Lupus

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  • Study suggests altering gut bacteria might mitigate lupus

    Lupus News From Medical News Today
    22 Oct 2014 | 12:00 am
    Lactobacillus species, commonly seen in yogurt cultures, correlate, in the guts of mouse models, with mitigation of lupus symptoms, while Lachnospiraceae, a type of Clostridia, correlate with...
  • One Lupus Patient's Extraordinary Recovery

    Lupus News
    23 Oct 2014 | 10:57 am
    Doctors at Loyola University Medical Center say Lauren Bank suffered one of the worst lupus attacks they had ever seen. Lupus is an autoimmune disease in which a patient's immune system attacks normal tissue.
  • LRI 2014 Forum for Discovery Shares Inspiring Research Progress

    Latest News from the S.L.E. Lupus Foundation
    kristen
    23 Oct 2014 | 12:36 pm
    A Picture of Intense Passion and Commitment This is what excitement looks like when 150 of the world’s top scientists focus all their intensity, concentration and talent on improving lupus treatment as they share their results, learnings and insights for two full days at the Lupus Research Institute’s 2014 Forum for Discovery. read more
  • Wigs, Hats, and Make Up… Oh My! Trying to Look Better, When You Feel Bad.

    But You Dont Look Sick? support for those with invisible illness or chronic illness
    christine
    23 Oct 2014 | 5:48 pm
    We have all heard the dreaded saying “But you don’t look sick?” But the last thing we want to do is walk around looking like death 24/7. It is true that when you look better you feel better, but there is a fine balance between spending tons of hours putting on full face make up, […] The post Wigs, Hats, and Make Up… Oh My! Trying to Look Better, When You Feel Bad. appeared first on But You Dont Look Sick? support for those with invisible illness or chronic illness.
  • Oh Baby, Baby

    WordPress Tag: Lupus
    thewolfsleepsinme
    13 Oct 2014 | 5:01 pm
    One of my coworkers recently had beautiful twin baby girls. They are perfect. She brought them into the office to show them off last week. All productivity was put on hold for the hour and a half the new family was visiting. My coworkers literally lined up in the hall to have their turn holding the newborns. The office filled with high-pitched oohs and awes, nonsensical baby talk, and the smell of dirty diapers. I took a second to tell the mother the girls were lovely, then return to my desk to field the calls and faxes that continue to flow into the office. At one point a coworker said,…
 
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    Lupus News

  • One Lupus Patient's Extraordinary Recovery

    23 Oct 2014 | 10:57 am
    Doctors at Loyola University Medical Center say Lauren Bank suffered one of the worst lupus attacks they had ever seen. Lupus is an autoimmune disease in which a patient's immune system attacks normal tissue.
  • Award-winning Irish band will perform Friday in Cuyahoga Valley...

    23 Oct 2014 | 6:55 am
    Socks in the Frying Pan , a new but award-winning Irish band, will perform Friday in Cuyahoga Valley National Park . The concert will be at Happy Days Lodge, 500 West Streetsboro Street, in Peninsula.
  • New lupus medication hopes for health insurance coverage

    22 Oct 2014 | 6:55 pm
    When Ms. Chang was 35 she was diagnosed with lupus. In the winter, her hands would turn purple and become very stiff.
  • Aurinia To Host Lupus Opinion Leader Meeting And Webcast On October 23 In New York City

    21 Oct 2014 | 8:47 am
    Aurinia Pharmaceuticals Inc. today announced that it will host a Lupus Key Opinion Leader breakfast on Thursday, October 23, 2014 from 8am-9:30am Eastern Time in New York City. The meeting will feature Mary Anne Dooley, M.D. MPH, an internationally renowned expert and a pioneering leader in many national and international lupus initiatives, including the Systemic Lupus International Collaborating Clinics and the Lupus Clinical Trials Consortium.
  • Immupharma raises A 3.4m as it gears up for Lupuzor Phase III trial

    21 Oct 2014 | 5:00 am
    Shares in drug developer Immupharma were higher after confirmation it had raised A 3.4m at a premium price to help fund Phase III trials of its lead product candidate Lupuzor, a potential treatment for lupus. The new shares were issued, principally from long-time investor Aviva, at a price of 53p per share, roughly a 3.9% premium to Monday's closing price.
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    Latest News from the S.L.E. Lupus Foundation

