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Papers and Pen

I collect pens, notebooks and papers… Don’t ask why for I, myself couldn’t understand my fascination with these things. I just love to collect them and whenever I am in the bookstore I have to buy a pen and I have them all in all colors. My mom often asked me for office supplies because [...]

Growing Old

I recently celebrated my 32nd birthday last month… I’m getting older but it doesn’t bother me at all, I feel young at heart and I guess that’s more important. It also helps that I am always the youngest in my circle of friends (not that they’re that old) but like I said age are just numbers [...]

Next Stop

There are a lot of things that Lupus hindered in my life and one of them is to travel. I simply love to travel and it has been a dream of mine to travel to my dream destinations.. well, maybe I cannot do that right now but I know soon I will be off flying [...]

How I'm dealing with holiday meals

For those who don’t know me well, or aren’t in my life anywhere but this blog… I L

Salvation Army Kettle event Sunday - Iowa City Press Citizen

Salvation Army Kettle event Sunday
Iowa City Press Citizen
A benefit dinner for Nico Kadimoke, a 2005 City High graduate suffering from lupus, will be from 11 am to 5 pm Sunday at the Iowa City Eagles Club, ...

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Lites: Kyle Marcelli 2009 season review - Motorsport.com

Lites: Kyle Marcelli 2009 season review
Motorsport.com
Each year Kyle gets involved locally with the Lupus Flare Foundation and the annual Lupus Grand Prix, organized by Bill Bryan, a regional racing official ...

Walk Raises $58,000 to Fight Lupus

RICHMOND, Va. Pouring rain didn't discourage hundreds of walkers who came out recently to Richmond International Raceway to raise money and awareness for lupus patients.

Walk Raises $58000 to Fight Lupus - GroundReport

Walk Raises $58000 to Fight Lupus
GroundReport
Pouring rain didn't discourage hundreds of walkers who came out recently to Richmond International Raceway to raise money and awareness for lupus patients. ...
Lupus Foundation of America Web Chat to Focus on Medication AdherencePR-Inside.com (Pressemitteilung)

all 5 news articles »

this happened.

photography courtesy of Gabriella Maria Basile < her tumblr – check it. ——

Store Spotlight: "The Right Moves for Lupus Fitness" DVD

If lupus has you on the sidelines rather than in the middle of the action, this new low-impact exercise program, designed specifically for people with lupus, may be "just right" for you.

Guided by a licensed A.C.E. instructor who also has lupus, this DVD offers a gentle fitness routine that you can practice in the comfort of your own home. The goal is not to become a super model but to get moving -- and to improve your well-being in the process.

Buy the exercise DVD.

New LFA Video on Lupus Treatments

This is definitely worth watching...and here's the link for a few other videos the LFA just put together. Enjoy!

Saliva Proteins Change As Women Age

In a step toward using human saliva to tell whether those stiff joints, memory lapses, and other telltale signs of aging are normal or red flags for disease, scientists are describing how the protein content of women's saliva change with advancing age. The discovery could lead to a simple, noninvasive test for better diagnosing and treating certain age-related diseases in women, they suggest in a report in ACS' Journal of Proteome Research, a monthly publication.

Jaime Pressly Short Hair Pictures: Lupus LA Hollywood Bag Ladies Luncheon 2009 ... - American Superstar Magazine

American Superstar Magazine

Jaime Pressly Short Hair Pictures: Lupus LA Hollywood Bag Ladies Luncheon 2009 ...
American Superstar Magazine
Jaime Pressly arrives at the 8th annual Lupus LA Hollywood Bag Ladies Luncheon held at the Beverly Wilshire Four Seasons Hotel on November 18, ...

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Lupus survivor returns to ND for book signing - Observer Online

Lupus survivor returns to ND for book signing
Observer Online
But Gorman hasn't always felt this good — she was diagnosed with lupus in 2001 and struggled for years to adjust her post-college lifestyle to ...

Ouchies

My days and nights are all mixed up. I went to bed about 6 this morning and woke up at noon because

How much longer can I survive?

Before anything else is said I want to make it EXTREMELY clear I am not suicidal. I want to live. Th

ImmuPharma PLC: Encouraging Final Phase IIb Results Seen With LUPUZOR™ In Systemic Lupus Erythematosus

ImmuPharma PLC (LSE:IMM) the specialist discovery and development pharmaceutical company is pleased to announce the final results from a Phase IIb trial of LUPUZOR™ in active patients with Systemic Lupus Erythematosus (SLE). Lupuzor™ administered at 200 mcg once-a-month for 3 months plus standard of care achieved a clinically significant improvement in patient response rate as measured by the combined score compared to placebo plus standard of care.

The Death of (Me while Wearing) Platform Shoes

I don’t own any platforms myself. As I am nearly 6 feet tall, I find the extra three inches of wood

ImmuPharma PLC: Encouraging Final Phase IIb Results Seen with LUPUZOR(TM) in Systemic Lupus Erythematosus

Greatest Benefits Seen in Patients with Moderate to Severe Systemic Lupus Erythematosus

LONDON, Nov 19, 2009 (BUSINESS WIRE) -- ImmuPharma PLC (LSE:IMM) the specialist discovery and development pharmaceutical company is pleased to announce today the final results from a Phase IIb trial of LUPUZOR(TM) in active patients with Systemic Lupus Erythematosus (SLE). Lupuzor(TM) administered at 200 mcg once-a-month for 3 months plus standard of care achieved a clinically significant improvement in patient response rate as measured by the combined score compared to placebo plus standard of care.

LFA Releases Video Series on the Latest Lupus Research

The Lupus Foundation of America (LFA) joined more than 11,000 rheumatologists and allied health professionals at the American College of Rheumatology's (ACR) 2009 Annual Scientific Meeting in Philadelphia, Pennsylvania in mid-October. The program included more than 260 abstracts, plenary or special session presentations specifically about lupus.

Representatives of the LFA attended the meeting to report on new developments in basic, clinical, translational, and epidemiological research on lupus. More than 20 key lupus researchers and scientists sat down with LFA officials to talk about the research data they presented. Those on-camera interviews, and a summary of selected research abstracts, are now available to view.

Topics covered are:

About the ACR Annual Scientific Meeting
Treatments for Lupus
Complications of Lupus
Management of Lupus
Causes of and Progression of Lupus
Pregnancy and Lupus

Watch videos of the latest lupus research, which was presented at the 2009 Annual ACR Meeting.

ND grad to talk on living with lupus

Sarah Gorman knew only one way to respond to being diagnosed with lupus in 2001 - that was to fight through the pain, the fatigue and the other symptoms of the chronic inflammatory disease.

