Lupus

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  • This Lupie World: Facts 6 & 7 - Who Lupus Affects

    WordPress Tag: Lupus
    Positively Gigi
    8 Oct 2014 | 10:36 pm
      Although these facts show specific demographics, Lupus is also diagnosed in CHILDREN and MEN.
  • Immupharma raises A 3.4m as it gears up for Lupuzor Phase III trial

    Lupus News
    21 Oct 2014 | 5:00 am
    Shares in drug developer Immupharma were higher after confirmation it had raised A 3.4m at a premium price to help fund Phase III trials of its lead product candidate Lupuzor, a potential treatment for lupus. The new shares were issued, principally from long-time investor Aviva, at a price of 53p per share, roughly a 3.9% premium to Monday's closing price.
  • 'Increased risk of venous thromboembolism among NSAID users'

    Lupus News From Medical News Today
    25 Sep 2014 | 12:00 am
    Venous thromboembolism - the condition that includes both deep vein thrombosis and pulmonary embolism - has been linked to NSAID use in a new systematic review and meta-analysis.
  • Study suggests altering gut bacteria might mitigate lupus

    Lupus News From Medical News Today
    22 Oct 2014 | 12:00 am
    Lactobacillus species, commonly seen in yogurt cultures, correlate, in the guts of mouse models, with mitigation of lupus symptoms, while Lachnospiraceae, a type of Clostridia, correlate with...
  • Aurinia To Host Lupus Opinion Leader Meeting And Webcast On October 23 In New York City

    Lupus News
    21 Oct 2014 | 8:47 am
    Aurinia Pharmaceuticals Inc. today announced that it will host a Lupus Key Opinion Leader breakfast on Thursday, October 23, 2014 from 8am-9:30am Eastern Time in New York City. The meeting will feature Mary Anne Dooley, M.D. MPH, an internationally renowned expert and a pioneering leader in many national and international lupus initiatives, including the Systemic Lupus International Collaborating Clinics and the Lupus Clinical Trials Consortium.
 
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    Lupus News

  • Aurinia To Host Lupus Opinion Leader Meeting And Webcast On October 23 In New York City

    21 Oct 2014 | 8:47 am
    Aurinia Pharmaceuticals Inc. today announced that it will host a Lupus Key Opinion Leader breakfast on Thursday, October 23, 2014 from 8am-9:30am Eastern Time in New York City. The meeting will feature Mary Anne Dooley, M.D. MPH, an internationally renowned expert and a pioneering leader in many national and international lupus initiatives, including the Systemic Lupus International Collaborating Clinics and the Lupus Clinical Trials Consortium.
  • Immupharma raises A 3.4m as it gears up for Lupuzor Phase III trial

    21 Oct 2014 | 5:00 am
    Shares in drug developer Immupharma were higher after confirmation it had raised A 3.4m at a premium price to help fund Phase III trials of its lead product candidate Lupuzor, a potential treatment for lupus. The new shares were issued, principally from long-time investor Aviva, at a price of 53p per share, roughly a 3.9% premium to Monday's closing price.
  • Hamster Graveyard to Play United Solo

    17 Oct 2014 | 12:15 pm
    Colorado's Hamster Graveyard by Texas-native Joshua Blanchard performs at the 2014 United Solo Theatre Fest at New York's Theatre Row this month. Hamster Graveyard premiered at the Lake Dillon Theatre Company in Dillon, CO on September 26, 2014 and marks Blanchard's New York debut as a playwright and performer.
  • Lupus support group will meet Saturday: Brecksville Morning Update

    15 Oct 2014 | 10:44 am
    The Greater Ohio Chapter of the Lupus Foundation of America will have its monthly New Patient Education Class from 11 am. to 12:30 p.m. Saturday at the LFA Meeting Room, 12930 Chippewa Road, in Brecksville.
  • Ian Harding Steps Out For Gala to Support the Lupus Foundation of America

    13 Oct 2014 | 1:53 pm
    Aside from just posing for photos on the red carpet - and looking adorable in a suit and tie! - the 28-year-old was also recognized at the event for his involvement in the organization. Ian's mother Mary was diagnosed with lupus when Ian was 7 and he's been active with the foundation for years.
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    Latest News from the S.L.E. Lupus Foundation