  • LRI 2014 Forum for Discovery Shares Inspiring Research Progress

    kristen
    23 Oct 2014 | 12:36 pm
    A Picture of Intense Passion and Commitment This is what excitement looks like when 150 of the world’s top scientists focus all their intensity, concentration and talent on improving lupus treatment as they share their results, learnings and insights for two full days at the Lupus Research Institute’s 2014 Forum for Discovery. read more
  • Lupus Research Institute’s Team Life Without Lupus® Joins Alliance for Lupus Research in NYC Walk with Us to Cure Lupus

    kristen
    22 Oct 2014 | 9:39 am
    Helps Meet $1 Million Fundraising Goal for Lupus Research With over 100 supporters, LRI’s Team Life Without Lupus® proudly helped the Alliance for Lupus Research (ALR) meet an ambitious fundraising goal of $1 million for lupus research at the Walk with Us to Cure Lupus in New York City. 100% of funds raised by Team Life Without Lupus will go specifically to a joint LRI/ALR research initiative to accelerate new lupus treatments with the goal to speed the availability of better, safer treatments for lupus patients. read more
  • LRI Partners with American College of Rheumatology on Novel Pilot to Reduce Healthcare Disparities in Lupus

    kristen
    22 Oct 2014 | 6:59 am
    The Lupus Research Institute (LRI) will lead an innovative pilot program to enable front-line healthcare providers to better recognize, diagnose and treat lupus when faced with its vague symptoms and confounding complications. read more
  • Oncologist Wins $1.12 Million NIH Grant to Expand LRI-Funded Lupus Study

    kristen
    9 Oct 2014 | 11:45 am
    Discoveries on Why Women at Greater Risk for Lupus Point the Way to Better Treatments for Lupus AND Ovarian Cancer The press release below reports a major accomplishment for Cancer Therapy & Research Center oncologist and immunologist Tyler Curiel, M.D., M.P.H. as well as for the lupus community. As Dr. Curiel notes, the $1.12 million grant he just received from the National Institutes of Health expands upon groundbreaking work funded by his 2011 LRI Novel Research Grant to learn why lupus is nine times as prevalent among women than men.  read more
  • A Week of Hope at Camp Sunshine

    kristen
    8 Oct 2014 | 7:45 am
    Three words stood out in the many letters we read more
 
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    But You Dont Look Sick? support for those with invisible illness or chronic illness

  • Wigs, Hats, and Make Up… Oh My! Trying to Look Better, When You Feel Bad.

    christine
    23 Oct 2014 | 5:48 pm
    We have all heard the dreaded saying “But you don’t look sick?” But the last thing we want to do is walk around looking like death 24/7. It is true that when you look better you feel better, but there is a fine balance between spending tons of hours putting on full face make up, […] The post Wigs, Hats, and Make Up… Oh My! Trying to Look Better, When You Feel Bad. appeared first on But You Dont Look Sick? support for those with invisible illness or chronic illness.
  • After saying hello to my guests, I say #hellokeurig and feel like the perfect host

    christine
    19 Oct 2014 | 11:31 am
    Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I have been using the […] The post After saying hello to my guests, I say #hellokeurig and feel like the perfect host appeared first on But You Dont Look Sick? support for those with invisible illness or chronic illness.
  • How do you describe your pain? Numbers on Pain Scale, Adjectives, Silly Weird Pain Faces.

    christine
    18 Oct 2014 | 11:17 am
    I hear it all the time from doctors and nurses: “Tell me your pain on a scale from 1 to 10″. I always cringe at the thought of summarizing my pain and fatigue down to a number. I also get scared at the thought that I have never felt below a 4 or 5. How […] The post How do you describe your pain? Numbers on Pain Scale, Adjectives, Silly Weird Pain Faces. appeared first on But You Dont Look Sick? support for those with invisible illness or chronic illness.
  • I made a healthy little switch to Musselman’s Applesauce. Small diet changes can make a big difference.

    christine
    8 Oct 2014 | 3:04 pm
    How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a little judgment I can even […] The post I made a healthy little switch to Musselman’s Applesauce. Small diet changes can make a big difference. appeared first on But You Dont Look Sick? support for those with invisible illness or chronic illness.
  • What is the perfect gift to give, when you want to give the most memorable gift?