Lupus Research Institute Mourns Loss of Young Male Athlete to Lupus

Nebraska Pitcher, Jonathan Figueroa, Was 26 Years Old

Photo courtesy of Lincoln Saltdogs

November 18, 2009 – Jonathan Figueroa, who pitched in the Los Angeles minor league system from 2002 to 2007 and most recently for Nebraska's "Lincoln Saltdogs" in the American Association of Independent Professional Baseball league, died from complications of systemic lupus on Sunday in Tampa, Florida.

'Invisible disease' a challenge to manage

For years, Nancy Ferris of Fredericksburg suffered from joint pain, fatigue and migraines, but neither she nor her doctors could pinpoint the cause.

May the force be with you

My apologies for the belated Halloween pictures from Deirdre's 2nd annual spooky holiday. She, of course, was a big hit as Princess Leia...and her dad and I were in heaven walking her around the neighborhood.

Darwin, or should I say, "Yoda", enjoyed the stroll as well.

By the end of the evening, most of Deirdre's costume had been stripped away - the wig went first, then her belt, and next came the tunic.

But isn't that the sign of a good night of trick or treating?

Dialysis supplies room!

Here are some before pictures of what my dialysis supplies room looks like, prior to getting it as organized as I would like. I'm just happy that all of the boxes are actually in the room as opposed to sitting on the floor in the middke of the dining room! Take note that I uploaded these pics from my Blackberry so I apologize if they are not top notch, but I think they get the point across.

Also included are a few pictures of good ol' B-16- Formula Home Care System!

Hello, Mr. B-16! I call hin that because right above that blue box that says formula, there is another, smaller blue tag that says "B-16". One of the pictures that follow will show his name tag.

Thumbs up to being ready to connect!

Mr. B-16. The pump is off and he's waiting for me to connect! I plan to take more pictures and get/eat a small bowl of apple sauce before connecting to you, Mr. B-16

Hello again, Mr. B-16. There's your name tag!

Box upon box of Sodiun Chloride, aka saline. This is actually 8 boxes as there is another set of four behind the set of four that you see here. Against the wall in the red bag is my yoga mat..a mat that I need to utilize more often!

Dialyzers and a blue box containing gauze up top, then tubing on two shelves, then at the bottom we have some acid concentrate and a bottle of bleach. Don't worry, guys. I promise not to get the acid concentrate and the bleach mixed up.

Mr. Bleach on a date with Ms. Acid Concentrate. I don't think they are compatible or even like each other very much.

*barf*! Ugh...room full of boxes!

Corner shelves contain syringes, needles, tip caps, alcohol wipes, non-alcohol wipes, etc.

I remember you, boot. I had to wear you for 8 weeks..and even when I went to England last year! What a drag. I hope I never have to wear you again.

So when my Papa has time, he is going to put some more shelves up for me so that I can have more space to put more stuff! More pics to follow when that happens...taking into consideration that I'm a full time student and a part time worker! (aka it likely ain't getting organized anytime before my trip to Florida at the end of December!)

How to not be discreet.

I'm currently on the subway on my way to school when a man started making these strange noises as he exited the train! It sounded as if he was saying "talk, talk, talk, talk, talk...". I though he was referring to a group of college students, also on the bus, who were chatting to each other. When I turned around and looked at him more closely, I saw that he had something up to his face which was is a white bag. "Booze, no doubt" I thought. It wasn't until the overwhelming stench of glue, or maybe paint thinner, smacked me in the face. Was that guy huffing chemicals on the train??
Sent from my BlackBerry device

LFA's "Medication Adherence" Webchat to be Held Monday, November 23 at 3 p.m. Eastern

The LFA welcomes Dr. Sam Lim, who will serve as the guest expert for the "Medication Adherence" webchat .

Bittersweet: A tribute to Ursula Williams

Most of us have a handful of teachers or professors who have made a significant impact on us at one time or another during our academic careers. I certainly had a couple at Notre Dame, one of whom was none other than the wonderful, the fabulous, Mrs. Ursula Williams. I never took a class from Mrs. Williams, but she was my employer for three years during college, becoming a friend, a confidant, and a mentor. She ran the Language Resource Center (aka Language Lab) where I worked at ND, and boy, was it the greatest on-campus job in the world!

She had this personality that made you want to come to work. You wanted to do a good job for her, exceed her expectations - and even hang out with her after work, chit chatting over a few drinks. She was simply a wonderful person, and she taught me so much about being "me", helping me mature as an employee, a student, and as a person, without even saying a word. What a positive influence she was!

So, given the fact that I'm heading back to campus this week, I, of course, looked her up so I could say hello. That's when I found out the distressing news that she'd passed away from cancer several years back (2004.) Oh, Mrs. Williams! How I'll miss you! That incredible sense of humor, that jolly disposition, and the lessons you taught me will never be forgotten.

Now - the reason I'm choosing to write about my very dear friend Mrs. Williams, is that in contacting another mutual friend of ours, I've come to find out some very, I'll call it enlightening, news. It turns out that my mentor, my friend, my confidant, before being diagnosed with the cancer that took her life, was diagnosed with lupus. How about that!!!! I can't really express how that makes me feel...just so incredibly touched, you know? Just to know that I was in such good company encourages me to keep on keeping on. How can I not do everything I can to live well with lupus? I owe it to Mrs. W.

So here's to you, Mrs. Williams - I bet you would have shown me the ropes with this lupus thing, too. You appeared to be living well from the first moment I met you. Thank you for paving the way.

LFA's "Medication Adherence" Webchat to be Held Monday, November 23 at 3 p.m. Eastern

Reminder -- the Lupus Foundation of America's webchat is next Monday afternoon, November 23, at 3 p.m. Eastern Time.

The LFA welcomes Dr. Sam Lim, who will serve as the guest expert for the "Medication Adherence" webchat.

This is your opportunity to ask questions and learn from an expert. Dr. Lim is Assistant Professor of Medicine at Emory University School of Medicine in Atlanta, Georgia and Chief of Rheumatology at Grady Health Systems. He heads two large lupus clinics and is involved in several federal, state, and privately funded projects, including the CDC-funded Georgia Lupus Registry (part of the National Patient Lupus Registries). He also serves on the Medical Scientific Advisory Committee of the Lupus Foundation of America and its Georgia Chapter.

You can submit a question in advance here.

We hope you can join us Monday afternoon, November 23. To do so, you can log in to the live chat here.

As always, copies of all chat transcripts are posted online within a day or 2 of the chat. Follow this link to read LFA's previous chat transcripts.