  • Oncologist Wins $1.12 Million NIH Grant to Expand LRI-Funded Lupus Study

    kristen
    9 Oct 2014 | 11:45 am
    Discoveries on Why Women at Greater Risk for Lupus Point the Way to Better Treatments for Lupus AND Ovarian Cancer The press release below reports a major accomplishment for Cancer Therapy & Research Center oncologist and immunologist Tyler Curiel, M.D., M.P.H. as well as for the lupus community. As Dr. Curiel notes, the $1.12 million grant he just received from the National Institutes of Health expands upon groundbreaking work funded by his 2011 LRI Novel Research Grant to learn why lupus is nine times as prevalent among women than men.  read more
  • A Week of Hope at Camp Sunshine

    kristen
    8 Oct 2014 | 7:45 am
    Three words stood out in the many letters we read more
  • Life Without Lupus Gala 2014 - Introducing our Honorees

    kristen
    29 Sep 2014 | 8:25 am
    Entertainment by Legendary Tony Bennett Celebrate Innovation at the Life Without Lupus Gala 2014 Monday, November 24 American Museum of Natural History Central Park West at 79th Street, New York City read more
  • ALR and LRI Proud to Support first AMP Grants Awarded by NIH

    kristen
    24 Sep 2014 | 10:37 am
    Alliance for Lupus Research and Lupus Research Institute Active Supporters to Improve Treatments for Lupus Patients   read more
  • Experimental Plant-Derived Treatment Halts Lupus Nephritis in Mice

    kristen
    23 Sep 2014 | 12:34 pm
    New results of an animal study published in the medical journal Arthritis & Rheumatology indicate that a synthetic compound derived from plants called CDDO helped block the development of lupus nephritis.  The study was conducted by a team at University of Houston led by Dr. read more
 
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    But You Dont Look Sick? support for those with invisible illness or chronic illness

  • After saying hello to my guests, I say #hellokeurig and feel like the perfect host

    christine
    19 Oct 2014 | 11:31 am
    Don’t Be Afraid of the Paper Directions! So much paper packing In the box and such a thick instruction book. All those languages, I only speak English. I have to guess you are trying to hide the best secret in the world: that the new 550 is EASY to use. I have been using the […] The post After saying hello to my guests, I say #hellokeurig and feel like the perfect host appeared first on But You Dont Look Sick? support for those with invisible illness or chronic illness.
  • How do you describe your pain? Numbers on Pain Scale, Adjectives, Silly Weird Pain Faces.

    christine
    18 Oct 2014 | 11:17 am
    I hear it all the time from doctors and nurses: “Tell me your pain on a scale from 1 to 10″. I always cringe at the thought of summarizing my pain and fatigue down to a number. I also get scared at the thought that I have never felt below a 4 or 5. How […] The post How do you describe your pain? Numbers on Pain Scale, Adjectives, Silly Weird Pain Faces. appeared first on But You Dont Look Sick? support for those with invisible illness or chronic illness.
  • I made a healthy little switch to Musselman’s Applesauce. Small diet changes can make a big difference.

    christine
    8 Oct 2014 | 3:04 pm
    How lucky is this? In the mail today, I received a free sample of Musselman’s Apple Sauce, just when I made a commitment to lose weight last week. The great god of internet says I can snack on ½ cup of unsweetened apple sauce for 2 points but with a little judgment I can even […] The post I made a healthy little switch to Musselman’s Applesauce. Small diet changes can make a big difference. appeared first on But You Dont Look Sick? support for those with invisible illness or chronic illness.
  • What is the perfect gift to give, when you want to give the most memorable gift?

    christine
    26 Aug 2014 | 11:00 am
    My father turned 66 this summer and I decided to get him a gift that was both unique and memorable. He has a great interest in family history and saved some mementos from his mother’s estate. In an old worn out shipping box in the basement I found a small reel of old fashioned video […] The post What is the perfect gift to give, when you want to give the most memorable gift? appeared first on But You Dont Look Sick? support for those with invisible illness or chronic illness.
  • We have reached OVER 119,000 likes on our facebook page! Come join our #spoonie community!

