelet for Lupus Erythematosus …
  • Duchenne muscular dystrophy clinical trial results presented at RNA 2015

    30 Oct 2014 | 10:32 am
    RNA Therapeutics 2015 takes place on 16th & 17th February 2015 at the Marriott Regents Park Hotel, London UK LONDON, LONDON, UNITED KINGDOM, October 30, 2014 /EINPresswire.com/ -- RNA therapeutics hold immense promise for the treatment for a number …
  • Lupus Research Institute Awards $1-Million Grants to Discover What Causes Lupus

    30 Oct 2014 | 7:03 am
    … and clinical trials." About Lupus Lupus is a chronic, complex and … , and joints. About the Lupus Research Institute The Lupus Research Institute (LRI … Patient Coalition of regional lupus organizations, the Lupus Research Institute improves patient … Without Lupus. For more information, visit www.lupusresearchinstitute.org. SOURCE Lupus Research …
  • Awards $1-Million Grants to Discover What Causes Lupus

    30 Oct 2014 | 7:01 am
    … and clinical trials." About Lupus Lupus is a chronic, complex and … , and joints. About the Lupus Research Institute The Lupus Research Institute (LRI … Patient Coalition of regional lupus organizations, the Lupus Research Institute improves patient … Without Lupus. For more information, visit www.lupusresearchinstitute.org. SOURCE Lupus Research …
 
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    Latest News from the S.L.E. Lupus Foundation

  • LRI Among Largest Private Lupus Research Funders, Finds ACR Analysis

    kristen
    30 Oct 2014 | 10:33 am
    The Lupus Research Institute (LRI) is proud to be recognized as one of the largest private funders of lupus research in a new study conducted by the Rheumatology Research Foundation for the American College of Rheumatology. The LRI and our founding organization, the S.L.E. read more
  • Lupus Research Institute Awards $1-Million Grants to Discover What Causes Lupus

    kristen
    30 Oct 2014 | 6:26 am
    2014 Distinguished Innovators Awards Recruit Immunology Leaders into Lupus Field to Find Root Causes that Can Propel New Treatments and a Cure NEW YORK, NY – October 30, 2014. The Lupus Research Institute (LRI) announced recipients of its 2014 Distinguished Innovator Awards with three cutting-edge projects that tackle the underlying causes of the disease. The world’s largest private grants in novel lupus research, the LRI Distinguished Innovator Awards support major studies for up to $1 million that can advance the search for prevention, treatment and a cure. read more
  • LRI 2014 Forum for Discovery Shares Inspiring Research Progress

    kristen
    23 Oct 2014 | 12:36 pm
    A Picture of Intense Passion and Commitment This is what excitement looks like when 150 of the world’s top scientists focus all their intensity, concentration and talent on improving lupus treatment as they share their results, learnings and insights for two full days at the Lupus Research Institute’s 2014 Forum for Discovery. read more
  • Lupus Research Institute’s Team Life Without Lupus® Joins Alliance for Lupus Research in NYC Walk with Us to Cure Lupus

    kristen
    22 Oct 2014 | 9:39 am
    Helps Meet $1 Million Fundraising Goal for Lupus Research With over 100 supporters, LRI’s Team Life Without Lupus® proudly helped the Alliance for Lupus Research (ALR) meet an ambitious fundraising goal of $1 million for lupus research at the Walk with Us to Cure Lupus in New York City. 100% of funds raised by Team Life Without Lupus will go specifically to a joint LRI/ALR research initiative to accelerate new lupus treatments with the goal to speed the availability of better, safer treatments for lupus patients. read more
  • LRI Partners with American College of Rheumatology on Novel Pilot to Reduce Healthcare Disparities in Lupus

    kristen
    22 Oct 2014 | 6:59 am
    The Lupus Research Institute (LRI) will lead an innovative pilot program to enable front-line healthcare providers to better recognize, diagnose and treat lupus when faced with its vague symptoms and confounding complications. read more
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    lupus - Google News

  • Joel O. Christensen joins Board of the Lupus Foundation of America, Heartland ... - STLtoday.com

    30 Oct 2014 | 3:18 pm
    Joel O. Christensen joins Board of the Lupus Foundation of America, Heartland STLtoday.comThe Lupus Foundation of America is dedicated to improving the quality of life for all people affected by lupus through programs of research, education, support and advocacy. Lupus is a chronic autoimmune disease that can damage any part of the body.
  • Lupus Research Institute Awards $1-Million Grants to Discover What Causes ... - PR Newswire (press release)