Break between studying

I am studying for a multiple choice quiz in my Training and Development class on Tuesday morning. It is multiple choice and is worth 5%. The last one I got a B or something. I'm shooting for the stars this time.

Last night was a late night. I went to my friend's uncle's house where she was holding her birthday party. Man was the house beautiful. I didn't know that houses like that existed in that area. Something to strive for i guess!

The party included great games, great conversation, and tons of catching up. We played guitar hero and other Wii games. There was one Mario game where you choose your Mario character and you run a 100 metre race. You hold the remote in one hand and a nunchuck in the other hand. Then, when the gun goes off to signify the beginning of the race, you have to move your hands back and forth as fast as you can (as if you were running). Man was I exhausted after playing a couple of times!

Well, back to the books!

Placebos' ability to cut pain real, experts say

People looking for natural cures will be happy to know there is one. Two words explain how it works: "I believe." It's the placebo effect - the ability of a dummy pill or a faked treatment to make people feel better, just because they expect that it will.

For the Love of Tennis

We learned to play tennis in our freshmen year of high school. At first I wasn’t sure I wanted any part of the sport. In time I did learn to enjoy the game. It was fun chasing the ball across the court to prevent my opponent from scoring a point. Before we actually played the [...]

Lupus Butterfly Rash

Really, I need to go to bed as I’m pretty tired, but have a habit of pushing myself to my limits. It’s been a busy day with my daughter going to tae kwon do and her volunteering at the library. Today, I did treat myself, I purchased some cosmetics. I bought 2 new lip sticks, [...]

H1N1 Vaccine

I got a call from one of the nurses from my home diaysis unit today. She told me that they have finally received the H1N1 Vaccine and will be administering it starting next week. I made my appointment to get the shot on Thursday.

Has anyone else gotten the Vaccine yet?

Could I Have Lupus? Awareness Campaign is # 1 for Outdoor Donated Media Dollars in Q2 2009!

We are excited to share with you the final donated and earned media results for Q2 2009 for the Could I Have Lupus? Awareness campaign.

The campaign received $9,311,000 in total donated media support and $597,800 in earned media support (public relations) in Q2 2009.

To put these numbers into context, the average Ad Council campaign receives an estimated 7 million dollars in donated media per quarter, so this campaign is skewing above average with our total donated media dollars.

Also we are pleased to report that this campaign ranked in the top ten of 50 Ad Council campaigns in Q2 2009 in a few of the categories. Most notably was that we were number 1 for Outdoor Donated Media Dollars!

Thanks to everyone who has participated in outreach efforts to secure media placements for this campaign. Let’s keep the momentum going!

http://www.lupus.org/AdCouncil

Photo Essay: Americans with Disabilities Act: Accessibility for ALL

In 1990 the Federal Government passed a law called the Americans with Disabilities Act. The Act essentially “forced” any business that dealt with the public, to provide that public access to be able to purchase their product. The understanding of the law is that once you start sell something to the public is means all the public. Common interpretation calls this as being wheel chair accessible, and that’s the most obvious. But the law also provides for people who have challenges walking, talking, and seeing and so on. In short, if the business expects to make money off the public, than it must provide access to all of that public. In general that’s the tone, anything else is an exception and it could be open to future debate and fines.

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Passing the torch

In the past, I've blogged about the fact that I can get a bit, shall we say, obsessive about uncovering the causes of my lupus symptoms. It's been awhile (thank goodness!) since I've experienced anything "unexplained" - like fevers, lip swellings, or hair loss - and even longer since I've been truly guilty of hyper-focusing...but when it used to happen, I would spend way too much time and effort trying to uncover the root cause of the symptom in question.

But it seems to be a natural tendency to have when you're dealing with lupus. Since there are so many symptoms/side-effects of the disease, it's hard not to do what you can to figure out what's causing what. Of course, just like everything, there's a limit to how much energy you can spend before the law of diminishing returns kicks in. Even the most well-intended energy can end up causing you unnecessary stress and anxiety...and that's never good.

As I said, while it's been awhile since I've experienced any mysterious, unexplained symptoms, baby doll Deirdre was carrying the torch for almost two months. Right around Labor Day, I noticed she developed a little rash on her chin, which ended up staying around and spreading. Poor little lady! She didn't care two hoots about the rash (which came and went periodically) - and she certainly didn't sacrifice one iota of cuteness, but as a mother, I just knew that I had a responsibility to try and uncover the cause. (Okay...as the kind of mother I am with the personality I have, I had to at least make an attempt.) So we tried everything. I first went to foods - ruling out tomato sauce, citrus, and watermelon. At various points in the past 8 weeks, she's been off maple syrup, corn, lunch meat, orange juice, eggs, sugary treats (like donuts...b/c her rash seemed worse after a few bites of donut one weekend), and about a dozen other foods. Of course, she didn't know these experiments were going on, so thankfully, she was quite the willing participant. Okay...she was a down right guinea pig (or is that guppy?). But no harm came to her...but no resolution either. Then we mentioned it to the doctor at her yearly checkup, who came up with another slew of things to look into: was there fluoride in her toothpaste (no), did she have any allergy to plastic toys (no), could it be a new detergent, softener, etc. (no), was it a certain fabric or clothing (no)...and on it went. I'm telling you -it's a good thing I'd been down the obsessive-symptom road before, because I was able to curtail my efforts. But while I didn't spend a ton of time trying to figure this out - I sure did think about it a lot.

I'd finally had it this past weekend. Deirdre and I went away for a fabulous girls' weekend with her grandmother, aunt and cousin, and the rash was at its all-time worst. On top of that, she started tugging on her ear and had a mini-meltdown (which she never has), so I decided to take her in to the doctor the day after we returned. I thought - oh good - now the doctor will see this rash in its full form. Of course, she woke up the next morning, the day of her appointment, and the rash was practically gone. Of course! Doesn't that always happen when you're going to the doctor? The symptom you're just dying to show your doctor subsides the day you go in. Ugh!

Nonetheless, the good news is that the rash hasn't come back since...and the doctor's diagnosis this time? Teething! That's the cause of the ear tugging, the testiness, and that nasty rash, in her opinion. So all of my experimentation was unnecessary. Good thing I'd ratcheted back on my R&D. One life's lesson learned!

Save the Date: LFA's Lupus Advocacy Day on Capitol Hill to be Held March 15-16, 2010

The LFA Annual Advocacy Day provides lupus advocates from across the nation the opportunity to participate in meetings with their U.S. Senators and Representatives to educate policy makers on lupus and discuss public policies that affect people with lupus.