    christine
    11 Aug 2014 | 6:47 pm
        WHoooo HHhhoooo!!!  Do a happy Dance! We have reached OVER 119,000 fans/ likes on our ButYouDontLookSick.com facebook fanpage! Thank you to all our readers, friends, and “spoonies” for making every part of our online community as supportive as it is. You guys are amazing! If you haven’t “liked” us yet on facebook come on […] The post We have reached OVER 119,000 likes on our facebook page! Come join our #spoonie community! appeared first on But You Dont Look Sick? support for those with invisible illness or chronic illness.
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    WordPress Tag: Lupus

  • This Lupie World: Facts 6 & 7 - Who Lupus Affects

    Positively Gigi
    8 Oct 2014 | 10:36 pm
      Although these facts show specific demographics, Lupus is also diagnosed in CHILDREN and MEN.
  • Love In A Bottle

    Whimsical Thoughts
    8 Oct 2014 | 6:31 pm
    I’ve found the love of my life…well for this moment at any rate. Let’s face it friends, I flit and flutter around these things so often this it can only ever be for the moment. Now don’t none of you worry, Beloved is always my Beloved and nothing replaces him for the main spot of love in my life. But right now I am simply adoring my water bottle. It helps that it has s cute little sweater cover too, but given all the comfort it has brought me today, yes I adore it. I love it! ❤️ Lupus was feeling left out, abandoned and neglected apparently and so she made an…
  • Empire State Building Lights Up For Lupus.

    megs0986
    8 Oct 2014 | 6:05 pm
    One of the reasons I enjoy writing about my experience with Lupus is the fact that 98% of the time, you will be teaching someone something they did not know. Lupus is one of those mystery illnesses. It is a mystery to those of us who suffer on a daily basis so image how mysterious it is to those inexperienced with the disease. Every single time I explain my condition to a new person – I feel like I’m that much closer to spreading the word and a cure. You know what is well known? The Empire State Building. This New York City landmark is frequently found at the top of the list of…
  • The Benefits of Meditation

    denisedorfman
    8 Oct 2014 | 4:48 pm
    I wanted to write this week about the many benefits of meditation and how it has helped me personally. When I first started working, I had no focus; no real sense of how to accomplish the tasks on my job. I simply plugged away for hours at one task, but got distracted so easily. It was hard for me to set priorities. Then I discovered meditation when I was working for a major oil company in 2002. Soon after I began meditating every morning for only fifteen minutes, I started becoming laser-focused on my work. I was able to get a lot of work done in a very short time because I was so focused on…
  • Oh my Blog!

    Kevin
    8 Oct 2014 | 3:41 pm
    I haven’t posted in some time now.  I was coping with family life, study and being really busy
 
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    Despite Lupus

  • Aching joints deserve a break...with one of these handy jar openers!

    22 Oct 2014 | 4:00 am
    I'm not one for "gadgets", but this thing is fabulous. I went to open this jar of sauce last night, and it was stuck. I tried one way, then the other. And then I remembered my thoughtful sister had just given me this jar opener. It was magical! It opened with ease, and I couldn't believe how the top just popped right off. So here's my endorsement:If you have sore joints, get one of these things. If you have swollen joints, get one of these. If you have weak wrists, bad knuckles, shaky hands, sensitive fingertips...get one of these!Here's the link to one just like it on Amazon. For just under…
  • Birthday party success - learning my lupus limits once again!

    20 Oct 2014 | 4:00 am
    Okay. I'm not going to beat around the bush. I overdid it last week.(But I had fun doing it!)On Saturday, we threw Deirdre and Bernadette a joint birthday party for their friends. It was a Halloween theme, and my girls and I had a blast prepping for the celebration. Back in September, I'd suggested (though some might view it as pleading) to Dee and Bee to rethink their original plan of having a Frozen birthday party. I'm fine with Frozen...and I'm fine with Disney themed birthday parties...but the girls were already arguing about who would be Elsa, who wouldn't be Anna, and how many Olafs…
  • Pillfold House - Funny where the #pillorganizer name shows up!

    17 Oct 2014 | 4:00 am
    £350 pw fees apply1 bedroom flatPillfold House, Old Paradise Street, London, SE1Furnishing: Furnished or unfurnished, landlord is flexibleAdded on Rightmove: 18 September 2014 (2 days ago)Atkinson McLeod is pleased to offer to the market this gorgeous 1 double bedroom new built apartment. Situated just behind the Albert Embankment and just a stone throw away from the river and Westminster. I couldn't resist sharing this rental property listing with you. It came up on my Google alerts for "pillfold", and it made me smile. Looks like there are "Pillfolds" for sale…
  • Another birthday for Deirdre. Six years and counting...