    30 Oct 2014 | 6:58 am
    Lupus Research Institute Awards $1-Million Grants to Discover What Causes PR Newswire (press release)The Lupus Research Institute (LRI), the leading private supporter of novel research in lupus, pioneers discovery and champions scientific creativity as it demonstrates the power of innovation to propel solutions to this complex autoimmune disease and more »
  • Is the Diagnosis Lupus or Multiple Sclerosis? - eMaxHealth

    30 Oct 2014 | 6:24 am
    eMaxHealthIs the Diagnosis Lupus or Multiple Sclerosis?eMaxHealthAnother factor that can complicate the diagnostic process is that lupus and multiple sclerosis can be present at the same time. In addition, occasionally individuals who have lupus develop transverse myelitis or optic neuritis. These events indicate
  • Awareness is key for Saskatchewan lupus society in October - Globalnews.ca

    30 Oct 2014 | 4:48 am
    Globalnews.caAwareness is key for Saskatchewan lupus society in OctoberGlobalnews.caSASKATOON – The president of Saskatchewan's lupus society says raising awareness of the disease is a major focus of the group and will help patients in the future. Lloyd Driedger says more people know about the autoimmune disease than a decade ago, ...
  • Nov. 1 fashion show at Clock Tower to benefit Lupus Society of Illinois - The Rock River Times

    29 Oct 2014 | 9:30 am
    Nov. 1 fashion show at Clock Tower to benefit Lupus Society of IllinoisThe Rock River TimesThe idea for the fashion show came after Saundra Anderson, a Northern Illinois University graduate and Lupus Society of Illinois support group coordinator, came face-to-face with her own battle with the disease when her child was diagnosed at age 9.
 
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    But You Dont Look Sick? support for those with invisible illness or chronic illness

  • Wigs, Hats, and Make Up… Oh My! Trying to Look Better, When You Feel Bad.

    christine
    23 Oct 2014 | 5:48 pm
    We have all heard the dreaded saying “But you don’t look sick?” But the last thing we want to do is walk around looking like death 24/7. It is true that when you look better you feel better, but there is a fine balance between spending tons of hours putting on full face make up, […] The post Wigs, Hats, and Make Up… Oh My! Trying to Look Better, When You Feel Bad. appeared first on But You Dont Look Sick? support for those with invisible illness or chronic illness.
  • After saying hello to my guests, I say #hellokeurig and feel like the perfect host

    christine
    19 Oct 2014 | 11:31 am
    Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I have been using the […] The post After saying hello to my guests, I say #hellokeurig and feel like the perfect host appeared first on But You Dont Look Sick? support for those with invisible illness or chronic illness.
  • How do you describe your pain? Numbers on Pain Scale, Adjectives, Silly Weird Pain Faces.

    christine
    18 Oct 2014 | 11:17 am
    I hear it all the time from doctors and nurses: “Tell me your pain on a scale from 1 to 10″. I always cringe at the thought of summarizing my pain and fatigue down to a number. I also get scared at the thought that I have never felt below a 4 or 5. How […] The post How do you describe your pain? Numbers on Pain Scale, Adjectives, Silly Weird Pain Faces. appeared first on But You Dont Look Sick? support for those with invisible illness or chronic illness.
  • I made a healthy little switch to Musselman’s Applesauce. Small diet changes can make a big difference.

    christine
    8 Oct 2014 | 3:04 pm
    How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a little judgment I can even […] The post I made a healthy little switch to Musselman’s Applesauce. Small diet changes can make a big difference. appeared first on But You Dont Look Sick? support for those with invisible illness or chronic illness.
  • What is the perfect gift to give, when you want to give the most memorable gift?

    christine
    26 Aug 2014 | 11:00 am
    My father turned 66 this summer and I decided to get him a gift that was both unique and memorable. He has a great interest in family history and saved some mementos from his mother’s estate. In an old worn out shipping box in the basement I found a small reel of old fashioned video […] The post What is the perfect gift to give, when you want to give the most memorable gift? appeared first on But You Dont Look Sick? support for those with invisible illness or chronic illness.
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    WordPress Tag: Lupus