L’Enfant Plaza Hotel, in downtown Washington DC, will be our headquarters hotel. More details will be coming soon.

Product Reviews: Wine and Beer Accessories for Those with Weak Hands

For special occasions it's nice to open a bottle of wine, sit back with friends, relax and celebrate. The only problem is when you can't open the wine or spill the wine when you pour it, and then can't seem to balance the wine glasses and your plate. Sounds like a mess! Well our friends at Prodyne.com have found us some party solutions once again.

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The Blessings of Chronic Illness

At the time of this writing, it is a few weeks before Thanksgiving in the US. Each day, I must fight an overwhelming array of symptoms caused by Sjogren's syndrome, fibromyalgia, chronic myofascial pain, hypothyroidism, diabetes, celiac disease, gastroparesis and periodic limb movement disorder. I am learning to cope with new medication that is fraught with unpleasant side effects. I am in the midst of the disability application process and have no income. And yet, I know that I am blessed, without question. How can this be?

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Not Sweating the Small Stuff

I was thinking about the conversation my father and I had a few days ago when he was driving me to work. Amongst other things, he was basically saying that everyone in the world has some sort of problem. Some have "bigger" problems, while others may not have anything that they see as a problem currently, but they have had problems in the past or will in the future.

When I go about my business at school and such, it kind of makes me sad to see the problems (unneccesary ones) that people put themselves through. People that I've grown to really like and that I look up to in terms of their work ethics and determination are the ones doing the silliest things! It's in my nature to be the person who is "there" for everyone, and yet I often find myself alone when it comes to these same people who rely so heavily on me.

I'm not saying that I will not be a friend to others. Quite the opposite, in fact. I guess I just don't like being put int he middle of a disagreement between two or more people that I consider friends. It doesn't matter if you're 8 or 80. There will always be some sort of drama as long as there are people around. Ah well. I just know that I'm not going to physically stress myself out over the small stuff.

I'm off to the Golden Dome!

Despite Lupus is hitting the road again - back to the cornfields of Indiana. Not for another hometown visit this time. Rather, I'll be touching down in lovely South Bend, IN, home of my alma mater, the University of Notre Dame.

I'm so excited to be returning to campus. It's been a long time since I've been back - but the bookstore is welcoming me with open arms. They've stocked my book, open their doors for a book signing, and extended the welcome to include a "Meet and Greet" in the bookstore cafe immediately following the signing. I couldn't ask for more! Here are the details. If you're in town, I'd love to see you!

WHEN: Thursday, Nov 19th, 4-6pm (Meet and Greet from 6-7pm)
WHERE: Hammes Notre Dame Campus Bookstore, University of Notre Dame, Notre Dame, IN.
WHAT: Despite Lupus book signing - meet the author and chat with LFA Indiana President Phyllis Simko, who will be joining me for the event. Oooh! A celebrity!

I'm finding it odd to return to campus under such different circumstances. Sure, I'm married now, and I'll be bringing baby doll Deirdre (suited up in her ND attire, no doubt!), but what's stranger still, is that I'll be going back to promote a cause that I hadn't even heard of when I was in school. Today, lupus is a common household term for me, one that I've defined and described thousands of times. (I've even written a book about it!) It makes me all the more motivated to return to campus, to help spread awareness, educate and inform others about this chronic, often debilitating illness. Most importantly, I'm proud to share the message that life can go on, despite lupus!

Pass along the word to those of you with friends and family in the Northern Indiana area. I'm also doing a luncheon event in Michigan City on Saturday, Nov 21st. Not sure if there's still room for that one - but if you're in the area, I'd love to hear from you!

I Got Lupus, But Lupus Doesn’t Have Me

It’s been eight difficult years with Lupus and I used to say that I am waiting for a miracle, it is only on my recent birthday celebration that I finally realize that everyday of my life is already a miracle in itself. I know that I am blessed and it is by the grace of [...]

Healthier You

I don’t see anything wrong for women to wish for a beautiful body. Once you feel good about yourself, the confidence within you will bring out the best in all you can be but don’t overdo things… take it slow, losing weight is not an overnight practice and you must be patient enough to wait [...]

Is It True 2009 is Almost Over?

Did anyone realize we’ve almost said goodbye to 2009? You know what that means the holidays are right around the corner. My daughter is working on a list for her Christmas and her birthday. A lot of the things she wants involves some kind of bling bling or blinding colors. I usually buy her [...]

Music Monday: Sheryl Crow-Love is Free

Find more videos like this on www.truveo.com. Come join Music Monday and share your songs with us. One simple rule, leave ONLY the actual post link here. You can grab this code at LJL Please note these links are STRICTLY for Music Monday participants only. All others will be deleted without prejudice. Powered by MckLinky Click here to [...]

Christine Miserandino was featured as part of the "Fortune 52" in The Long Island Press

The Fortune 52 weekly column in The Long Island Press written by Associate Publisher, Beverly Fortune, honors local women who lead multiple lives, making significant and unique contributions in their community or workplace: women from all walks of life. The lives and work of these women who inspire by their example are honored in print and online at www.fortune52.com. Every calendar quarter Beverly hosts an extraordinary, invitation-only networking gathering to celebrate the women of Fortune 52.This newspaper is a very popular regional newspaper and website for Long Island, NY.

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Looking for Computer Files Away From Home

Have you ever wanted to see one of your computer files when you’re away from home? I know I have more times then I can count on both hands. I’ve loved to write since I was a teenager and inspiration has no timing. Recently, I’ve really put my heart into writing a book. At times, [...]

Making Connections (Part Two)

In the last post , I spoke of how many of us constantly seek out information regarding our chronic illness believing that the more we know, the better we will be in managing our illnesses. Although being well-informed is a good thing, we can sometimes lose sight of a couple important things if we aren’t [...]

Making Connections (Part One)

“My life has a great set of characters; I just haven’t figured out the plot.” ~Ashleigh Brilliant I recently had the opportunity to work with a client in a coaching capacity, unrelated to lupus. She called me to help her objectively evaluate what her priorities are and chunk them into an achievable action plan that she [...]

New lupus drug Benlysta passes second clinical trial

The LA Times is reporting that Benlysta, a new drug designed to treat lupus, has passed an important second clinical trial. The drug's maker, Human Genome Sciences, plans to apply for FDA approval next year. If approved, Benlysta will be the first new treatment for lupus in 50 years.

In the clinical trial, 43.2% of patients who took Benlysta in addition to their usual treatment saw their symptoms reduced, compared to 33.8% of people on a placebo.