    8 Oct 2014 | 5:00 am
    The first full week in October is always a busy one in the Gorman household!As you know, Bernadette turned 4 on Monday, and I pleased to say that Deirdre turns 6 today. Woohoo!! Here she is as a wee one:And here she is today. Could she really be this grown up?! She's so grown up, in fact, that she'll be helping me at the Pillbag show this weekend at St. Louis Church in Alexandria, VA. Saturday, October 11th marks their annual Community Fair, complete with a gift and craft show where you'll find Deirdre and me behind of colorful array of pink-lined pillbags! In addition to the marketplace…
  • Bernie turns 4 today! Pillbag sale in her honor!

    6 Oct 2014 | 5:00 am
    It's hard to believe my baby girl Bernadette turns four today!I swear she was small enough to fit in a laundry basket (like so) just a few days ago. But, oh, how time flies.Here she is now, all grown up. (And below, looking REALLY grown up!) In honor of Bernadette's fabulous 4th birthday, let's have a pillbag sale! Take $4 off (that's a 10% savings off a pillfold!) any purchase on www.pillfold.com during her entire birthday week (now through Sunday, Oct 12th). Just be sure to enter the code "FOURFORFALL" during checkout. She'll be so excited you ordered in her honor! (Her favorites are…
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    The Life of a 20-Something With Lupus

  • I Get By With A Litle Help from my Friends

    12 Oct 2014 | 12:50 pm
    It's a good thing to talk. Talk about stuff.I go back and forth when it comes to the above statement. Sometimes...I don't want to talk about stuff, because I know, mid story, it'll make my cry. At the same time, if I don't, the tears that need to be "cried" simply remain inside. That's not good either.This weekend was one of catching up with friends-good ones.On Friday evening, it was date night with my close friend and confidant, Mikey. Mikey and I have known each other and immediately connected as friends soon after we met each other back at our first job in a ritzy Italian grocery store.
  • A-ha moment?

    6 Oct 2014 | 4:31 pm
    I may have had one of those the other day.I've said it before, and I'll say it again. I wear my emotions on my face-there's no hiding. Sometimes, when emotions are low, I can fake it. I can smile, I can laugh, and I can make believe. Other times, when I'm REALLY upset about something, my facial expressions as well as my overall attitude changes.I was at work the other day and was so upset. I'm so upset that I was lied to, hurt...deliberately, and that I'm so upset that I'm so upset.Nobody is perfect. But, I do feel that some of these relationships that I shed so many tears about, and these…
  • Hurting

    23 Sep 2014 | 1:45 pm
    I only just logged onto my blog today and saw all of the wonderful comments that were left on my last post. They honestly made me cry, and I really appreciate the fact that there are people out there, strangers in fact, who care so much that they would leave such kind comments. I really appreciate each of them. I also apologize for the recent collection of "not-so-uplifting" posts.I suffered another setback. The gentleman that I was dating, as of last night/this morning, is no longer mine.We had a beautiful dinner that he prepared while I performed sous chef duties. We watched a movie over…
  • Maybe it just wasn't meant to be

    20 Sep 2014 | 7:41 pm
    I wish the "me" of 10 years ago could have a conversation with the "me" of today.Let me tell you about the "me" of 10 years ago.She was a strong woman who had been through a lot. High school was blur, as she spent a good deal of it in and out of the hospital. I don't know how she did it, but she did.  She was fearless. She did what she wanted, and she didn't put up with your crap, her crap, his crap, or anyone's crap. She would cut you off at the drop of a dime. She would think of you after cutting you off...maybe once or twice. But that was it. She handled her struggles with grace…
  • "Bad Luck Comes in Threes?"- Revisited

    3 Sep 2014 | 8:03 pm
    Nearly two years ago I blogged about some struggles I was going through. I talked about what was making me sad at the time as it relates to my health, my physical appearance, and my heart. If you haven't read it, here it is-"Back Luck Comes in Threes?".I read back on that entry today. In fact, I read it at least a few times a year.I talked about how upset I was with my appointment at the plastic surgeon's office. Let me be 100% clear-I was wronged.  I was left with a horrendous scar because of the negligence of hospital staff.  In spite of this, they didn't want to help me. Nobody…
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