    christine
    26 Aug 2014 | 11:00 am
    My father turned 66 this summer and I decided to get him a gift that was both unique and memorable. He has a great interest in family history and saved some mementos from his mother’s estate. In an old worn out shipping box in the basement I found a small reel of old fashioned video […] The post What is the perfect gift to give, when you want to give the most memorable gift? appeared first on But You Dont Look Sick? support for those with invisible illness or chronic illness.
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    WordPress Tag: Lupus

  • Oh Baby, Baby

    thewolfsleepsinme
    13 Oct 2014 | 5:01 pm
    One of my coworkers recently had beautiful twin baby girls. They are perfect. She brought them into the office to show them off last week. All productivity was put on hold for the hour and a half the new family was visiting. My coworkers literally lined up in the hall to have their turn holding the newborns. The office filled with high-pitched oohs and awes, nonsensical baby talk, and the smell of dirty diapers. I took a second to tell the mother the girls were lovely, then return to my desk to field the calls and faxes that continue to flow into the office. At one point a coworker said,…
  • Sryingomy-WHAT??

    sundreemz
    13 Oct 2014 | 2:43 pm
    Yup, this one is a hard one to pronounce and spell! It’s called SSyringomyelia. It’s a devastating disease of the spine. My sister has it and there is a good possibility that I have it too. Pretty scary. What is it?? The easiest explanation is that it is when tumor- Ike cysts for inside the spines that are filled with spinal fluid, which are called syrinx. These syrinx grow in size and will press on the nerves in the section of the spine where they are located. It causes all sorts of problems with the parasympathetic and sympathetic nervous systems. and it is excruciating to say…
  • Senisa Zuniga - Holding onto Hope

    solivares23
    13 Oct 2014 | 9:54 am
    At 35 weeks Senisa had discovered she had preeclampsia. What was a normal check up became a chaotic ride to the hospital. Her struggles from this journey are still following her, but she has found hope and peace in God. This is her story. I first assumed that I was pregnant when I became three weeks late with my menstrual cycle. I had also recognized similar symptoms from my previous pregnancy which indicated that I might be expecting. I shared my thoughts with my husband and he immediately went to Walgreens to pick up a couple of at-home pregnancy tests. The test results were both positive.
  • from the amazing Atlanta World According to Lupus

    chronicillnesscat
    12 Oct 2014 | 5:00 pm
  • Autumn

    Grace
    12 Oct 2014 | 4:50 pm
    Maybe it’s the fall air and annual leave change, or the aimlessness with which I find myself loving, or that I wake up every morning feeling like I’ve been run over by a Mac truck, but lately I’ve wanted to spend my days lying in a forest, staring at the trees with water air lapping across my face.
 
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    Despite Lupus

  • A turning point in my lupus hair loss: Getting a new 'do!

    24 Oct 2014 | 4:00 am
    Hooray for change!I took a much-anticipated trip to the hair salon last week, and I am so pleased with the results. It was as if my hair dresser found strands of hair I didn't even know I had! She gave me a brand new hair cut that left me feeling fun, fresh, and more confident about my looks. I hadn't realized how "shabby" I'd felt, until she cut my hair. I caught a glimpse of my new 'do in the mirror, and immediately thought, "There's the old me!!"The trip wasn't uneventful, mind you. Mustering up the courage to actually let my hair dresser see the hair loss I'd been masking for months was…
  • Aching joints deserve a break...with one of these handy jar openers!

    22 Oct 2014 | 4:00 am
    I'm not one for "gadgets", but this thing is fabulous. I went to open this jar of sauce last night, and it was stuck. I tried one way, then the other. And then I remembered my thoughtful sister had just given me this jar opener. It was magical! It opened with ease, and I couldn't believe how the top just popped right off. So here's my endorsement:If you have sore joints, get one of these things. If you have swollen joints, get one of these. If you have weak wrists, bad knuckles, shaky hands, sensitive fingertips...get one of these!Here's the link to one just like it on Amazon. For just under…
  • Birthday party success - learning my lupus limits once again!

    20 Oct 2014 | 4:00 am
    Okay. I'm not going to beat around the bush. I overdid it last week.(But I had fun doing it!)On Saturday, we threw Deirdre and Bernadette a joint birthday party for their friends. It was a Halloween theme, and my girls and I had a blast prepping for the celebration. Back in September, I'd suggested (though some might view it as pleading) to Dee and Bee to rethink their original plan of having a Frozen birthday party. I'm fine with Frozen...and I'm fine with Disney themed birthday parties...but the girls were already arguing about who would be Elsa, who wouldn't be Anna, and how many Olafs…
  • Pillfold House - Funny where the #pillorganizer name shows up!