New lupus drug Benlysta passes second clinical trial originally appeared on About.com Lupus on Wednesday, November 4th, 2009 at 13:10:25.

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Smokers With Common Autoimmune Disorder At Higher Risk For Skin Damage

As if there weren't enough reasons to stop smoking, a team of researchers at the Research Institute of the McGill University Health Centre (RI-MUHC) have just found another. A study led by Dr. Christian A Pineau, Co-Director of the Lupus and Vasculitis clinic at the MUHC, has clearly linked skin damage and rashes to smoking in people with systemic lupus erythematosus (SLE). The study was published in a recent issue of the Journal of Rheumatology.

Manny's Spoon Presentation

I often receive requests to reprint The Spoon Theory in educational material, support group hand-outs, and health related newsletters. Recently, one request really grabbed my attention. A group of friends decided to honor a co-worker, recently diagnosed with cancer, by presenting him with a printed copy of The Spoon Theory, along with an engraved spoon.

Today, I was honored to receive a video of the presentation, and would like to share it with all of you.

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Promise Of A New Lupus Treatment Is A Groundbreaking Achievement

Human Genome Sciences (HGS) and GlaxoSmithKline (GSK) today announced positive results from BLISS-76, the second of two large-scale phase III clinical trials of BENLYSTA™ (belimumab) for treating systemic lupus. A full presentation of results from BLISS-52 was recently shared at the 73rd Annual Scientific meeting of the American College of Rheumatology. Both trials succeeded in meeting their primary endpoints, which should make BENLYSTA eligible for approval by the U.S.

Lupus Research Institute: Benlysta(TM) Trial Results In An Historic Research Breakthrough And Victory For People With Lupus

The Lupus Research Institute (LRI) and its National Coalition of state and local lupus organizations congratulate Human Genome Sciences (HGS) and GlaxoSmithKline for achieving an historical landmark - the second positive phase 3 clinical trial of Benlysta (belimumab), the first successfully tested new drug developed specifically for people with systemic lupus. "This is a pivotal moment in lupus research," said Margaret G.

Human Genome Sciences and GlaxoSmithKline Announce Positive Results in Second of Two Phase 3 Trials of Benlysta™ in Lupus

BENLYSTA (belimumab) 10 mg/kg plus standard of care met its primary efficacy endpoint by achieving a statistically significant improvement in patient response rate versus placebo plus standard of care at Week 52 in BLISS-76

Primary efficacy endpoint met in two pivotal Phase 3 trials, as specified by Special Protocol Assessment agreement with FDA

Second successful phase III trial points to the first new lupus treatment in over 50 years

New York, NY (November 2, 2009) -- The Lupus Research Institute (LRI) and its National Coalition of state and local lupus organizations congratulate Human Genome Sciences (HGS) and GlaxoSmithKline for achieving an historical landmark - the second positive phase 3 clinical trial of Benlysta (belimumab), the first successfully tested new drug developed specifically for people with systemic lupus.

Only lupus organization designated a “Top Rated Charity” by national charity watchdog

Of the over 500 charities rated by the American Institute of Philanthropy (AIP) this year, the Lupus Research Institute (LRI) is the nation’s only lupus organization to meet the stringent standards for financial efficiency and accountability and win a spot on the “Top Rated Charity” list. The fiercely independent and nonprofit AIP helps donors make informed giving decisions.

A Shot in the Dark

A friend of mine recently reacted to a pneumonia vaccination and that led me to confirm my decision to NOT get the H1N1 and flu vaccines this year. Her reaction may have less to do with her R.A. and Lupus than the incorrect administering of the shot itself (yeah, I guess there is a ‘right [...]

World Arthritis Day 2009!

Nothing brings home the challenges of stiff, achy joints and limited mobility quite like the dampness of a good Oregon winter. We’ve been fortunate here so far in not stepping into that season full boar yet, but we know it’s coming. Today, awareness is upon those daily challenges for people living with osteoarthritis and all the other [...]

North, to Seattle…go north, the walk is on!

A quick note for all of you who will be in the Seattle area on October 17th : The LFA Pacific NW Chapter will be hosting their annual Mad Hatter Walk N Roll for Lupus event on that day at Magnuson Park at Sandpoint Way. Step out to join your community – both the lupus community [...]

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home is where the heart is...

Home is where the heart is...until you run out of money. We are facing foreclosure on our home that we have had for almost 10 years. I was very upset. We can sell it, but I don't want to sell it. Waiting for disability seems to be forever! How can anyone afford to wait for disability? We pay into it for all these years until we need it one day and it takes this long just to tell you no. I know I made several mistakes my life, but my life hasn't always been great to me. I am paying for my pain for not working. I'm going to lose my home. I can't make a partial payment, only a lump sum. I don't have a lump sum. I just want to save my home. How am I going to go on? What do I tell my family? Please God help me. Help me save my home. Anyone and everyone that reads this, please pray for me.

World Lupus Day is May 10th!! Help spread awareness!!

70

70, that is the magic number. The crappy number, the number I hate. That's the number of pounds I have gained from lyrica in 9 months. Now I will be the first to admit I don't make some of the best eating choices, but 70 pounds is a little much. The Lyrica Manufactors claim that weight gain is a small percentage of people taking it. Well it's not and the weight gain is crazy. I don't fit into any of my clothes and honestly if I have to by a bigger size pair of jeans I will ball my eyes out. I have never been this big and I refuse to go up a size, so for now I am SQUEEZING my butt into these jeans.

My rhuemy is taking me off the lyrica 100%, I am so happy. SHe's gonna put me on something else for a little while. I am also on strict instructions to use my lunch breaks to get fresh air.

I am in the midst of a flare, mainly cause I am not sleeping that well and my flares are associated with my hormones as well.

Other than all this crazy stuff, life continues to go on. I was blessed to get an email from a reader of this site. I didn't really know others followed it. She has Lupus and has dealt with some of the same situations I have. It was really neat to read her email (I actually read it twice). I love knowing I'm not alone and others have the same expierences. Fight for people to liste!!!
I started a twitter page where I am doing updates daily on my lupus stuff. You can follow me there at www.twitter.com/corilewis. I am going to find out if I can put a twitter feed on this site so the updates comr through daily.

So it's been a while...

Are you surprised?
I haven't really wanted to update this blog, for a couple for reasons. First, I'm tired of the same old stuff and writing it all down just reminds me of that stuff. And two, does anyone really read this blog? I found out the other day that at least one person does because they emailed me asking me if I was doing better. Bottom line, I'm the same.