  • Blog Acknowledgement 10/22/14

    silentlyheardonce
    22 Oct 2014 | 7:27 am
    Bing Images I’m a day late in doing my weekly blog acknowledgement.   I was very busy yesterday taking a “me” day.  It was nice lying around in bed eating junk food and watching TV.  It rain most of the afternoon making it a perfect day.  I was treated with thunder in the early morning hours and we’re having more rain today.  I’m going to cook a pot of beans and take another “me” day today.  As I said in one of my video on my post  The Alliance for Lupus Research’s NY Walk 2014 Lupus is the gift that keeps on giving.  Or maybe my former…
  • My Lupus Story - From One Diagnosis to Another (Part 2)

    itsredridinghood
    22 Oct 2014 | 7:07 am
    We left off upon my return from my initial hospitalization. I was supposed to be back at work, however I was at my Mom’s house in bed feeling worse than ever! I was however working from bed as any good employee would – note the sarcasm. I eventually phoned Dr. Z – the neurosurgeon – to explain that my condition had worsened and that I even had weakness and numbness in my arms. Dr. Z referred me to neurologist as he said that my back (and neck that has a few dodgy discs as a result of the car accident) could not be the cause. I got squeezed in to see the neurologist…
  • Gloves are on: the fightback

    Fola E
    21 Oct 2014 | 11:40 pm
    So, last week I looked at the difficulty of diagnosing Lupus and the emotional and psychological impact of the disease. This week I’m looking at the fightback. We’ve done a few rounds with the disease and it’s knocked us out. We are on the floor and the countdown has started: 10, 9, 8, 7… How do Lupus sufferers hit back against this cruel brute? Well, first we get have to get up and for that we need help and support. Ding ding! Round 1: Keeping positive This can be a challenge, especially as one of the major symptoms of Lupus is depression. Support from family and…
  • Chloe's World

    hiddendisabilities
    21 Oct 2014 | 9:09 pm
    Beautiful day to take Chloe and I on a little stroll down the street.
  • Withdrawal. Not the kind involving a bank.

    livingincurably
    21 Oct 2014 | 5:09 pm
    I lay in my hotel room last night feeling crazed, miserable, hot & cold all at the same time, My limbs were stretched out so that no part of my body was touching another part of my body because skin on skin contact was torturous in a sunburn kinda way.  What the hell was going on?  I finally put the facts together – I was in withdrawal.  Three years sober, goody-twoshoes me.  And you know why I was sure of it?  This wasn’t the first time this had happened.  Sometimes we forget that while prescribed, chronic illness medications are still “drugs” nonetheless.
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    emmyrose.com

  • What Makes the Best e Liquid?

    Helen Collins
    29 Oct 2014 | 11:37 pm
    Electronic cigarettes are all the rage these days. These are battery-powered cigarette-like contraptions that heat a cartridge to deliver flavored water vapor that contains e liquid to the user. The contraption mimics a real cigarette without the smoke and after effects brought about by carcinogenic components. The important component of an e cigarette is the e juice. The best e liquid can be sourced from a lot of different manufacturers. These differ in flavor and the level of nicotine content. This is the liquid that serves as the fuel for the electronic cigarette. When heated, it becomes…
 
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    Despite Lupus

  • The First Hair Cut after Hair Loss: the DURING

    29 Oct 2014 | 4:00 am
    For as long as I can remember, I’ve had a thick head of dark hair. I’ve always appreciated having a lot of hair to work with, but I’m not very good at recognizing which haircuts are designed for thick hair. In fact, every time I’ve taken in a photo to my stylist of a hairstyle I’d like to try, she always says, “That’s nice, but your hair is so thick, it won’t look like that or lay that way.” And then she comes up with an alternative that DOES work for thick hair. But not this time. This hair appointment was going to be different. With my thinning locks, it turns out…
  • The First Hair Cut after Hair Loss: The BEFORE

    27 Oct 2014 | 4:00 am
    “How do you handle hair loss?” It’s a question I’ve been asked a hundred times by readers, customers, and fellow lupus patients over the years. I find that while I always have an answer (because if you’ve ever experienced hair loss, you always have something to share), my response continues to evolve, primarily because I continue to evolve in the way I deal with it. There’s no right way to do it. We all lose different amounts at different times for different reasons. But what I find doesn’t differ, is the way that hair loss can make us feel. Sad. Dejected. Fragile. Vulnerable.
  • A turning point in my lupus hair loss: Getting a new 'do!