    17 Oct 2014 | 4:00 am
    £350 pw fees apply1 bedroom flatPillfold House, Old Paradise Street, London, SE1Furnishing: Furnished or unfurnished, landlord is flexibleAdded on Rightmove: 18 September 2014 (2 days ago)Atkinson McLeod is pleased to offer to the market this gorgeous 1 double bedroom new built apartment. Situated just behind the Albert Embankment and just a stone throw away from the river and Westminster. I couldn't resist sharing this rental property listing with you. It came up on my Google alerts for "pillfold", and it made me smile. Looks like there are "Pillfolds" for sale…
  • Another birthday for Deirdre. Six years and counting...

    8 Oct 2014 | 5:00 am
    The first full week in October is always a busy one in the Gorman household!As you know, Bernadette turned 4 on Monday, and I pleased to say that Deirdre turns 6 today. Woohoo!! Here she is as a wee one:And here she is today. Could she really be this grown up?! She's so grown up, in fact, that she'll be helping me at the Pillbag show this weekend at St. Louis Church in Alexandria, VA. Saturday, October 11th marks their annual Community Fair, complete with a gift and craft show where you'll find Deirdre and me behind of colorful array of pink-lined pillbags! In addition to the marketplace…
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    The Life of a 20-Something With Lupus

  • I Get By With A Litle Help from my Friends

    12 Oct 2014 | 12:50 pm
    It's a good thing to talk. Talk about stuff.I go back and forth when it comes to the above statement. Sometimes...I don't want to talk about stuff, because I know, mid story, it'll make my cry. At the same time, if I don't, the tears that need to be "cried" simply remain inside. That's not good either.This weekend was one of catching up with friends-good ones.On Friday evening, it was date night with my close friend and confidant, Mikey. Mikey and I have known each other and immediately connected as friends soon after we met each other back at our first job in a ritzy Italian grocery store.
  • A-ha moment?

    6 Oct 2014 | 4:31 pm
    I may have had one of those the other day.I've said it before, and I'll say it again. I wear my emotions on my face-there's no hiding. Sometimes, when emotions are low, I can fake it. I can smile, I can laugh, and I can make believe. Other times, when I'm REALLY upset about something, my facial expressions as well as my overall attitude changes.I was at work the other day and was so upset. I'm so upset that I was lied to, hurt...deliberately, and that I'm so upset that I'm so upset.Nobody is perfect. But, I do feel that some of these relationships that I shed so many tears about, and these…
  • Hurting

    23 Sep 2014 | 1:45 pm
    I only just logged onto my blog today and saw all of the wonderful comments that were left on my last post. They honestly made me cry, and I really appreciate the fact that there are people out there, strangers in fact, who care so much that they would leave such kind comments. I really appreciate each of them. I also apologize for the recent collection of "not-so-uplifting" posts.I suffered another setback. The gentleman that I was dating, as of last night/this morning, is no longer mine.We had a beautiful dinner that he prepared while I performed sous chef duties. We watched a movie over…
  • Maybe it just wasn't meant to be

    20 Sep 2014 | 7:41 pm
    I wish the "me" of 10 years ago could have a conversation with the "me" of today.Let me tell you about the "me" of 10 years ago.She was a strong woman who had been through a lot. High school was blur, as she spent a good deal of it in and out of the hospital. I don't know how she did it, but she did.  She was fearless. She did what she wanted, and she didn't put up with your crap, her crap, his crap, or anyone's crap. She would cut you off at the drop of a dime. She would think of you after cutting you off...maybe once or twice. But that was it. She handled her struggles with grace…
  • "Bad Luck Comes in Threes?"- Revisited

    3 Sep 2014 | 8:03 pm
    Nearly two years ago I blogged about some struggles I was going through. I talked about what was making me sad at the time as it relates to my health, my physical appearance, and my heart. If you haven't read it, here it is-"Back Luck Comes in Threes?".I read back on that entry today. In fact, I read it at least a few times a year.I talked about how upset I was with my appointment at the plastic surgeon's office. Let me be 100% clear-I was wronged.  I was left with a horrendous scar because of the negligence of hospital staff.  In spite of this, they didn't want to help me. Nobody…
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