One of the things I did do differently was I went to my primary care physican after having a whole day of pain in my lymph nodes being so bad my right arm was useless. He sent me in for a mammogram in hopes of looking at the tissue, muscle & lymph nodes all at one. That was two weeks ago and I still haven't heard from him. So I wait. I'm going through another bit of no sleep. I finally got a rx for a sleeping pill, but it has yet to work. I see my doctor next friday and I hope to get some answers.

The pill I started finally kicked in and from an antidepressent stand point it is the best drug I've ever had. but as far as pain management I could take it or leave it. I don't want to go back on the other cause I need/want to loose weight.

I hope this is a good update. Once I figure out Twitter I'm going to start posting an update every day, if not more, so you can follow me there. Also I'm on facebook and that is probably the best place to find me :-).

Here is a little joke I put on facebook a little while back.

Ok, for the last several months I have been annoyed and struggling with everything I have dealt with and when a doctor says "Sorry you have Lupus, I can't help you" it is the most annoying thing you can hear. So lately I've realized, I can blame so many things on Lupus.
(Please note, some of these are true, but some are mostly for my own amusement. I don't plan on affending, but, you never know).

--have chest pain? it's not a heart attack... it's Lupus
-- 4 hours in the ER, finally the doctor comes in. barely looks your way and doesn't even touch you... he's response " You have Lupus and Fibromaylgia, I don't know why your here, there is nothing I can do for you".
-- I've known you for years and I've forgotten your name.... sorry it's Lupus
-- Stubbed my toe and yelled out a bad word- that's definatly Lupus
-- Eye doctor says the viens in my eyes are very abnormal... oh wait she just notice you have Lupus!
-- Can't eat much cause anything can set off some nasty GI stuff- that is DEFINATLY lupus
-- Gained 50 pounds in 2 months? It's not what your eating it's the meds
-- Your friends think you are crazy- that's the meds- from Lupus
-- can't get your words out of your head and your speaking in a large group? oh pardon me have an incurrable disease that causes me to be on crappy drugs that make me dumb... it's LUPUS
-- did I call you a bad name? I'm sorry I have Lupus
-- Did I forget I borrowed $10.00? eerrr no really that's lupus
-- laughing uncontrolably at something really dumb? Sorry I have lupus and I'm hoping laughter will heal it.
-- did I burst into tears after laughing? That's the steriods that make me crazy emotional.
--Did I just smack you for no reason? Sorry Lupus causes uncontroable muscle spasms.
--It's 5:00 and I'm in my PJ's resting in bed- yup you guessed it Lupus
-- You heard me snoring? at my desk? are you sure? well, then sorry I have lupus and it can cause me to fall asleep unknowingly... and the fact that I'm curled up on the floor only means I fell out of my chair... I didn't curl up there in hopes of not being caught.
-- Oh that's not a candy jar on my desk, it's my pill box, hands off. Those happy pills are for me. DUH.

I hope to come up with more... more funny ones. I hope someone found this funny, if it's not funny to you sorry, my humor is really bad cause of all the meds I'm on from Lupus.

just another day...

Just another Monday...isn't there a song with that phrase as a chorus? I have a full week ahead of me, also the fact that taxes are due Wednesday. I need to file for an extension, but I have yet to gather all my numbers together. Wonderful, huh? We have had some good and bad news. One of our cars was hit and will probably be "totaled" I'm not too sure if that is good news at all. But now we are down to one car. It was just a long weekend. Easter: our annual egg hunt was successful and both dogs seemed full afterwards. Our older dog was slow on the egg hunt this year, hopefully it doesn't mean his time is limited, right? We did watch Marley & Me and my daughter cried at the end. Everything was due to natural causes and it wasn't like something tragic happened. My daughter played for two teams this past weekend. She played for the freshman team and the JV team. Tuesday there are two games, but one is far away and one is at home. I'm not sure which one she will play and if she will skip her symphony practice. Everything is kind of up in the air right at this moment. My daughter is getting a used clarinet from her symphony. It is such a blessing because we have needed one for such a long time now.

World Lupus Day is May 10th!! Help spread awareness!!

situations

I had a big evening where I was helping an organization with a dinner. Last week I was able to help with a wedding and I was fine. It was very different this time. I didn't take my afternoon medication because I forgot to do so. I got home kind of late and took what I thought I missed. I couldn't find the stash of medication for the day. It was a very long evening where I felt scared and didn't want my husband to go anywhere. It had a tingling feeling about it too. I felt like I was a bit bewildered. Sunday, I didn't wake at all. Good thing my daughter knew to give me medication. She said that I didn't wake up that she propped me up and put meds in my mouth and gave me something to drink. Poor thing. She stayed with me the whole day as I wouldn't wake. One of our dogs was just going nuts and driving her nuts. She knew that was a bad sign. My husband finally came home and brought food. I guess I ate and went back to sleep. At one point, I had peanut butter in my mouth just sitting all day as I was sleeping, eww, huh? I guess I wanted to share this story because I'm ever so grateful to my daughter, who takes care of me.

World Lupus Day is May 10th!! Help spread awareness!!

spring time...

Spring is in the air. The official first day of spring has past and now we are in the midst of snow, ugh. Some of the things we love about living in Colorado. I guess travelling and coming home to it is very different than if I was home and it just snowed. I have to do a ton of things since I've been gone. We have no groceries is the first thing that I have to jump on. Since I have been home all I have done is sleep. I was so exhausted that I slept for three days through. I don't even think I ate during those three days, but it felt wonderful. My body definitely needed it.

During the spring my daughter got to meet my very old grandma. I was very happy to see my grandma. She lives so far away, yet she is still very independent. I miss her so quickly after we visit her. I just can't believe the love I feel for my grandma that it hurts. I have asked her to move in with us, but I know the different climate would be difficult. Plus, we live in a two-story house, but there is a room downstairs that I would have to move the doggies out of and insulate it better so she won't freeze in it. It is all exterior walls so it is almost like the room is outside of the whole house so the temperature in that room isn't great. I would be so selfish to ask her as all of her friends are where she lives right now.

World Lupus Day is May 10th!! Help spread awareness!!

Husband

What is a husband? Besides being the person you are supposed to be sharing your life with? My husband is hard to tell. He can be so loving, but other times I wonder. I wonder if he really loves me. Love is so difficult to understand. We have been married for almost 15 years and we are still trying to figure out the wrinkles in our marriage. One day, moment, second, we are okay, then it could change in the matter of a snap. Depending on attitude and mood.

World Lupus Day is May 10th!! Help spread awareness!!