    24 Oct 2014 | 4:00 am
    Hooray for change!I took a much-anticipated trip to the hair salon last week, and I am so pleased with the results. It was as if my hair dresser found strands of hair I didn't even know I had! She gave me a brand new hair cut that left me feeling fun, fresh, and more confident about my looks. I hadn't realized how "shabby" I'd felt, until she cut my hair. I caught a glimpse of my new 'do in the mirror, and immediately thought, "There's the old me!!"The trip wasn't uneventful, mind you. Mustering up the courage to actually let my hair dresser see the hair loss I'd been masking for months was…
  • Aching joints deserve a break...with one of these handy jar openers!

    22 Oct 2014 | 4:00 am
    I'm not one for "gadgets", but this thing is fabulous. I went to open this jar of sauce last night, and it was stuck. I tried one way, then the other. And then I remembered my thoughtful sister had just given me this jar opener. It was magical! It opened with ease, and I couldn't believe how the top just popped right off. So here's my endorsement:If you have sore joints, get one of these things. If you have swollen joints, get one of these. If you have weak wrists, bad knuckles, shaky hands, sensitive fingertips...get one of these!Here's the link to one just like it on Amazon. For just under…
  • Birthday party success - learning my lupus limits once again!

    20 Oct 2014 | 4:00 am
    Okay. I'm not going to beat around the bush. I overdid it last week.(But I had fun doing it!)On Saturday, we threw Deirdre and Bernadette a joint birthday party for their friends. It was a Halloween theme, and my girls and I had a blast prepping for the celebration. Back in September, I'd suggested (though some might view it as pleading) to Dee and Bee to rethink their original plan of having a Frozen birthday party. I'm fine with Frozen...and I'm fine with Disney themed birthday parties...but the girls were already arguing about who would be Elsa, who wouldn't be Anna, and how many Olafs…
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    The Life of a 20-Something With Lupus

  • I Get By With A Litle Help from my Friends

    12 Oct 2014 | 12:50 pm
    It's a good thing to talk. Talk about stuff.I go back and forth when it comes to the above statement. Sometimes...I don't want to talk about stuff, because I know, mid story, it'll make my cry. At the same time, if I don't, the tears that need to be "cried" simply remain inside. That's not good either.This weekend was one of catching up with friends-good ones.On Friday evening, it was date night with my close friend and confidant, Mikey. Mikey and I have known each other and immediately connected as friends soon after we met each other back at our first job in a ritzy Italian grocery store.
  • A-ha moment?

    6 Oct 2014 | 4:31 pm
    I may have had one of those the other day.I've said it before, and I'll say it again. I wear my emotions on my face-there's no hiding. Sometimes, when emotions are low, I can fake it. I can smile, I can laugh, and I can make believe. Other times, when I'm REALLY upset about something, my facial expressions as well as my overall attitude changes.I was at work the other day and was so upset. I'm so upset that I was lied to, hurt...deliberately, and that I'm so upset that I'm so upset.Nobody is perfect. But, I do feel that some of these relationships that I shed so many tears about, and these…
  • Hurting

    23 Sep 2014 | 1:45 pm
    I only just logged onto my blog today and saw all of the wonderful comments that were left on my last post. They honestly made me cry, and I really appreciate the fact that there are people out there, strangers in fact, who care so much that they would leave such kind comments. I really appreciate each of them. I also apologize for the recent collection of "not-so-uplifting" posts.I suffered another setback. The gentleman that I was dating, as of last night/this morning, is no longer mine.We had a beautiful dinner that he prepared while I performed sous chef duties. We watched a movie over…
  • Maybe it just wasn't meant to be

    20 Sep 2014 | 7:41 pm
    I wish the "me" of 10 years ago could have a conversation with the "me" of today.Let me tell you about the "me" of 10 years ago.She was a strong woman who had been through a lot. High school was blur, as she spent a good deal of it in and out of the hospital. I don't know how she did it, but she did.  She was fearless. She did what she wanted, and she didn't put up with your crap, her crap, his crap, or anyone's crap. She would cut you off at the drop of a dime. She would think of you after cutting you off...maybe once or twice. But that was it. She handled her struggles with grace…
  • "Bad Luck Comes in Threes?"- Revisited

    3 Sep 2014 | 8:03 pm
    Nearly two years ago I blogged about some struggles I was going through. I talked about what was making me sad at the time as it relates to my health, my physical appearance, and my heart. If you haven't read it, here it is-"Back Luck Comes in Threes?".I read back on that entry today. In fact, I read it at least a few times a year.I talked about how upset I was with my appointment at the plastic surgeon's office. Let me be 100% clear-I was wronged.  I was left with a horrendous scar because of the negligence of hospital staff.  In spite of this, they didn't want to help me. Nobody…
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