March

It looks as if my updates are monthly, but I guess that’s better than none. There isn’t a lot to update you on, just the same old stuff. I am hoping the new medication kicks in soon. I am in intense pain. The breaking point was when I couldn’t quilt on my machine last week. My doctor has upped my pain medication, so that is taking the edge off, but popping pills is not always the first thing I think of. The exhaustion is overwhelming. There is so much to do in life and my wonderful husband has had to pick up a LOT of the slack, which makes me feel guilty (he doesn’t make me feel guilty, it’s just me). Josiah has been great, we are coming up with things to do together that I can do while resting like reading or puzzles. I have been teaching him how to play Sudoku and he loves it. It’s fun to do things like that together. I will update when/if the meds start working. I need to get back to life.

Riquent No Longer a Possibility

Earlier this month, La Jolla Pharmaceutical company halted the clinical trial of its possible lupus treatment drug Riquent. It was hoped the drug would stave off episodes of kidney inflammation caused by lupus.

An independent monitoring board called use of the drug “futile” after reviewing preliminary trial data. No new drug for lupus has been approved in 50 years.

There is just the smallest glimmer of hope, however, since La Jolla will have a chance to review the trial data and determine if its worth arguing against the monitoring board’s ruling.

Among lupus patients, La Jolla was considered “the little engine that could,” since Riquent is the only drug in the small company’s arsenal. Now that clinical trials have stopped, patients will have to look toward the next wave of possible treatment.

Riquent No Longer a Possibility originally appeared on About.com Lupus on Thursday, February 26th, 2009 at 16:51:09.

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Life is so interesting. The sleep didn’t get better right away, as a matter of fact it got to the point of where I went two full nights with no sleep. By Sunday afternoon I was so out of it and I started to become sick with a cold and had all the signs of having the start of a Lupus flare…
So I have slept pretty good, in the last week, mainly cause of Nyquil.
This flare seems to be a big one, it seems to have a lot of symptoms, some aren’t too bad, but others are painful. My lymph nodes have swelled back up and they are so painful. So back to square one.

Other than all this fun, life is pretty normal. I work at trying to take it easy but that doesn’t always work. David has now caught the cold I got, so I am waiting for it to come back my way .

What's Your Type?

Today we'd like to take a moment to welcome all of those women and men who have been newly diagnosed, or know someone who has been newly diagnosed, with lupus.

Today we’re asking the question, what type of lupus do you have? And more importantly, did you know that there was more than one type?

Lupus takes on several forms and can affect any part of the body, but it most commonly attacks the skin, joints, the heart, lungs, blood, kidneys and brain. So what are the various types?

They are:

These are the most common forms, but there are other forms as well. See something missing? Let me know at lupus.guide@about.com.

What's Your Type? originally appeared on About.com Lupus on Sunday, February 15th, 2009 at 12:00:34.

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Just the FAQs

If you’ve been newly diagnosed with lupus, or have lived with it for some time, you may have dozens of questions related to the disease. In an effort to collect as many of those questions as we can, provide some short answers, and then link to more in-depth information, we have launched this Frequently Asked Questions page. Here you will discover questions that have been asked, with a link to provided answers.

If you have questions that are not covered in this document, please e-mail me at lupus.guide@about.com. We hope to add to this page regularly, and welcome any and all questions you might have.

Just the FAQs originally appeared on About.com Lupus on Thursday, February 12th, 2009 at 12:00:37.

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Research Studying Why Therapy Works for Some, Not Others

Interesting news: new lupus research will focus on why some therapies work well for some people with lupus, but not others.

The focus of the research study, from the University of Rochester Medical Center in Rochester, N.Y., is on B-cells. B-cells are considered “key combat-ready immune cells.” B-cells are also often responsible for manufacturing auto-antibodies. The research should also open up the way the immune system works and mechanisms behind lupus.

Researchers are specifically looking at how bone marrow produces B-cells, and what quality control checkpoints it imposes to ensure that only healthy cells are released into the bloodstream.

This quality control system breaks down in lupus patients, and B-cells produce auto-antibodies and attack the patient's own body. This leads to the myriad symptoms and complications lupus patients suffer, including inflammation and damage to joints, skin, and, in some cases, the heart, kidneys and brain.

One treatment is known as "B-cell depletion therapy.” This therapy reduces the number of B-cells in the patient's bloodstream. It was successful for some – and of those, the success was quite noticeable. Now study specialists are trying to determine why this therapy works so remarkably for some, but not others.

Discovering why should help create and direct future therapies for lupus patients.

Research Studying Why Therapy Works for Some, Not Others originally appeared on About.com Lupus on Tuesday, February 10th, 2009 at 22:52:45.

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Life has been incredibly overwhelming lately. Not in a particularly bad way or a good way, it just seems crazy. I went to my doctor last week to ask about the new Fibromyalgia drug. The one I’m on now has helped me gain a lot of weight in a short period of time and I really need to lose it since it is affecting my ankles. So the new drug isn’t out yet, but there is another drug I could try. So I am weaning off the first one & starting the second one. The first one seems to working its way out of my system fairly quickly and the second one is taking it’s time working into my system. I will be glad when this is over, and I really hope it works! But in the meantime I am being reminded of how I felt a year ago. I really don’t know how I survived all this pain and lack of sleep.
So that kind of catches you up to my health stuff. I am sleeping 2-3 hours a night- if I’m lucky. David & I bought a new mattress that we set up tonight- so I’m hoping that helps a little. It’s much better than the one we had.

Some People Suck

This month my son's class are going to science camp. I signed up to go. I've been looking forward to this. A LOT. Unfortunately, the insurance company decided to finally cooperate and I scheduled to have the scope of my esophagus and stomach done. The day after they leave. So I can't go.

I talked to the teacher on Monday and she was very understanding. Unfortunately some of the parents aren't. Some of the parents know whats going on. The ones that know are understanding. The ones that don't are very upset that I've backed out. I had one woman tell me I needed to just reschedule that my kids are more important.

Yeah my kids are more important, however I think me trying to do whatever I can to stay as healthy as long as I can is more important than a freaking camping trip.

Its not like there aren't enough parents going. There are more than enough.

Limits

I have 3 kids. 3 kids that don't understand that 2 years ago mommy could go outside and play with them, and now I have days I can hardly walk.

These same 3 kids are also keeping me from setting limits, or using them to get out of doing things.

Last weekend we spend all day Sunday with some friends of ours and their kids. Lots of walking, standing, and sun.

I had all sorts of excuses for getting out of going, but the kids were so excited and I couldn't bring myself to use them.

I spent 2 days recovering from it, but thats a price I am learning to pay.

I can't let the pain or the fatigue from allowing me to live my life and be a cool mom to my kids.

My sweet little boy

Last night Robbie gave me this necklace. He told me he saw it at Target and asked D if he could get it for me. (a butterfly is used on many lupus websites, posters, and such).

He told me he knows it won't make me better, but it might make me feel better.

Then he asked me what it feels like to have lupus. He then told me he wanted the truth and not to lie to me.

I tried to find a way to explain it that he'd understand, but wouldn't be able to over think it and make it sound worse than what it is.

I told him to remember the last time he bruised his knee. I told him that all of my joints feel like that. My ankles, my knees, my elbows, and my shoulders. He asked about my neck. I told him that it feels weird. That it hurts and showed him where. I told him it kind of feels like when his sister punch his arm, its just in my neck. Then he asked why I turn red. I told him that's from the sun, that if he looks closely there's a lot of little blister type bumps on my arm. I asked him if he remembered when he had poison oak. I told him that it feels like that, but instead of being caused by a plant its caused by the sun. That's why I have long sleeves on most of the time, or an umbrella with me when we are outside.

I told him the medicines I'm on are helping me, even though it doesn't seem like it. Its just going to take a while for them to fully help me (most things I have read say a year or more). And that we are trying to find out whats going on with my neck. I told him that they may have to cut my neck open and remove one of the lymph nodes so they can find out whats going on. He thought that was kind of cool and asked if he could see the stitches when they do it.

He hadn't said anything, so I didn't realize that he was convinced I was going to die from this.

I think our conversation last night helped a lot. He seemed a bit more upbeat this morning and didn't seem like an act like I've noticed the past month or so.

MIA

Sorry about so long between postings. Between getting ready to move and then moving, life got a little hectic. Then we didn't have internet for over a month.

Now its going to take me a while to recover from all this.

Aug 27th I had a ct scan done of my chest. Both my regular doctor and my rheumy wanted to check the lymph nodes in my chest. Since the ones in my neck are so swollen and have been for months, they want to see what those look like.

My rheumy is talking about doing a biopsy no matter what the results from the scan say. UGH! I'm still seeing my rheumy from Southern CA because I haven't found one up here just yet. Plus I'm nervous switching doctors in the middle of all this.

I promise to update more often. Now that things are finally settling down I will have a bit more time.

The Starr Bar

My sister sent me this. I'm trying to pass it on to everyone I know.

As many of you know, I was diagnosed with Lupus and Scleroderma in March.

The Starr Bar is made by Body Balms. 50% of every Starr Bar purchased will go to The Scleroderma Foundation.

Alltop RSS

Papers and Pen

Growing Old

Next Stop

How I'm dealing with holiday meals

Salvation Army Kettle event Sunday - Iowa City Press Citizen

Lites: Kyle Marcelli 2009 season review - Motorsport.com

Walk Raises $58,000 to Fight Lupus

Walk Raises $58000 to Fight Lupus - GroundReport

this happened.

Store Spotlight: "The Right Moves for Lupus Fitness" DVD

New LFA Video on Lupus Treatments

Saliva Proteins Change As Women Age

Jaime Pressly Short Hair Pictures: Lupus LA Hollywood Bag Ladies Luncheon 2009 ... - American Superstar Magazine

Lupus survivor returns to ND for book signing - Observer Online

Ouchies

How much longer can I survive?

ImmuPharma PLC: Encouraging Final Phase IIb Results Seen With LUPUZOR™ In Systemic Lupus Erythematosus

The Death of (Me while Wearing) Platform Shoes

ImmuPharma PLC: Encouraging Final Phase IIb Results Seen with LUPUZOR(TM) in Systemic Lupus Erythematosus

Greatest Benefits Seen in Patients with Moderate to Severe Systemic Lupus Erythematosus

LFA Releases Video Series on the Latest Lupus Research

ND grad to talk on living with lupus

Lupus Research Institute Mourns Loss of Young Male Athlete to Lupus

Nebraska Pitcher, Jonathan Figueroa, Was 26 Years Old

'Invisible disease' a challenge to manage

May the force be with you

Dialysis supplies room!

How to not be discreet.

LFA's "Medication Adherence" Webchat to be Held Monday, November 23 at 3 p.m. Eastern

Bittersweet: A tribute to Ursula Williams

LFA's "Medication Adherence" Webchat to be Held Monday, November 23 at 3 p.m. Eastern

Break between studying

Placebos' ability to cut pain real, experts say

For the Love of Tennis

Lupus Butterfly Rash

H1N1 Vaccine

Could I Have Lupus? Awareness Campaign is # 1 for Outdoor Donated Media Dollars in Q2 2009!

Photo Essay: Americans with Disabilities Act: Accessibility for ALL

Passing the torch

Save the Date: LFA's Lupus Advocacy Day on Capitol Hill to be Held March 15-16, 2010

Product Reviews: Wine and Beer Accessories for Those with Weak Hands

The Blessings of Chronic Illness

Not Sweating the Small Stuff

I'm off to the Golden Dome!

I Got Lupus, But Lupus Doesn’t Have Me

Healthier You

Is It True 2009 is Almost Over?

Music Monday: Sheryl Crow-Love is Free

Christine Miserandino was featured as part of the "Fortune 52" in The Long Island Press

Looking for Computer Files Away From Home

Making Connections (Part Two)

Making Connections (Part One)

New lupus drug Benlysta passes second clinical trial

Smokers With Common Autoimmune Disorder At Higher Risk For Skin Damage

Manny's Spoon Presentation

Promise Of A New Lupus Treatment Is A Groundbreaking Achievement

Lupus Research Institute: Benlysta(TM) Trial Results In An Historic Research Breakthrough And Victory For People With Lupus

Human Genome Sciences and GlaxoSmithKline Announce Positive Results in Second of Two Phase 3 Trials of Benlysta™ in Lupus

Benlysta™ trial results in an historic research breakthrough and victory for people with lupus

Second successful phase III trial points to the first new lupus treatment in over 50 years

Lupus Research Institute Earns A+ from American Institute of Philanthropy

Only lupus organization designated a “Top Rated Charity” by national charity watchdog

A Shot in the Dark

World Arthritis Day 2009!

North, to Seattle…go north, the walk is on!

IMPORTANT NOTICE: The URL for this RSS feed has changed. Click here to get the updated URL. (Note: This RSS feed is available to Inbox Robot subscribers only.)

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home is where the heart is...

70

So it's been a while...

just another day...

situations

spring time...

Husband

March

Riquent No Longer a Possibility

What's Your Type?

Just the FAQs

Research Studying Why Therapy Works for Some, Not Others